Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quinoa and Back Pain?


anyana

Recommended Posts

anyana Apprentice

Hi everyone.  I have been gluten free since December when I was diagnosed.  I am wondering if anyone else has had this (really) weird thing happen -- I have noticed  that when I eat this recipe (Open Original Shared Link), very soon after eating it, I get a terrible lower backache.  I am not prone to back issues, and given that this is the second time this has happened (i.e. the second week - I make the recipe for the week and eat it every day for lunch - so it's probably happened eight times), I think I've figured out that something in this recipe is bothering me.

I never ate much quinoa before I was diagnosed, and now it's an 'easy' grain to make for lunch salads, etc. I know some people react with a glutened-like reaction to quinoa, but would that include something like a backache? It's almost like my entire lower core kind of aches, but especially my back.

I don't think it's anything else in the salad, since I can eat all of those things by themselves without issues. It's just a very weird situation, and I'm not sure what is causing it or if I'm making it up in my head!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pegleg84 Collaborator

Hi Anyana,

I've had trouble with quinoa, and its not something I eat very often. It seems to be on my list of things my gut doesn't like to digest without being a pain.
It could be that you're reacting to it, or the quinoa you're using hasn't been washed enough (saponins make it harder to digest), or it's something else in the recipe. Try eating quinoa on it's own to rule out the other ingredients first. If it still makes your back hurt, then you could be on to something.

This might be a temporary intolerance, though. If you've only been gluten-free since December, your gut is likely still healing and still having trouble with some foods. Give the quinoa a break for a few months and come back to it later. Or, just go easy on it instead of eating it every day for a week.

Good luck!

cristiana Veteran

Hi - I'm just wondering if the pain you are experiencing might be in your sacroiliac joints.  Celiacs sometimes have problems with these joints.

I thought I had back trouble but my chiropractor put her finger on the pain (literally!) and it was my left sacroiliac joint.  I'm still not sure what sets it off but it can't be gluten as I don't go anywhere near it.  

anyana Apprentice

Thanks for responding. I think it was the quinoa. I definitely washed/soaked it pretty well, so I don't think that was the issue. The more I looked into it, the more I saw other people having 'celiac like' reactions to quinoa.

I do hope it's temporary.  Cutting out dairy (for the most part!) was tough enough - I am a little disheartened to think I may keep finding foods that I can't eat.  Quinoa was especially tough because I have made lunch grain salads for years (bulgur, orzo, farro, etc), and I thought quinoa would be an easy, healthy replacement for the gluten products.  I guess I will move on to millet, etc, but it's just not the same! :(

 

Irene Joanne Explorer
1 hour ago, anyana said:

Thanks for responding. I think it was the quinoa. I definitely washed/soaked it pretty well, so I don't think that was the issue. The more I looked into it, the more I saw other people having 'celiac like' reactions to quinoa.

I do hope it's temporary.  Cutting out dairy (for the most part!) was tough enough - I am a little disheartened to think I may keep finding foods that I can't eat.  Quinoa was especially tough because I have made lunch grain salads for years (bulgur, orzo, farro, etc), and I thought quinoa would be an easy, healthy replacement for the gluten products.  I guess I will move on to millet, etc, but it's just not the same! :(

 

I had quinoa today and had horrible stomach pain. This is the first time since diagnosed with celiac last November that I tried it. Sadly, like gluten free oats- this is another grain I can not have? From what I've read it seems as though theres a chance I would react to millet too if I react to quinoa. I'm tempted to go completely grain free as I'm a little scared to try millet or amaranth now too. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.