Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Social Relatives

Vasiliki

By Vasiliki
in Coping with Celiac Disease

Recommended Posts

Vasiliki Rookie
Vasiliki
Posted

How do you guys handle the upcoming holidays?

I have Christmas Dinner happening at my mother-in-laws place, and flour usually ends up EVERYWHERE! :( She does a whole bunch of baking and cooking that day, and often hugs everyone with her flour-covered apron on. Recently she exclaimed all happily that she made gluten free cookies specifically for me! Only after trying one and getting a headache did I realize she was preparing all the cookies on the same counter... with regular flour on the rolling pin to keep everything from sticking.  (I've noted my error in this, even though I triple-checked before eating it)

I've tried expressing my anxiety for Christmas to my husband, and he's not sure what we should do. My mother-in-law has very very beginning stages of dementia and doesn't remember everything when we tell her lately.

I've offered to make my own food and bring it with us to the entire event, but I feel like it's going to be a day of cross contamination. Like, bringing my own plate and fork kind of thing.

How do you politely tell people that you've just brought your own.... everything...? :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted

Gosh I don't know.  I have the same issue.  We went to my mom's for Thanksgiving and although I'm sure she did her best,  the chicken broth she used in the turkey and gravy was not gluten free.  I also saw her sampling the potatoes and stuff and resampling and asked what she had eaten prior...an English muffin.  I ended up only eating what I brought which was stuffing, cornbread, cranberries and dessert.  It kind of stunk...although much better than getting sick

  I'm not sure how to handle Christmas either.  I know it's just food...but I'd like to enjoy mine like everyone else.

bartfull Rising Star
bartfull
Posted

I always bring my own food (yes, and dishes and utensils) when I go someplace. I just tell the people something along the lines of, "I get SO sick from gluten that I have made it a rule to never eat anything I didn't prepare myself." Then to soften it I admire all of the food the other folks prepared and tell them how much I wish I could eat it because it looks so good/or I remember how good it was. When they start feeling sorry for me I tell them it's the COMPANY that matters most.

Darren Apprentice
Darren
Posted

The above advice is best. Just say it and do what you need to do to stay safe. And for goodness sakes don't worry about offending anyone, it's your health not theirs and as long as you are polite and say how much you would love to try their food but simply can't, that's all you can and need to do. Everyone will be done eating soon enough and then you can just move into drinks! Don't sweat it just Have fun!

icelandgirl Proficient
icelandgirl
Posted
19 hours ago, bartfull said:

I always bring my own food (yes, and dishes and utensils) when I go someplace. I just tell the people something along the lines of, "I get SO sick from gluten that I have made it a rule to never eat anything I didn't prepare myself." Then to soften it I admire all of the food the other folks prepared and tell them how much I wish I could eat it because it looks so good/or I remember how good it was. When they start feeling sorry for me I tell them it's the COMPANY that matters most.

You are so wise bartie!  I'd love to have dinner with you!  

ravenwoodglass Mentor
ravenwoodglass
Posted

You could do a gluten free Christmas dinner at home on Christmas Eve and then load up a plate (with a microwveable cover) with your gluten free turkey, stuffing, sweet potatoes etc and pop it in their microwave as all are sitting down to eat. You could even bring a small plate of cheese and crackers for yourself and a larger one to share before dinner. And don't forget a yummy desert.  You won't feel deprived and the others won't feel guilty eating their yummy poison in front of you.

bartfull Rising Star
bartfull
Posted
4 hours ago, icelandgirl said:

You are so wise bartie!  I'd love to have dinner with you!  

No, not wise, just experienced. :D And you are welcomed to come to the Black Hills any time. We'll have dinner at my house because the only gluten-free restaurant in the area (that pizza place I always rave about) burned down the other day. :( I sure hope they rebuild.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
    2. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms. The tTg IgA antibodies are made in the intestines. While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten...
    3. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

      Thanks, that's a great addition that I hadn't thought of.
    4. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    5. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748
    tealangel09
    Newest Member
    tealangel09
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.