Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Dairy Free - Questions


anyana

Recommended Posts

anyana Apprentice

I was diagnosed with celiac about a month ago and have gone strictly gluten free (including cleaning out the kitchen, etc).  I wasn't seeing much relief from only going gluten-free, so I reluctantly went dairy free as well.  This is sad because do LOVE milk, cheese, etc - anything dairy!

I am hoping to hear from people who had to go dairy free but WERE able to successfully reintegrate it into their diet.  I know many people go dairy free forever, but I just can't imagine it.  Going gluten free seems much easier to me than going dairy free (cooking with butter, cheese, sour cream, etc!).

Questions:

- How long did you stay dairy free before successfully reintroducing dairy?

- What dairy foods did you start with, and how slowly do you reintegrate them?

- What is the difference between lactose and casein intolerance? How would I know which I have? I have removed all dairy, but I've heard that butter isn't as 'bad,' and I'm not sure if lactose-free milk is ok?

- In the interim, any tips for dairy-free sour cream substitute? I'm specifically thinking for Mexican food or something like mashed potatoes!

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jessica77 Newbie

I don't have any info on going dairy free but my daughter has Celiacs and it took her several months before she started to feel better after going gluten free. She never went dairy free and now she's 8 months gluten free and feels normal for the most part. 

anyana Apprentice

I should have added - I'm about ten days dairy free and and seen a marked improvement - so it seems to be agreeing with me!

Irene Joanne Explorer

Glad to hear you're feeling better going dairy free. It's something I should be doing as well and I agree it seems easier to go gluten free than dairy free. I don't drink milk but don't know what to do without butter, whipped cream, sour cream and cream cheese. 

I'm not doing well six or more weeks gluten free- so dairy is the next step for me. 

cyclinglady Grand Master

Time.  It takes time to heal from celiac disease.  For some it can take months or a couple of years!  Seriously!  Why?  The learning curve for going gluten free is steep.  Plus, everyone has different levels of damage.  Your best bet is to eat whole foods (well-cooked for easier digestion) that you prepare yourself.  Avoid eating out.  Avoid processed foods because they add things that might not agree with you because of your damaged gut.  Keep a food journal to help track traces of gluten or to identify a new intolerance.  

Many celiac are lactose intolerant.  The enzymes to digest lactose (milk sugar) are released from the villi tips.  But what if your villi are flattened or non-existent?  Other enzymes used to digest food may be missing as well.  Once healed,  many celiacs can allow  lactose-containing foods back into their diet.  If you are genetically  predisposed to being lactose intolerant (huge chunk of world population) then you many never get it back. ?

Casein is a milk  protein.  You can be intolerant to it as well or allergic to it.  

To reintroduce lactose-containing foods, start with those with the least amount of lactose, like hard cheese.  There is plenty of information on the internet that explains this.  

Hang in there!  ?

 

GFinDC Veteran

Hi Anyana,

Lactose is a sugar in dairy.  Casein is a protein.  If you are only lactose intolerant you can buy lactase (enzyme) pills or lactase milk that would be safe for you.

If you are casein intolerant that's a harder nut to crack.  Ain't a lot of help there.

While you are healing it might be better to just stop all dairy for a few months and give your body a better chance to recover.

You can use coconut oil as a sub for butter and it is even better for you.  There are almond milks and other milk subs available too.

There are some dairy free cheese subs like Daiya brand cheese-like substance.

For ice cream consider Italian ice type things.

Goldenbergs Nut Chews are a dairy free candy.

I never got dairy back so I guess I shouldn't have answered.  Sorry.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,219
    • Most Online (within 30 mins)
      7,748

    Ean
    Newest Member
    Ean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Other symptoms that Celiac Disease can cause but resemble other diseases so the cause may be misdiagnosed. What Are the Symptoms of Celiac Disease?  
    • trents
    • sillyac58
      Thanks Scott. They are gluten-free but cross contaminated. 
    • cristiana
      Hi there @MCAyr I have a small umbilical hernia which came about during my second pregnancy.   I can just about see it, and feel it, when I stand or sit, but it is far less noticeable when I lie down.  I always know when I am putting on weight because I can get pain and burning near the site, funnily enough not on the hernia itself but either side!  I would imagine bloating could cause the same effect as weight gain. In my case I don't think it is my bowel protruding but a bit of fat  - sorry,  I realise this isn't painting a very pretty picture.  But in truth it is scarcely noticeable.  It has never really got bigger in size. I was rather hoping that it could be operated on but here in the UK they don't seem to operate on every hernia anymore.  My GP isn't remotely worried about it. In a way, I should be thankful - it is like an early warning system that I need to go on a diet! Cristiana
    • Scott Adams
      The hernia description would likely be unrelated to celiac disease, but you'd need to get it checked out by your doctor to be sure it's a hernia.
×
×
  • Create New...