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- Scott Adams replied to Fabrizio's topic in Related Issues & Disorders15Kan-101
So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right. -
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- trents replied to Godfather's topic in Gluten-Free Foods, Products, Shopping & Medications1Is Caputo gluten free flour really free of gluten?
Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products... -
- trents replied to Dana0207's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Celiac symptoms
Welcome to the forum, @Dana0207! Another diagnostic approach would be to get biopsied for dermatitis herpetiformis which would not require an extensive exposure to gluten. But it would need to be done during an active outbreak of the rash. Celiac disease is the only known cause for dermatitis herpetiformis so it would be a definitive diagnosis. It might be...- 1
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- trents replied to Fabrizio's topic in Related Issues & Disorders15
Kan-101
Here is another one that is currently active. I know someone who has recently signed up to participate in it: https://celiac.org/aspirion-us/
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By Scott Adams · Posted
So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right. -
Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
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Welcome to the forum, @Dana0207! Another diagnostic approach would be to get biopsied for dermatitis herpetiformis which would not require an extensive exposure to gluten. But it would need to be done during an active outbreak of the rash. Celiac disease is the only known cause for dermatitis herpetiformis so it would be a definitive diagnosis. It might be tricky, however, to time the dermatology appointment with the gluten exposure and outbreak.
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Is “Caputo Fioreglut Gluten Free Flour” truly gluten free? The main ingredient is supposed to be gluten free wheat starch along with other ingredients. However, the resulting homemade bread made with this flour so resembles homemade gluten bread that it seems Caputo must have some gluten?
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