Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This isn't that bad!

tooth-whisperer

Recommended Posts

tooth-whisperer Apprentice
tooth-whisperer
Posted

Hi all,

I'm very early to this, don't even know if I have celiac yet but highly suspicious.  Wife and I went to Trader Joe's lastnight and I grabbed up all the gluten-free items I could get my hands on (at least of what we were shopping for).  So far the ginger snaps, brown rice and quinoa pasta, and TJ's brand sandwich bread are actually very good!  I can tell a slight difference between the gluten-free products and their regular counterparts, but I have to say, not in a bad way, just different.  They're quite tasty, and I told my wife I think I like them more in some ways.  The bread reminds me of english muffin bread, it makes great toast.  I'm sure it's not all rainbows and unicorns when it comes to substitute foods, but I'm digging it so far.

Now to call the GI's office and see how soon they can get me tested, so I can get off the G for a while and keep discovering this new food...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

if you haven't been tested yet, you need to continue to consume gluten otherwise your test results may be incorrect.  the blood test is for detecting antibodies and if your body isn't fighting, the test won't detect any or not enough.  here is some suggested reading:

just a couple of hundred other things involved with being completely gluten free :)  lolz - welcome to the forum.

 

 

 

squirmingitch Veteran
squirmingitch
Posted

Great advice from notme! Please be sure to follow the links contained in the Newbie 101 that notme! linked you to. You'll need to get a new toaster or toaster bags, and a new, dedicated cutting board, dedicated condiments or squeeze bottles of them all and do numerous other things. Better let your wife read it too. 

tooth-whisperer Apprentice
tooth-whisperer
Posted
  • Author

Thank you both for the info.  I did in fact go back to eating gluten just tonight, because I am going to talk to my internist about the celiac panel tomorrow, and put myself on the cancellation call list at the GI office to try and get in sooner.  I want to get this figured out!  If I've been mostly off for 5-6 days, how long do I need to be having gluten again before I have my blood tested?

squirmingitch Veteran
squirmingitch
Posted

Open Original Shared Link

Since you've only been off for 5 or 6 days & I'm betting you got cross contamination during that time then I don't think you need to go a full 12 weeks but I nor anyone else can exactly how much having been off will affect you. It's so hard to say. The thing is, you want to be SURE and don't want to ever doubt your test results. I certainly wouldn't get the panel drawn in the next week. If it were me; I wouldn't do it for a bare minimum of 3 weeks.

You can look at it this way.... you could go through Christmas & New Years pigging out on all your favorite gluen foods to say (possibly) goodbye to them forever. 

tooth-whisperer Apprentice
tooth-whisperer
Posted
  • Author
2 minutes ago, squirmingitch said:

Open Original Shared Link

Since you've only been off for 5 or 6 days & I'm betting you got cross contamination during that time then I don't think you need to go a full 12 weeks but I nor anyone else can exactly how much having been off will affect you. It's so hard to say. The thing is, you want to be SURE and don't want to ever doubt your test results. I certainly wouldn't get the panel drawn in the next week. If it were me; I wouldn't do it for a bare minimum of 3 weeks.

You can look at it this way.... you could go through Christmas & New Years pigging out on all your favorite gluen foods to say (possibly) goodbye to them forever. 

Yeah, I kind of figured it's my time to go a little crazy!  Today I informed the partners at my dental practice that if my symptoms get too uncomfortable, I might need to take some time off, and they're understanding folks.  One of the things I've been most concerned about is missing work, but we have a few dollars in the bank and I think being able to relax at home and just lay down and nap when I don't feel well will make it a lot easier.  I normally work 45-50 hours a week, which was fine until discomfort and anxiety were piled on as well.

squirmingitch Veteran
squirmingitch
Posted

Yep, have a last wild fling! Drink your fill of you most favorite beer. Eat those fabulous Christmas baked goods with total abandon.

It's good that your partners are on board with the fact that you may need to take time off. 

Please keep us updated on what happens.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.