Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Fatigue /stiffness

Jimmymtfan19

Recommended Posts

Jimmymtfan19 Newbie
Jimmymtfan19
Posted

Anyone's throat and face musclkes feel tired and stiff along with discomfort when swallowing ect? Been gluten free about a month. BC powders seem to help

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jimmymtfan19 Newbie
Jimmymtfan19
Posted
  • Author

i had my blood work printed out from when my celiac was at it worst, this is what they say i have anyway doctor said my vili are flat and damaged. BUT my blood levels were all normal igA was 171 i think and immunoglubulin G i think was like 100 not sure what the others are they didnt check them all, all cbc was normal, thyroid was normal, so how the hell can i have celiac but normal blood levels, i have had it for 2 years and was horribly constipated, tarry black fatty nasty smelling stools, ribbon like stools, pulsating abdomen, fatigue, headaches, weakness , throat discomfort, abdomen swollen, im tired of hurting and nothing seems to work, and the blood work isnt showing i have it. are there certain deficiencies that could be causing my extreme muscle fatigue and tiredness, even my face muscles get weak and talking seems to take alot of effort. 

kareng Grand Master
kareng
Posted

I'm not sure what you tests actually had - but a TTg IGA of 100 would  be extremely positive in most labs scales.

 

Maybe you could get the actual results with the scale or ranges.

cyclinglady Grand Master
cyclinglady
Posted

Check the copy of your labs like Karen suggested. Your previous posting stated that your "antibodies were high".

I am assuming that you are really having an off day! It will get better. You just need more time.

You mentioned having a CBC and a thyroid test. You need to ask your doctor to check your vitamin levels (e.g. Vit. D, B-12, folate, etc). That is not included in a CBC.

Keep looking to your diet too. There is a huge learning curve! Get plenty of rest and make sure any meds or supplements are gluten free. When in doubt, ask us! It is hard to think clearly when you are so ill! We have all been there!

Jimmymtfan19 Newbie
Jimmymtfan19
Posted
  • Author

They told me they were high I thing they did the ttg iga test and it said immunoglobulin was 100 and ttg iga was 173 thyroid and all cbc were normal. I'm going to get vitamin levels checked

kareng Grand Master
kareng
Posted

They told me they were high I thing they did the ttg iga test and it said immunoglobulin was 100 and ttg iga was 173 thyroid and all cbc were normal. I'm going to get vitamin levels checked

I'm not sure what is going on but your first post says your blood tests were normal. Now you say they are positive. Anyway.....

It will take a few months, at least to reverse vitamin deficiencies from celiac

Jimmymtfan19 Newbie
Jimmymtfan19
Posted
  • Author

I didn't know what test they ran but if you Google normal iga levels I thought mine were normal.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jimmymtfan19 Newbie
Jimmymtfan19
Posted
  • Author

80-350mg/dl iga is normal range from what I read. So 173 is normal? But anything over 10 units/ml of ttg iga is positive and high mine is 173 they didn't say if it was ttg iga or specify so I was confused.

kareng Grand Master
kareng
Posted

You have a normal serum IGA. That just shows that your other tests will be accurate. I'm sorry... could you post what each test actually says? In one post you say they are negative and another that they are positive. It sounds like you make a normal amount of "IGA" so the IGA tests are accurate. It sounds like you had a positive blood test? And positive biopsy?

Jimmymtfan19 Newbie
Jimmymtfan19
Posted
  • Author

They said both were positive

ravenwoodglass Mentor
ravenwoodglass
Posted

You are very early in the healing process and it is going to take some time to recover. It is quite possible to have a normal CBC on testing and still be celiac. What matters is your postive Celiac panel results. I know it is hard to be patient with your recovery but we really don't have a choice. Do you best to make sure you are doing all you need to prevent CC and if you haven't already do read the Newbie 101 thread at the top of the Coping section. Also make sure your little one gets screened regularly as Celiac is strongly genetic.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,176
    • Most Online (within 30 mins)
      7,748
    Cassiedawn16
    Newest Member
    Cassiedawn16
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...