17 Month Old Diagnosed With Celiac

[minixtyler]

My daughter was just diagnosed with celiac disease 3 weeks ago. She had diarrhea for 2 weeks prior to going into the hospital because of dehydration. Prior to all of this she seemed to be a healthy little girl, walking and learning new words. She was usually at 50% for her weight and height but by the looks of things she didn't look like she wasnt thriving. She was in the hospital for 7 days~ they did blood work, test and eventually did both of the scopes on her and finally was diagnosed with having celiac by the GI doctor, however, he said she did not test positive for lactose so she can continue eating diary?

Is it possible to have celiac and be able to tolerate dairy? She has been on a gluten diet for the last 3 weeks. The diarrhea has stoped and she has put back on the weight that she had lost. (she'd lost about 4 pounds and was pretty week) She has since started walking again and chatting again (course she only has about 10 words) but we are where we were before we went into the hospital.

I started giving her a multivitamin for fear that she was getting enough from her new diet. My daughter loves cheese and likes it on EVERYTHING! However, she is a very picky eater and even though she use to love fruits and broccoli she doesn't always want to eat them. Her favorites are grilled cheese and pasta with melted cheese! We do have a health food store near our home so I've found a gluten free pasta and rice bread that she loves but I don't think she'd be thrilled with them if they didn't have her kraft singles cheese. Which is another reason I am her~ is Kraft singles american cheese really gluten free? their website says it is and I've looked at the ingredients but since I am new to all of this I wanted to be sure. She has been eating it the last few weeks, but we do not go back to the GI doctor for another week. Breakfast is a little easier and I've found a gluten free cereal that she likes along with Pamela's pancake mix and she loves the pancakes!! But, once again her cereal added with Vit. D regular milk.

Any thoughts or opinions would be greatly appreciated!! My son, husband and I are all also going to be tested after the first of the year, but our diet has changed due to our daughters. This site has been very helpful and thank goodness for the internet!!! :-)

Thank you,

Jessica

[hez]

Yes, you can have celiac and be able to have dairy. For many of us that have extensive damage dairy is not an option. Dairy can be hard to digest and if your villa are not standing up it makes it that much harder. I have been gluten-free since April and have just now started adding milk back into my diet with little problem. That said there are many celiacs that do not tolerate dairy well so they avoid it.

Secondly, Kraft singles are safe to eat. I would highly recommend looking at the delphi list for options on gluten-free food. Does anyone have a link? I can not find mine.

Third, take a deep breath. It takes awhile to figure this diet out. It truly is a life style change. Before you know it you will be reading labels with the greatest of ease!

I am so glad your daughter is doing better!

Hez

[mommida]

If your family is going to go through the testing they *must* continue to eat gluten containing foods. Try and get the testing done as quickly as possible, so if need be, the gluten free diet can start, and your family doesn't have to suffer any more damage.

Laura

[Guest Coopsmom]

My son was diagnosed at 18 months, it's only been 3 months and already getting pretty easy. We've traveled to Mexico even, without a hitch. He had pretty severe damage (Marsh Type 3?) to his villi, but never showed any signs of lactose intolerance. Enjoys cheese, bottles still, etc. I think it all depends on the person and the case. Each one is so different I am finding. He has shown no allergies to any other foods, so far anyhow. Why do you have to wait till the first of the year to be tested? Yes, you have to continue to eat gluten or you could show false negative. I am so glad you found out so young though, and wish you all the best. Glad to hear shes feeling so much better too!!

Amanda

My daughter was just diagnosed with celiac disease 3 weeks ago.  She had diarrhea for 2 weeks prior to going into the hospital because of dehydration.  Prior to all of this she seemed to be a healthy little girl, walking and learning new words.  She was usually at 50% for her weight and height but by the looks of things she didn't look like she wasnt thriving.  She was in the  hospital for 7 days~ they did blood work, test and eventually did both of the scopes on her and finally was diagnosed with having celiac by the GI doctor, however, he said she did not test positive for lactose so she can continue eating diary?

Is it possible to have celiac and be able to tolerate dairy? She has been  on a gluten diet for the last 3 weeks.  The diarrhea has stoped and she has put back on the weight that she had lost.  (she'd lost about 4 pounds and was pretty week) She has since started walking again and chatting again (course she only has about 10 words) but we are where we were before we went into the hospital.

I started giving her a multivitamin for fear that she was getting enough from her new diet.  My daughter loves cheese and likes it on EVERYTHING! However, she is a very picky eater and even though she use to love fruits and broccoli she doesn't always want to eat them.  Her favorites are grilled cheese and pasta with melted cheese! We do have a health food store near our home so I've found a gluten free pasta and rice bread that she  loves but  I don't think she'd be thrilled with them if they didn't have her kraft singles cheese.  Which is another reason I am her~ is Kraft singles american cheese really gluten free? their website says it is and I've looked at the ingredients but since I am new to all of this I wanted to be sure. She has been eating it the last few weeks, but we do not go back to the GI doctor for another week.  Breakfast is a little easier and I've found a gluten free cereal that she likes  along with Pamela's pancake mix and she loves the pancakes!! But, once again her cereal added with Vit. D regular milk. 

Any thoughts or opinions would be greatly appreciated!! My son, husband and I are all also going to be tested after the first of the year, but our diet has changed due to our daughters.  This site has been very helpful and thank goodness for the internet!!! :-)

Thank you,

Jessica

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[Jnkmnky]

Make sure you check her shampoos, lotions *many contain oats and wheatgerm*... also check her multivitamins and any meds she takes. Dairy is fine if the villi are not completely atrophied. Search this site for meal ideas, foods that work with small kids. Have you found Tinkyada Pastas? They're the best. Here's a link to a very good bread site. Shipping is reasonable. Stocking the freezer is my best idea to offer. Get a cheap $200 freezer for the garage and keep the breads handy. Chebe is another very versatile bread product. You can make hot pockets, pizza sticks, and more with Chebe. Shipping on chebe is too high.

Open Original Shared Link

Open Original Shared Link

Good luck. Oh, and Velveeta cheese in the big block is gluten free. Makes Mac and cheese really easy. The donuts and pizza crusts from kinnikinnick are really good. Tapioca rice bread is good and white sandwich bread is good....and we DON'T like the cinnamon raisin anything from Kinnikinnick. I think they need more sugar!

Dipping cheese stick in a side of spaghetti sauce adds some nutrition. If you're not sure of a food.... DO NOT GIVE IT TO HER> the damage isn't worth it. You have seen her lose words... there is obviously a peptide reaction with her Celiac. This affects cognition. This is an area of concern near and dear to the hearts of some of the parents here with Celiac kids. You are very fortunate to have caught her celiac disease early. Keeping her gluten free is essential. For more information on the leaky gut, peptide issue, you might want to look into some autism sites. Gluten-free Casein-free diets for autistic children and sites that support those diets really lay out the medical reaction the peptides cause in leaky gut people. It's very interesting and is a serious problem for some people with celiac disease. If your daughter lost words when eating gluten, she probably has the leaky gut and peptide overload problem. This doesn't lessen over time. If she is glutened later, the problem will be the same or worse.

The only thing Celiac.com lacks is a thoughtful/comprehensive segment on the leaky gut/peptide reaction some have. It would make a great addion for parents with kids who react this way.

[minixtyler]

Hez, Laura, Amanda and Jnkmny-

Thank you for all of your emails!! All of them were so helpful and it's wonderful having that extra support!! Time will tell how my little Lauren is doing and I too am happy that we caught it so early!! As for her speech~ she only had a few words that she was saying on a daily basis (a few of which she is saying again ~ the others she shakes her head and tells me no!) So,we'll see by her next check up how she is coming along. Luckily she is only 17 months, but we will just take it one day at a time! :-)

Again~ thank you for answering my post. I know I will have more questions and will be back online soon!

My best to all of you & Happy Thanksgiving!!

Jessica

[chasesparents]

minixtyler -

My son was diagnosed at 18 months, and has been gluten-free for 10 months, he handles all other foods just fine. Dairy does not affect him at all, and he eats alot of it. But, it is correct to say that everyone is different. My personal opinion is that as long as she's feeling ok and the diarreha has stopped, then she probably has no problem with the dairy.

Another thing is, Lauren may not have been talking, cuz she wasn't feeling well. Before my son was diagnosed, he was miserable. He was clingy, sleepy and he talked just fine, but not alot. Now he doesn't stop talking !!!!! With time things get SO much easier, the most rewarding part is seeing your child being active and happy again !

[Guest CD_Surviver]

I have found a really good mac and cheese it is not yellow so i dont know if your daughter will eat it. Here is the brand Pastariso Macariz now do not fallow the directions on adding every thing i usually just add alittle bit of milk at first and add more as i go because 2 oz or 1/4 of a cup is to much on the butter you can fallow the directions it is just the milk. And i also like tinkyada pasta. Have you tried sterks bread it is really good. i love pamelas have you tried the brownie mix yet it is pretty good as well.

Lauren