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Glutening symptoms five days to a week after consumption?

hopefulinmybody

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hopefulinmybody Apprentice
hopefulinmybody
Posted

Hi,

A week ago I accidentally bought and put in my mouth a sunflower seed cacao treat at LAX airport. I put it in my mouth, chewed, looked down at the label and saw it has wheat. I spit it out and gargled, brushed my teeth, etc. And then I tried to forget about it. I felt okay for about five days. . . and then, by this past weekend, and until now I have fatigue, muscle stiffness, and some anxiety. Of course it could be a tiring life and anxious conditions in life too.

Does this happen to celiacs to get a delayed reaction to a glutening or does everybody have glutening symptoms come on within 24 hours?

I've been diagnosed and gluten-free for five years but this is the first time I KNOW I put gluten in my mouth. I had a lot of fatigue for two years after diagnosis but lately it's been better, now this!

Thank you!!

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cyclinglady Grand Master
cyclinglady
Posted

Oh, it is hard to say....everyone responds differently.  Here is some information about antibodies rising after a glutening:

Open Original Shared Link

i hope you feel better soon!  Try not to worry.  What's done is done!  Either you got glutened or you did not.  Focus on feeling better.  ?

 

Darren Apprentice
Darren
Posted

I'm sure there isn't a single celiac who has made a mistake or ingested gluten without even knowing it at the time. It happens. Don't stress about it, an occasional glutening is to be expected and isn't going to harm you all that much in the grand scheme of things as ping as it isn't frequent. Just focus on moving forward you are obviously doing a great job managing this damn disease. Don't be hard on yourself!

Darren Apprentice
Darren
Posted

As long not as ping....darn autotype :) 

hopefulinmybody Apprentice
hopefulinmybody
Posted
  • Author

Thank you everyone! I really appreciate it and the link to the Celiac Disease Center in Chicago.

mommida Enthusiast
mommida
Posted

I have seen some claims that a Celiac's blood in a petri dish will react for up to a week once gluten was added.

 

Missy Joy Newbie
Missy Joy
Posted

I have always had my symptoms of ingesting gluten at least 4 days after. It makes it difficult to figure out what I ate that was cross-contaminated but I usually can pinpoint it when I think about what I ate 4 days ago. It's like clockwork - 4 days.

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  • 4 weeks later...
firewrangler Newbie
firewrangler
Posted

Me too Missy.   Four days.  It has made sorting this out very difficult to say the least.

melprkr Rookie
melprkr
Posted

I have just gotten over a glutening. This one was NO FUN AT ALL, as I know none of them are.  But this one really took me back.  Worst I have ever had.  Anxiety was through the roof.  It took mine about a week to show up full blown.  I had small symptoms along the way.  It wasn't until a few days after having a weeks worth of anxiety what was actually going on.  I have done the same as you before however my symptoms were not near as bad.  This one came from actually ingesting what I thought was safe waffle fries.  I have been dealing with this now for about 3 weeks and am finally starting to feel more like me.  Hopefully yours won't last like that especially since you have been gluten-free for so long.  As everyone says we can all make mistakes. You just have to focus on getting better, because you will get better.

 

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