Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quinoa and Back Pain?


anyana

Recommended Posts

anyana Apprentice

Hi everyone.  I have been gluten free since December when I was diagnosed.  I am wondering if anyone else has had this (really) weird thing happen -- I have noticed  that when I eat this recipe (Open Original Shared Link), very soon after eating it, I get a terrible lower backache.  I am not prone to back issues, and given that this is the second time this has happened (i.e. the second week - I make the recipe for the week and eat it every day for lunch - so it's probably happened eight times), I think I've figured out that something in this recipe is bothering me.

I never ate much quinoa before I was diagnosed, and now it's an 'easy' grain to make for lunch salads, etc. I know some people react with a glutened-like reaction to quinoa, but would that include something like a backache? It's almost like my entire lower core kind of aches, but especially my back.

I don't think it's anything else in the salad, since I can eat all of those things by themselves without issues. It's just a very weird situation, and I'm not sure what is causing it or if I'm making it up in my head!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pegleg84 Collaborator

Hi Anyana,

I've had trouble with quinoa, and its not something I eat very often. It seems to be on my list of things my gut doesn't like to digest without being a pain.
It could be that you're reacting to it, or the quinoa you're using hasn't been washed enough (saponins make it harder to digest), or it's something else in the recipe. Try eating quinoa on it's own to rule out the other ingredients first. If it still makes your back hurt, then you could be on to something.

This might be a temporary intolerance, though. If you've only been gluten-free since December, your gut is likely still healing and still having trouble with some foods. Give the quinoa a break for a few months and come back to it later. Or, just go easy on it instead of eating it every day for a week.

Good luck!

cristiana Veteran

Hi - I'm just wondering if the pain you are experiencing might be in your sacroiliac joints.  Celiacs sometimes have problems with these joints.

I thought I had back trouble but my chiropractor put her finger on the pain (literally!) and it was my left sacroiliac joint.  I'm still not sure what sets it off but it can't be gluten as I don't go anywhere near it.  

anyana Apprentice

Thanks for responding. I think it was the quinoa. I definitely washed/soaked it pretty well, so I don't think that was the issue. The more I looked into it, the more I saw other people having 'celiac like' reactions to quinoa.

I do hope it's temporary.  Cutting out dairy (for the most part!) was tough enough - I am a little disheartened to think I may keep finding foods that I can't eat.  Quinoa was especially tough because I have made lunch grain salads for years (bulgur, orzo, farro, etc), and I thought quinoa would be an easy, healthy replacement for the gluten products.  I guess I will move on to millet, etc, but it's just not the same! :(

 

Irene Joanne Explorer
1 hour ago, anyana said:

Thanks for responding. I think it was the quinoa. I definitely washed/soaked it pretty well, so I don't think that was the issue. The more I looked into it, the more I saw other people having 'celiac like' reactions to quinoa.

I do hope it's temporary.  Cutting out dairy (for the most part!) was tough enough - I am a little disheartened to think I may keep finding foods that I can't eat.  Quinoa was especially tough because I have made lunch grain salads for years (bulgur, orzo, farro, etc), and I thought quinoa would be an easy, healthy replacement for the gluten products.  I guess I will move on to millet, etc, but it's just not the same! :(

 

I had quinoa today and had horrible stomach pain. This is the first time since diagnosed with celiac last November that I tried it. Sadly, like gluten free oats- this is another grain I can not have? From what I've read it seems as though theres a chance I would react to millet too if I react to quinoa. I'm tempted to go completely grain free as I'm a little scared to try millet or amaranth now too. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,832
    • Most Online (within 30 mins)
      7,748

    Duhgirl
    Newest Member
    Duhgirl
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.