Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Celiacs be misdiagnosed with something else?

Asherin

Recommended Posts

Asherin Newbie
Asherin
Posted

All of a sudden in the last two months I started out with horrible hives, then got more symptoms like migraines, stomach pain, bloating and constipation, even being tired constantly to the point where I feel drugged. I'm getting tons of sleep, and still feel sick. My provider ruled out any chance of being a virus, and tested my for allergies. She is stating that I have IBS and that the migraines are separate. I've hardly ever had headaches and it came on when everything else happened. The longer is goes the worse it gets. I've even fasted to see what happens and I feel better after several days of not eating. I will eat fruits like apples, and feel fine. When I introduce things like bread hours later I cramp up and get a horrible headache and my skin feels like its on fire. Is this seriously IBS because I know you don't get hives like that with that. I'm frantic to find out. Help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

IBS is not a diagnosis. The word "syndrome" means, "a group of symptoms", and that's all it is.

You need to get tested for celiac. The symptoms you describe could all be celiac symptoms. There are over 300 possible symptoms! If your doctor won't do the testing, see a different doctor.

And it is vitally important that you continue eating gluten until all testing is completed. Someone will be along soon to list all of the tests that you need to have. In the meantime you can go to the University of Chicago celiac site and read more.

Oh, and welcome to the forum!:)

bartfull Rising Star
bartfull
Posted

OK, if you read this thread you will see that CyclingLady, with credit to NVSmom, has listed all of the tests you need. Some folks only show positive on one test, but they do indeed have celiac. That's why it's so important to get ALL of these tests done.

https://www.celiac.com/forums/topic/113610-after-positive-gene-test-what-bloodwork-to-order/#comment-955175

manasota Explorer
manasota
Posted

Hi Asherin!

My Celiac symptoms began suddenly with severe migraines & frequent (though short-lived) hives.  Both of these were nearly daily problems. 

I would get tested for Celiac ASAP.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,525
    • Most Online (within 30 mins)
      7,748
    AHC
    Newest Member
    AHC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Peace lily
      Coeliac and Thyroid?

      By Peace lily · Posted

      Yes I have thyroid and have had it for over 30 years and just got diagnosed for cealiac last march.I have been complaining all the years about stomach pain weight lost hair falling out they kept blaming on the thyroid and I am over 70 years old. but what I’ve been reading thyroid,diabetes,should take a closer look,I think autoimmune plays a part.All I know is that I cook strictly gluten-free and also found if restaurants don’t have a designated gluten-free kitchen not going there. Cross contamination is a big thing .
    • Jmartes71
      Taken Seriously

      By Jmartes71 · Posted

      Celiac Disease is not taken seriously and I want that to change. It affects one in so many ways and not being properly cared for is frustrating and inhumane. On our worst days the last thing we are thinking about is going to the the hospital.Im 54 years old and went through the celiac ringer with incompetent doctors not understanding the disease and gaslighting me when not feeling well.Ive learned so much with the celiac community and had to school my new gi whose actually listening and understanding, now, this year 2025 when i was half told in 1994 by colonoscopy and endoscopy..Pregancy doesn't affect the public but it's a reportable condition. I want to make celiac disease a reportable disease to protect the patients from being medically gaslight as I was.I want awareness, I want to not have another go through what Ive been through. In order for celiac disease to be taken seriously, I truly think it needs to be reportable disease to protect the patients. I did email Adam Gray and also my local representative.
    • Jmartes71
      Aveeno products

      By Jmartes71 · Posted

      I use Aveeno for decades and I am dealing with skin issues and didn't think anything of Aveeno being a problem. Is Aveeno ok?I also use Yarrow pom in it which I notice helps.
    • NicoleSR
      Aveeno products

      By NicoleSR · Posted

      Thanks! 
    • trents
      Aveeno products

      By trents · Posted

      Yes, I use Aveeno Moisturizing Body Lotion with prebiotic oat, unscented. I really only use it on my hands and not every day. Haven't noticed any problems. I don't have dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.