Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

celiac or ibs or ulcer colitis

janis362529

Recommended Posts

janis362529 Newbie
janis362529
Posted

Just starting to get a correct diagnosis after 2 years of misery. Background info 2 years ago I quit smoking for 18 months at which point i could not tolerate dairy, soda, shellfish, non room temp drinks without extreme diarrhea. Other foods would cause bloating and gas. I restarting smoking to try and get relief but didn't get much. My primary doctor said it was ibs and to remove gluten and see a gastro. This was 3 weeks ago. Last week I finally saw the gastro who wanted me to restart eating everything I had avoided the past 2 years as well as quit smoking and after 2 weeks get a colonoscopy to rule out ulcer colitis and blood work to rule out celiac's. This past week has been a roller coaster. If I do not have a cigarette I spend the morning throwing up after having a cup of coffee, instead of diarrhea I am almost constipated( i do pooh daily but it is so firm and painfully), i feel like I am constantly running a fever but hubby says I am cool to the touch, and lastly my abdomen hurts so bad rotating between stabbing knives or feeling like i did 100 sit ups.  Is any of this normal? How long will I feel like this ( i prep for the colonoscopy on Sunday by drinking magnesium citrate). Will 2 weeks of eating gluten give a positive test result after being gluten free for 2 weeks.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome!  I am sorry that you are so sick!  

These are the tests needed:

Open Original Shared Link

I think you'll be okay after being gluten free for only two weeks.   Usually, you need to be consuming gluten daily for 8 to 12 weeks.  Make sure you are getting an endoscopy (mouth) and not just a colonoscopy.  The endoscopy is required for a celiac disease diagnosis.  Make sure four to six tissue samples (biopsies) are taken.  The colonoscopy can rule out other things like cancer or Crohn's.   Keep eating gluten until all testing is complete.  All results back in.  You would be amazing at lost records, etc.  

So, I just want to confirm.  You were only gluten free for 2 weeks over the last year, right?  

janis362529 Newbie
janis362529
Posted
  • Author

Yup I have only been gluten free for 2 weeks while waiting to see the gastro. Once I saw him last week he put me back on gluten. By the time I have the blood test done I would have been re eating gluten for 2 weeks. the gastro did not mention having the endoscopy done. He said if the blood test is positive its celiac's if the colonscopy is positive for ulcers its ulcer colitis. He doesn't think its IBS but said if both tests are negative then we treat for IBS.  

After wanting to eat normal I am counting down the days till I can go back to such restrictive eating. I'm so tired of feeling like crud

cyclinglady Grand Master
cyclinglady
Posted
 

Yup I have only been gluten free for 2 weeks while waiting to see the gastro. Once I saw him last week he put me back on gluten. By the time I have the blood test done I would have been re eating gluten for 2 weeks. the gastro did not mention having the endoscopy done. He said if the blood test is positive its celiac's if the colonscopy is positive for ulcers its ulcer colitis. He doesn't think its IBS but said if both tests are negative then we treat for IBS.  

After wanting to eat normal I am counting down the days till I can go back to such restrictive eating. I'm so tired of feeling like crud

You  might want to consider getting a second opinion from a celiac savvy GI because your GI is not following diagnostic guidelines as recommended by the American GI Association.  Geez, he is putting you out for the colonoscopy.  It makes sense to do both at the same time.  I bet your insurance will not pay for the endoscopy without a positive celiac blood test.  You could have H. Pyllori, SIBO, Chrohn's.   All those should be ruled out.   

Open Original Shared Link

Open Original Shared Link

I know you feel bad and want to be well, but it might be worth it to slow down and do some research.:)

 

janis362529 Newbie
janis362529
Posted
  • Author

my insurance is not paying for anything until i meet a deductible of $3000. so I'm ok with not doing the endoscopy. I'm thinking he is leaning towards ulcer colitis because my main complaint has been the diarrhea since quitting smoking. But he wants to rule out celiac because of repeat miscarriages, past unexplained seizures, anxiety and constant low iron.

 

I have a huge fear of doctors and it took almost 2 years for me to feel sick enough to see my primary. She gave me 2 options remove gluten and see the gastro or remove gluten and if I feel better than just continue with the status quo unless I get worse. My husband forced option 1 on me so right now a 2nd opinion is equal to climbing Everest. LOL I am a huge chicken

cyclinglady Grand Master
cyclinglady
Posted

Ah!  I get it.  I hope that you find some answers!  I wish you well.:)

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,720
    • Most Online (within 30 mins)
      7,748
    Donna Spivey
    Newest Member
    Donna Spivey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.