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Joni63

Gut infections?

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Hi,

I was dx'd with  celiac disease 8 years ago and have been strict gluten free. I need to know what type of gut infections other's have had and how were they treated. I'm having bloating and gas and some stomach pain/discomfort. I have tried SCD diet in the past with great success and seem to do well as long as I stay on it.  I cannot drink coffee/eat a lot of sugar or carbs or dairy without heart palpitations. I was treated twice for something (not dx'd) but dr's treated with 2 meds. Diflucon and 1 other I can't remember (it's a nasty one w/ lots of side effects) that cleared it up, but it always creeps back. I'm looking for a doctor in South Jersey who is knowledgeable with Celiac Disease and specifically different gut infections. I'm also looking for information on other types of gut infections and what the problem could be.  I now have high blood pressure and feel it's related. Please share if you've had anything similar and especially if there is a good doctor who can help me. I will travel to Philly.


Joni

Dx'd with Celiac Disease 8/01/07

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Maybe you're thinking of SIBO (small intestine bacterial overgrowth)?  There are several antibiotics used to treat that--the most common, I think, is rifaximin (Xifaxin).  SIBO is something that tends to come back again.

I can definitely empathize with you.  Gluten free for 6 years and still not well.  SCD helped me also.  I'm still stuck on eating only a few whole foods.  Definitely no dairy, grains, sugar, etc.  Sadly, nothing packaged.  I recently completed a course of Xifaxin.  Some improvement noted.  Hoping for more with time.  They told me that is possible.

I can't help you with a doctor recommendation as I'm not near you, sorry.

I'm hoping for that cure to be discovered by 2025, they think.  Hey, I can dream, can't I?

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13 hours ago, manasota said:

Maybe you're thinking of SIBO (small intestine bacterial overgrowth)?  There are several antibiotics used to treat that--the most common, I think, is rifaximin (Xifaxin).  SIBO is something that tends to come back again.

I can definitely empathize with you.  Gluten free for 6 years and still not well.  SCD helped me also.  I'm still stuck on eating only a few whole foods.  Definitely no dairy, grains, sugar, etc.  Sadly, nothing packaged.  I recently completed a course of Xifaxin.  Some improvement noted.  Hoping for more with time.  They told me that is possible.

I can't help you with a doctor recommendation as I'm not near you, sorry.

I'm hoping for that cure to be discovered by 2025, they think.  Hey, I can dream, can't I?

I'm new to this also.  What is SCD diet?

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Thanks for your reply. Yes, I think SIBO is what I'm about. I decided to go to the Celiac Center at Jefferson and see what happens with that visit the end of january. I can't stand this fighting battle - it's always something. Sometimes my immune system is in great shape and other times it's constant chaos. I went 8 months feeling the best ever, then crashed again. I always seem to crash and burn and it takes a long time to get back to feeling well. I have EBV and an elevated ANA score and a high DEAH-S. I'm hoping I can get good results from the Celiac Center because I need a team of doctors to figure me out. Manasota, it sounds like you have some similar issues. I hope your recent treatment helps and you are on the mend. I need to be tested for sibo and candida. 

 

SCD - specific carbohydrate diet. It's very strict and eliminates a lot of foods. One website is scdlifestyle.com


Joni

Dx'd with Celiac Disease 8/01/07

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