Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremely low level of energy


Nelly

Recommended Posts

Nelly Rookie

I am 44 years old diagnosed  with celiac in March 2015. I am hypothyroid also for which I am taking medicine. I am also taking all my vitamins and calcium supplements.before going gluten free I had stomach issues and occasional body aches but since I am on gluten free diet I am suffering from so many problems and low energy level has made me feel miserable. The more I move around do some regular chores I completely collapse. With low energy l Have joint pains too and whenever I do a little more physical work i have low grade fever . Please help I was fine before I went gluten free but now I feel horrible. I have left my job. Because of this my relationships are suffering.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I would recommend going back to your doctor and get retested for celiac disease to confirm that you are diet compliant.   When was the last time your thyroid was checked?  Your prescription might need adjusting.   Fever is not one of the 300 symptoms of celiac disease so it may be something else.   Again, I think a doctor visit is in order.  

Nelly Rookie

Doctors have really disappointed me . They have no knowledge of celiac and they don't even bother to even listen to you. My thyroid Was .68 so the doctor decreased my dose so it went up to 19.6 and Then again I went back to my original dose of 100 mcg of thyroxin. I understand the lethargy can be related with it but even a slight physical activity Leads to low grade fever which is very strange. The whole day I spent sitting on a couch . Sometimes I feel so embarrassed and no one understands the condition I am going through. I feel I am just charged like two bars of a mobile and the more I do some work the battery is discharged. Miserable.......

 

RMJ Mentor

Are you sure that all of yur vitamins and supplements are gluten free?

cyclinglady Grand Master

Is your brand of thyroid replacement really gluten free?  Confirm with the manufacturer and check their website or insert packet for the ingrediant list as formulations change.  

Seriously, you could have mono on top of everything.  Just had a member who was diagnosed with it last month.  There is a blod test to check.  

Here is a dumb idea, but I thought my kid was running a low fever.  Turns out her digital thermometer was not calibrated right.  The old-fashioned Mercury thermometer was correct.  Had to buy a new digital.  

Nelly Rookie

Yes all my supplements and my thyroid medicine is gluten free. I use mercury thermometer and when I have low grade fever my My pains are bit severe than normal and plus I have a Bad headache which I usually don't have

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,216
    • Most Online (within 30 mins)
      7,748

    zappanh
    Newest Member
    zappanh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • max it
    • trents
      Not to eat or drink certain ones of what? Do you know what it is specifically you are trying to avoid when you eat? I kind of get the feeling you don't really understand much of this celiac thing.
    • max it
      Hi Ya , yes I have access to my records. Now if I only knew what I was looking for?? But for me this not important. I already know not to eat or drink certain ones. And I also push the packet on occasionally. Whatnisnto be learned? What's the value to be learned?
    • trents
      Hello, Jeff and yes, PTL! The word "marker" is typically used in connection with gene testing but gene testing is not usually where testing for celiac disease starts. It usually starts with blood work looking for antibodies that are more or less specific to celiac disease. The most popular antibody test ordered by doctors is the tTG-IGA test but there are others. Here is an overview: Do you have access to your medical record/test results online? What is your next step with this? I assume you are not yet eating gluten free.
    • knitty kitty
      @lizzie42, I have dermatitis herpetiformis outbreaks when I am exposed to foods high in iodine.  Iodine can cause dermatitis herpetiformis to flair up badly.  So I avoid high iodine foods like dairy products, crustaceans (shrimp, crab, lobster, shellfish), Eggs, and iodized table salt.  Spinach,  potatoes, kale, and kelp are high in iodine, too. The antibodies that cause dermatitis herpetiformis are tTg 3 IgA.  The tests for Celiac Disease measure tTg 2 IgA antibodies.  The dermatitis herpetiformis tTg3 antibodies can hang around for two years or more and become more active when exposed to iodine without having gluten present.  Dermatitis Herpetiformis is pressure sensitive and are apt to form under tight clothing like belts, bras and underwear, seams on tight clothing, etc.   I find tallow balm (Vintage Traditions is my favorite gluten free brand) eases the itching and helps heal the blisters without scaring.  Niacin Vitamin B 3 helps the body rid itself of the dermatitis herpetiformis antibodies.  Niacin is one of eight essential B vitamins which should all be supplemented together because they all work together in concert.  Niacin is instrumental in the body's production of Serotonin, the feel good neurotransmitter.  The body turns Niacin into Tryptophan, which is used to make Serotonin.  So when I have dermatitis herpetiformis flairs, I also take Tryptophan at bedtime, and Niacin and a B Complex during the day.   Hope this helps!  I know how miserable dermatitis herpetiformis can be.  
×
×
  • Create New...