Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Dairy Free - Questions

anyana

By anyana
in Coping with Celiac Disease

Recommended Posts

anyana Apprentice
anyana
Posted

I was diagnosed with celiac about a month ago and have gone strictly gluten free (including cleaning out the kitchen, etc).  I wasn't seeing much relief from only going gluten-free, so I reluctantly went dairy free as well.  This is sad because do LOVE milk, cheese, etc - anything dairy!

I am hoping to hear from people who had to go dairy free but WERE able to successfully reintegrate it into their diet.  I know many people go dairy free forever, but I just can't imagine it.  Going gluten free seems much easier to me than going dairy free (cooking with butter, cheese, sour cream, etc!).

Questions:

- How long did you stay dairy free before successfully reintroducing dairy?

- What dairy foods did you start with, and how slowly do you reintegrate them?

- What is the difference between lactose and casein intolerance? How would I know which I have? I have removed all dairy, but I've heard that butter isn't as 'bad,' and I'm not sure if lactose-free milk is ok?

- In the interim, any tips for dairy-free sour cream substitute? I'm specifically thinking for Mexican food or something like mashed potatoes!

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jessica77 Newbie
Jessica77
Posted

I don't have any info on going dairy free but my daughter has Celiacs and it took her several months before she started to feel better after going gluten free. She never went dairy free and now she's 8 months gluten free and feels normal for the most part. 

anyana Apprentice
anyana
Posted
  • Author

I should have added - I'm about ten days dairy free and and seen a marked improvement - so it seems to be agreeing with me!

Irene Joanne Explorer
Irene Joanne
Posted

Glad to hear you're feeling better going dairy free. It's something I should be doing as well and I agree it seems easier to go gluten free than dairy free. I don't drink milk but don't know what to do without butter, whipped cream, sour cream and cream cheese. 

I'm not doing well six or more weeks gluten free- so dairy is the next step for me. 

cyclinglady Grand Master
cyclinglady
Posted

Time.  It takes time to heal from celiac disease.  For some it can take months or a couple of years!  Seriously!  Why?  The learning curve for going gluten free is steep.  Plus, everyone has different levels of damage.  Your best bet is to eat whole foods (well-cooked for easier digestion) that you prepare yourself.  Avoid eating out.  Avoid processed foods because they add things that might not agree with you because of your damaged gut.  Keep a food journal to help track traces of gluten or to identify a new intolerance.  

Many celiac are lactose intolerant.  The enzymes to digest lactose (milk sugar) are released from the villi tips.  But what if your villi are flattened or non-existent?  Other enzymes used to digest food may be missing as well.  Once healed,  many celiacs can allow  lactose-containing foods back into their diet.  If you are genetically  predisposed to being lactose intolerant (huge chunk of world population) then you many never get it back. ?

Casein is a milk  protein.  You can be intolerant to it as well or allergic to it.  

To reintroduce lactose-containing foods, start with those with the least amount of lactose, like hard cheese.  There is plenty of information on the internet that explains this.  

Hang in there!  ?

 

GFinDC Veteran
GFinDC
Posted

Hi Anyana,

Lactose is a sugar in dairy.  Casein is a protein.  If you are only lactose intolerant you can buy lactase (enzyme) pills or lactase milk that would be safe for you.

If you are casein intolerant that's a harder nut to crack.  Ain't a lot of help there.

While you are healing it might be better to just stop all dairy for a few months and give your body a better chance to recover.

You can use coconut oil as a sub for butter and it is even better for you.  There are almond milks and other milk subs available too.

There are some dairy free cheese subs like Daiya brand cheese-like substance.

For ice cream consider Italian ice type things.

Goldenbergs Nut Chews are a dairy free candy.

I never got dairy back so I guess I shouldn't have answered.  Sorry.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @Charlie1946, Sorry I sidetracked your thread a bit. Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over. Have you been checked for SIBO? There's a significant link between length of Omeprazole use and SIBO. I had SIBO, thrush (Candida...
    2. Lkg5
      - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    3. Lkg5
      - Lkg5 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      1

      Rapid Diagnosis of Celiac Disease Using Blood-Based Infrared Spectroscopy and Deep Learning

      Wow!!! 😂
    4. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor. I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods re...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748
    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      Severe severe mouth pain

      By Lkg5 · Posted

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Aretaeus Cappadocia · Posted

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      heaps of hope!

      By Scott Adams · Posted

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.