Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder/Gallstones Questions


Galixie

Recommended Posts

Galixie Contributor

It turns out that I have a very large gallstone (think golf ball sized). I know it's been there for over a year because it was spotted on a CT scan that was done in January 2015 as well as one that was done two weeks ago. As far as I know, I've never had a gallbladder attack. (I'm guessing I would know if I had.)

One of my friends suggested that maybe I'd be able to reintroduce the gluten and dairy that I currently have to avoid if I had my gallbladder removed. I thought that seemed doubtful, but I decided to see what I could find online about that topic. I found one article about a woman who was able to go back to eating gluten after gallbladder removal, but by far the majority of the articles all seemed to mention that there is a link between celiac and gallbladder disease. I have, so far, not seen any of the research that backs that. I'm kind of terrible at online searches, so I am willing to assume there really have been studies. It brings up a few questions for me:

1) Some of the articles seemed to indicate that gallbladder disease without stones was more likely in a celiac patient. Does the association only apply to gallbladder disease without stones?

2) My sensitivity to gluten is odd because the only real symptom I've ever pinpointed was gluten ataxia, and gluten ataxia is generally more associated with celiac, which I have never tested positive for. Is the combination of gallstones and gluten ataxia enough to point to it being actual celiac rather than gluten sensitivity? (I realize that, for practical purposes, the answer to this question shouldn't matter. I can't help wondering though.)

3) Does anyone know if it's possible to get rid of a large stone without having to have the gallbladder removed? I'd kind of like to avoid surgery if possible.

4) If I do have to have the gallbladder removed, do I need to be concerned about not absorbing fat soluble vitamins? I've read things that say a person doesn't *need* a gallbladder, but the people I've talked to who've had it removed all seem to have issues from not having one.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Hi Galixie!

I had my gallbladder removed almost a decade ago (celiac disease dx in 2013).  I often wonder if my gallbladder could have been saved if I had known about celiac disease and had been healed by adhering to the gluten-free diet.  Anyway, I have not researched this much as it is "water under the bridge".  But I can tell you that my diet is heavy in fats (am a diabetic) and I do not have any trouble digesting them.  I have heard of others having issues but I have been lucky.  

My GB was diseased.  It had 0% functionality and was basically rotting away (infected).  I had surgery while on a business trip.  My recovery was fine, but not a quick as I thought it would be (or was told).  

It is always nice to keep all body parts, but in my case, I would have been dead (sepsis) without the surgery. It is a family curse and celiac disease does run on that same side of the family.  My dad is one of 7 and 6 has their GB's out.  No stones, but I did have an aunt who had stones post surgery in her bile duct.  

Finally, I can not eat gluten even without a gallbladder!  I doubt that the woman in the article actually had celiac disease in the first place.  Perhaps, by not eating gluten, she felt much better.   Just like I felt better not eating dairy and nuts.  Turns out those were intolerances as a result of untreated celiac disease.  I eat them now!  

 

Galixie Contributor

Thanks Cyclinglady.

I think you are right that the woman in the article probably didn't have celiac to begin with. Hope spring eternal that I'll someday stumble upon something that lets me go back to a semi-normal way of eating. (Life would be easier if I could have soy sauce.)

Gallstones seem to run in my family also. Oddly, though multiple people in my family have had them, only one great aunt has had to have hers removed. I'm scheduled for an ultrasound tomorrow, although I'm not too clear on what that would show as far as the health/functionality of my gallbladder. I guess I'll find out tomorrow.

Was your surgery laparoscopic? I fear that, if I have to have surgery, my stone is so large that laparoscopic won't be an option. :(

cyclinglady Grand Master

The ultrasound will catch the stones, but a HIDA scan (nuclear test) will determine functionality.  You might not need this if you are not having pain or digestion issues.  

I had uterine fibroid tumors (one huge strangulated one was removed during my C-section).   More grew back, but those never bothered me.  They are still there for all I know.  Maybe your stone just needs to be checked once-in-awhile or dealt with if it blocks the bike duct and causes pain.  

My surgery was laparoscopic.  The main cut was at my belly button.  No scar left.    I would think they could get yours out.  

  • 2 weeks later...
boron Rookie

Theoretically they can break your gallstones in a similar way as they break kidney stones (lithotripsy), but they won't do this in all hospitals. A single big stone may be much less problematic than small stones, which can leave the gallbladder and lodge in the bile duct, which can cause severe pain. Breaking a big gallstone can cause exactly this...

They could also open your gallbladder and take the stone out, but again, who will do this?

Gallbladder only stores the bile, it does not produce it. When they remove your gallbladder, the bile flows from the liver, where it is produced, directly into the intestine all the time. Some people experience diarrhea or bile reflux after this...You will absorb fat-soluble vitamins just fine, because the bile will always flow into your intestine.

Something about gallbladder pain:

Open Original Shared Link

Galixie Contributor

Thank you Boron. So far I haven't been given any recommendations on treatment, but I do think I prefer not to have surgery if I can avoid it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,653
    • Most Online (within 30 mins)
      7,748

    Janet51
    Newest Member
    Janet51
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.