Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Salicylate sensitivity- or food allergy- does it go away??


Irene Joanne

Recommended Posts

Irene Joanne Explorer

3 months ago I was diagnosed with celiac. It's been an up and down few months- I've had a couple accidental glutenings that made me really sick. On top of this all, I'm starting to have other allergic reactions. 

I've always been sensitive to perfumes and chemical smells- this is definitely getting worse. I'm even starting to have allergic reactions to my somewhat hypoallergenic dog- especially when he comes back from doggy day care. 

Foods are making me ill that definitely don't have gluten. Blueberries make me break out in a rash- increase my heart rate and give me bad diarrhea. Blueberries are causing the worst reaction- but other foods that cause a reaction as well are peppermint, honey, other berries, pickles, corn syrup, corn and coconut oil. Plus most teas- even labeled gluten free. My dietician and I have decided that I am probably intolerant to foods high in Salicylates. 

Im a little freaked out about this. Is it normal to start having other food intolerances after going gluten free? I understand dairy and  oatmeal- even gluten free oats give me diarrhea for five days... Plus more symptoms. 

Alhough i understand healing with celiac takes time- sometimes a long time, I'm not sure how to deal with the allergies and salicylate problem. I did do a bunch of reading on celiac.com about salicylates- but my question is... Can this go away? I'm terrified about how limited my diet could get. I live in Alberta and although my family doctor is referring me to a allergist- the wait is up to 18 months. 

Is anyone familiar with the ELISHA blood work? I can spend almost $400 and see a Naturalpath to get allergy blood work done this way


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Hi Irene and welcome. I went through a period when I couldn't tolerate high sals. I was at my wit's end trying to figure out what to eat. I finally settled on just a few foods I knew were safe and ate them every single day for every single meal. Boring? You bet! But I stayed healthy.

Eventually (like a couple of years?) I started being able to add things back. And blueberries took the longest. They are my favorite and I kept trying with no luck, even after I had gotten other high sals foods back. I'm happy to say I can now eat even blueberries!

I had the problem with smells and chemicals too, but after being gluten-free and finally healing, it's not as bad as it once was. I still hate walking down the soap aisle t the store but I can do it without wheezing up.

Remember, at three months in you are going to be having good days and bad days. It can take six months to two years before you feel consistently good. In the meantime, eat plain and simple whole foods, avoid the sals and try to remember, it is most likely temporary. So you have a hideously boring diet for a year or two - once that's over you will not only be able to eat lots of yummy foods, but you're going to start feeling great!

 

Irene Joanne Explorer

THANK YOU so much! That was just what I needed to hear! 

cyclinglady Grand Master

Bartfull is correct.  Most of our celiac.com members have some intolerances of some sort (soy, corn, histamines, salicylates.....the list is endless and unique to each person).   You can search all you like with the forum to see that I am correct.

 I can tell you that I am now wearing perfume after 20 years of not wearing any scent at all!  Most of my intolerances have resolved!  Took me a good two years to feel really well.  

Getting well can happen!:)

squirmingitch Veteran

And keep a food & symptoms diary. That is your best key to what foods are bothering you. 

Irene Joanne Explorer
2 hours ago, squirmingitch said:

And keep a food & symptoms diary. That is your best key to what foods are bothering you. 

 I have been doing that for about three weeks- it is hugely helpful! 

Irene Joanne Explorer
2 hours ago, cyclinglady said:

Bartfull is correct.  Most of our celiac.com members have some intolerances of some sort (soy, corn, histamines, salicylates.....the list is endless and unique to each person).   You can search all you like with the forum to see that I am correct.

 I can tell you that I am now wearing perfume after 20 years of not wearing any scent at all!  Most of my intolerances have resolved!  Took me a good two years to feel really well.  

Getting well can happen!:)

Good? I'm looking forward to better days! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748

    TGreen
    Newest Member
    TGreen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.