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Fraud?

Whirlwind

By Whirlwind
in Coping with Celiac Disease

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Whirlwind Newbie
Whirlwind
Posted

So, I don't have Celiac disease, I don't think. My mother and sister have been diagnosed with it. (Back in the 90s.) My other sister went through the testing and does not.(A few years ago.) I would get tested but my situation presents a bit of a problem. My mother after finding out that my oldest sister and her had Celiac decided to take gluten out of all of our diets. So, I'm now 25 and I don't eat gluten. I have never eaten gluten. Cross contamination of course. But, never the real thing. So, that makes the testing a bit of a problem seeing as you need to have gluten in your system to test if you have the disease. And I'm not going to mess my body up to get the definitive answer of Celiac.

 

But, I don't eat gluten so I'm in the boat of having to give that information to people when it comes up. And I don't make a big deal out of it. And I also feel like a bit of a fraud. Because, some will ask me what I have and I don't want to explain so someone that paragraph above every time I can't/decide not eat a sandwich.

 

So, I don't know if I fall under the people that are inflicted by a disease I might possibly have or just one of those people that 'have a diet'. And I have said I am Celiac and sometimes Gluten Intolerant. But, I'm neither. Not really. I just am in a weird position.

 

Any thoughts? Is there any way to get out of limbo?

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captaincrab55 Collaborator
captaincrab55
Posted

Gene testing may rule out Celiac Disease.

ravenwoodglass Mentor
ravenwoodglass
Posted

You mention CC. When you have gotten CC have you reacted? If not then you might want to go ahead and do a gluten challenge and get tested. Have you asked your Mom if you were tested when you were to little to remember?  You could get copies of your medical records and see if there was a reason, other than your two family members being celiac, that your Mom also kept you gluten free. You may have shown signs like tummy issues or growth problems that lead your parents to put you on the diet without testing or you may have had a low positive.

kareng Grand Master
kareng
Posted

So, I don't have Celiac disease, I don't think. My mother and sister have been diagnosed with it. (Back in the 90s.) My other sister went through the testing and does not.(A few years ago.) I would get tested but my situation presents a bit of a problem. My mother after finding out that my oldest sister and her had Celiac decided to take gluten out of all of our diets. So, I'm now 25 and I don't eat gluten. I have never eaten gluten. Cross contamination of course. But, never the real thing. So, that makes the testing a bit of a problem seeing as you need to have gluten in your system to test if you have the disease. And I'm not going to mess my body up to get the definitive answer of Celiac.

 

But, I don't eat gluten so I'm in the boat of having to give that information to people when it comes up. And I don't make a big deal out of it. And I also feel like a bit of a fraud. Because, some will ask me what I have and I don't want to explain so someone that paragraph above every time I can't/decide not eat a sandwich.

 

So, I don't know if I fall under the people that are inflicted by a disease I might possibly have or just one of those people that 'have a diet'. And I have said I am Celiac and sometimes Gluten Intolerant. But, I'm neither. Not really. I just am in a weird position.

 

Any thoughts? Is there any way to get out of limbo?

 

 

Sure, eat gluten for a few months and then get tested.

CK1901 Explorer
CK1901
Posted

Go talk to an allergist, explain the situation, and discuss whether you should do the gluten challenge. Also i agree you need to ask your mom for your medical records and talk to your primary about whether or not the diet is really necessary for you.

StClair Apprentice
StClair
Posted

A genetic test will give you more info, and then you can decide better how to proceed. If it indicates that Celiac is very likely, then you may want to just continue the diet. If the results show the chances are less likely then you can commit to six weeks of a cracker a day, and then go through the testing. That's what I would do if it were me.

Whirlwind Newbie
Whirlwind
Posted
  • Author

Thank you. Your guys suggestions have been very helpful. I didn't know that you could get genetic testing first. I thought it was strictly the gluten challenge and  biopsies and similar to diagnose (and seeing as what I said because about not having gluten in my diet).

 

I have talked with my mother before and she put us all on the diet because it easier for the household to eat all the same food and she became a bit of a health nut after it. She also took out sugar our diets because her family had a history of diabetes.

 

Again, thanks very much. :D

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Googles Community Regular
Googles
Posted

The genetic testing wont tell you if you have celiac, but it will tell you if you have one or both of the two identified genes that cause celiac. 

Sammykins Newbie
Sammykins
Posted

It will also tell you the likelihood of you having celiac by percentage (or at least my test did).

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