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Going To Specialist Tomorrow Any Tips On What To Ask?


nettinpete

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nettinpete Newbie

Hi all, I am new to the Coeliac world having tested positive with blood tests and also gene test. Next step is I'm off to a specialist tomorrow for the first time. My local doctor has noted on the referral about a gastroscopy and biopsy. I don't know anyone else with celiac disease so would like to get some ideas what I should speak to the specialist about or questions to ask, I guess to feel comfortable in knowing he is the right specialist to be under. Any suggestions would be appreciated. Thankyou kindly.  


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cyclinglady Grand Master

You are almost finished! Keep eating gluten until all testing is complete. Here is a link to the University of Chicago's celiac website (very reputable) discussing the biopsy procedure. Your GI should take 4 to six samples:

Open Original Shared Link

Here is another good source:

Open Original Shared Link

I hope you feel better soon! Ask anymore questions, but the endoscopy, from my personal experience was just fine.

bartfull Rising Star

And once testing is completed and you're ready to go strictly gluten-free, do read the Newbie 101 thread here in the coping section. It'll teach you what to expect and how to avoid cross-contamination.

 

And feel free to ask as many questions as come to mind. We're here to help. :)

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    • RMJ
      I agree with @trents, they should have run a total IgA.  What was the normal range for the DGP IgA test?  Different labs use different units thus have different normal ranges.
    • Churro
      Thanks for your assistance. 
    • trents
      Get your total IGA checked to make sure your celiac antibody test scores are trustworthy.   
    • Churro
      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
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