Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quinoa and Back Pain?


anyana

Recommended Posts

anyana Apprentice

Hi everyone.  I have been gluten free since December when I was diagnosed.  I am wondering if anyone else has had this (really) weird thing happen -- I have noticed  that when I eat this recipe (Open Original Shared Link), very soon after eating it, I get a terrible lower backache.  I am not prone to back issues, and given that this is the second time this has happened (i.e. the second week - I make the recipe for the week and eat it every day for lunch - so it's probably happened eight times), I think I've figured out that something in this recipe is bothering me.

I never ate much quinoa before I was diagnosed, and now it's an 'easy' grain to make for lunch salads, etc. I know some people react with a glutened-like reaction to quinoa, but would that include something like a backache? It's almost like my entire lower core kind of aches, but especially my back.

I don't think it's anything else in the salad, since I can eat all of those things by themselves without issues. It's just a very weird situation, and I'm not sure what is causing it or if I'm making it up in my head!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pegleg84 Collaborator

Hi Anyana,

I've had trouble with quinoa, and its not something I eat very often. It seems to be on my list of things my gut doesn't like to digest without being a pain.
It could be that you're reacting to it, or the quinoa you're using hasn't been washed enough (saponins make it harder to digest), or it's something else in the recipe. Try eating quinoa on it's own to rule out the other ingredients first. If it still makes your back hurt, then you could be on to something.

This might be a temporary intolerance, though. If you've only been gluten-free since December, your gut is likely still healing and still having trouble with some foods. Give the quinoa a break for a few months and come back to it later. Or, just go easy on it instead of eating it every day for a week.

Good luck!

cristiana Veteran

Hi - I'm just wondering if the pain you are experiencing might be in your sacroiliac joints.  Celiacs sometimes have problems with these joints.

I thought I had back trouble but my chiropractor put her finger on the pain (literally!) and it was my left sacroiliac joint.  I'm still not sure what sets it off but it can't be gluten as I don't go anywhere near it.  

anyana Apprentice

Thanks for responding. I think it was the quinoa. I definitely washed/soaked it pretty well, so I don't think that was the issue. The more I looked into it, the more I saw other people having 'celiac like' reactions to quinoa.

I do hope it's temporary.  Cutting out dairy (for the most part!) was tough enough - I am a little disheartened to think I may keep finding foods that I can't eat.  Quinoa was especially tough because I have made lunch grain salads for years (bulgur, orzo, farro, etc), and I thought quinoa would be an easy, healthy replacement for the gluten products.  I guess I will move on to millet, etc, but it's just not the same! :(

 

Irene Joanne Explorer
1 hour ago, anyana said:

Thanks for responding. I think it was the quinoa. I definitely washed/soaked it pretty well, so I don't think that was the issue. The more I looked into it, the more I saw other people having 'celiac like' reactions to quinoa.

I do hope it's temporary.  Cutting out dairy (for the most part!) was tough enough - I am a little disheartened to think I may keep finding foods that I can't eat.  Quinoa was especially tough because I have made lunch grain salads for years (bulgur, orzo, farro, etc), and I thought quinoa would be an easy, healthy replacement for the gluten products.  I guess I will move on to millet, etc, but it's just not the same! :(

 

I had quinoa today and had horrible stomach pain. This is the first time since diagnosed with celiac last November that I tried it. Sadly, like gluten free oats- this is another grain I can not have? From what I've read it seems as though theres a chance I would react to millet too if I react to quinoa. I'm tempted to go completely grain free as I'm a little scared to try millet or amaranth now too. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    5. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,210
    • Most Online (within 30 mins)
      7,748

    ngeragosian
    Newest Member
    ngeragosian
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.