Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really confused about having or not celiac, confusing symptoms


Frankie13

Recommended Posts

Frankie13 Newbie

Hey, this is my story, I started having a chronic diarrhea for almost 3 months, then my stools became really unpredictable some days really loose, other im constipated, lots of symptoms like burping, massive movements and sounds from my intestine, sometimes pain or discomfort in some areas os the stomach, nausea, hyperhidrosis, dizziness, horrible taste in the mouth, i cant really tell all the strange sensations my body has feeled, headaches i have almost 1 year not feeling good with myself, some days are fine but others i really cant this is killing me really slow inside of me, investigating i tried taking away gluten (not completely because its very hard, i dont have the support of my parents) but i noticed a great improvement in my health, i went to the doctor and he did blood tests, i was positive in the antigliadin and in the EMA ( endomysial) so he made biopsy of the jejunum, he told me my villious were normal and i did not have celiac, the study shows i have a chronic inespecific jejunitis (moderate lymphocyte infiltration) but i dont know whats the origin of this inflamation, also i realize that when i eat bread or something my throat really hurts a lot and still have weird stools, very tired at nights and when i wake up, im really frustrated and tired of not know what is happening to me, if somebody please help me if it happened to you or know something like my story could help me a lot, im scared having another disease or other thing, if im celiac its okay but i need to be sure to make the diet stictly :(.

Thanks a lot and sorry for my english im not native speaker.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Toxic Glutension Newbie

I am afraid I am in no position to offer any advice. I can only say I hope you can get to the root of your problems and feel better soon. 

GFinDC Veteran

Hi Frankie,

You might be having an allergic reaction to wheat or something else you are eating.  I am thinking that because you said your throat hurts when eating bread?

Allergic reactions can occur fairly quickly, as compared to celiac reactions which are somewhat slower.  So that might be something to ask your doctor to test you for.

tooth-whisperer Apprentice

Hi Frankie,

I'm going through a very similar time to you right now.  Over the last 3 months I've had stool changes, headaches, stomachaches, and episodes of dizziness and lightheadedness.  If your esophagus (throat) hurts when you eat certain foods, you may want to ask your doctor about being checked for eosinophilic esophagitis.  It's a reaction to certain foods causing inflammation and other esophogeal issues, and gluten is one of the common allergens.  Eosinophilic Esophagitis is common in teenage and young adult males.  I was just scheduled for an upper scope and they're going to take biopsies for both Eosinophilic Esophagitis and Celiac.

If you're living with your parents, and a gluten free diet makes you feel better, perhaps you should have your doctor speak to your parents on your behalf.  If your doctor feels that there's a compelling reason for you to be gluten free, they need to understand that is something you require for your health.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    3. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

    4. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    5. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,266
    • Most Online (within 30 mins)
      7,748

    Barbara lynn
    Newest Member
    Barbara lynn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.