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Need help reading tests


bruin27

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bruin27 Newbie

Just got my results back, one test showing negative and another showing high. Got diagnosed with hasimotos 5 years ago and for the last year have been having bad stomach issues. Bloating, cramping, gas, constipation.. Been to the ER twice in the last 6 months due to severe stomach pain and was told it was just bad gas and acid... Hoping this test would shed some light... 

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frieze Community Regular

the second one is "equivacal" ie, iffy.  you need the whole panel, and prob. the endoscopy. with plenty of samples.

LiftBrainFog Newbie

It's been a long time since I was tested but my results came up negative. My doctor said that they weren't very accurate and if I feel that much better after changing my diet then why not stick with the gluten-free diet. I was already dairy free as well but going gluten-free changes my life and I've been that way for 8 years now. I'm merely intolerant but if you think you have Celiac or want the best test then I would suggest asking your doctor for an endoscopy. 

cyclinglady Grand Master

Hi!  

I have Hashi's too.  I test strangely on the celiac panel.  Even on follow-tests, I test positive to only the DGP IGA test (like you) yet my biopsies (via endoscopy) revealed a Marsh Stage IIIB which is moderate to severe villi damage.  You can ask for EMA, but why bother?  You have one positive and that should be enough (along with having Hashi's) to  proceed with an endoscopy and get a firm diagnosis.  Continue to consume gluten daily until all testing is complete. 

In the meantime you could be temporarily lactose intolerant.  Go lactose free and you might feel some relief from your symptoms.  Do not stop the gluten though!  

I hope you feel better soon.  

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    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
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      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
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