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Going To Specialist Tomorrow Any Tips On What To Ask?


nettinpete

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nettinpete Newbie

Hi all, I am new to the Coeliac world having tested positive with blood tests and also gene test. Next step is I'm off to a specialist tomorrow for the first time. My local doctor has noted on the referral about a gastroscopy and biopsy. I don't know anyone else with celiac disease so would like to get some ideas what I should speak to the specialist about or questions to ask, I guess to feel comfortable in knowing he is the right specialist to be under. Any suggestions would be appreciated. Thankyou kindly.  


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cyclinglady Grand Master

You are almost finished! Keep eating gluten until all testing is complete. Here is a link to the University of Chicago's celiac website (very reputable) discussing the biopsy procedure. Your GI should take 4 to six samples:

Open Original Shared Link

Here is another good source:

Open Original Shared Link

I hope you feel better soon! Ask anymore questions, but the endoscopy, from my personal experience was just fine.

bartfull Rising Star

And once testing is completed and you're ready to go strictly gluten-free, do read the Newbie 101 thread here in the coping section. It'll teach you what to expect and how to avoid cross-contamination.

 

And feel free to ask as many questions as come to mind. We're here to help. :)

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    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
    • trents
      Nuts are a common source of food allergy reaction/intolerance/sensitivity. But fish usually not. Of course, intolerances can develop to any food, whether or not they are common ones. I'm at a loss here.
    • Scott Adams
      Your doctor's recommendation to wait three months is very sound and aligns with general advice for celiac disease. While the acute GI symptoms resolve quickly, the autoimmune response and intestinal inflammation can linger, impairing nutrient absorption crucial for early fetal development. This three-month window allows your body to calm the immune response and for your gut to fully heal, ensuring you are in the best possible nutritional health for conception and pregnancy. In the meantime, focus on hydrating, eating nourishing, easily digestible foods, and resting—your body needs time to recover. It's a frustrating delay, but it's the best step for a healthy pregnancy.
    • Celiacpartner
      He’s noticed it after having a few different kinds of nuts and nuts on top of a gluten free nut bar. and it’s happened after having some fresh caught fish, and tonight from packaged plain salmon from the supermarket. He has stomach cramps and feels the need to vomit to try and relieve the symptoms. 
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