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Testing Questions

karalisa78

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karalisa78 Newbie
karalisa78
Posted

Hi everyone,

37 year old female, and after being referred to a GI for ongoing reflux issues, then going in and realizing I have a lot of other GI symptoms. My GI decided to have me go in for a full endo/colonoscopy. (I am having bleeding from hemmeroids caused by BM's). She is suspecting allergies, however.

She had me go off dairy for a 2 week trial, then said the staff will call to schedule the tests. She did talk about taking biopsies, but didn't mention celiac, just said wheat/gluten.

I got the call to schedule, and they're out until September 30th! I have been dairy free, and although I feel that is helping some, I am still having bad days. Today was one. I started thinking about it, and I had 3 sandwiches for all 3 meals yesterday. I thought back to the last couple times, and I can pinpoint the episodes of diarrhea to eating heavy wheat the day before.

My question now is, what should I do? Should I call doc and inform them? (I think I have the soonest appointment), should I try to lessen the gluten? I'm not sure if I should stay off the dairy or what?

They also called today and I have an appointment with an allergist for a full food allergen panel. I asked if this includes the blood test for celiac and they said they don't do that there. Will my GI do that?

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cyclinglady Grand Master
cyclinglady
Posted

Welcome!

First, if you suspect celiac disease, you must continue to eat gluten daily until all testing is complete. Here is a link to the University of Chicago's celiac website (leading researcher and reputable!):

Open Original Shared Link

Go through the entire website to learn about the 300 or so symptoms of celiac disease. Find out about biopsies taken during an endoscopy, etc. Research, because based on what people post on this forum, doctors make lots of errors when attempting to diagnose celiac disease.

I would call the GI office and see about getting tested for celiac disease since you are having an endoscopy and colonoscopy. It is a simple set of blood tests. You could have a wheat allergy but that is a separate issue. celiac disease is an autoimmine disorder not an allergy -- though you could have both. You can go dairy free. That will not impact celiac disease tests. You could have lactose intolerance or even a milk protein allergy. Lactose intolerance is common for those with celiac disease due to damaged intestinal villi.

Hang in there!

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      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
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      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
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