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How long does a glutening last?

kam00096

By kam00096
in Coping with Celiac Disease

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kam00096 Contributor
kam00096
Posted

I've been gluten free since March after I had 2 blood tests come back positive for celiac. I'm still waiting to see gastro, a dietician and an endocrinologist, as I've got some other weird symptoms too (I know you have to be eating gluten for a biopsy/ diagnosis - I'm not doing it as the waiting times are ridiculous and I can't be that ill again). 

Anyways I'd been feeling fractionally better and at least some of my symptoms had eased up but this last week has been bad. I'd still been having nausea and upset stomach pretty much every day but it's been more manageable up until now.

Last weekend I had a tiny amount of bacon (I was vegetarian and am starting to reintroduce meat because it's just too hard) and then both Sunday and Monday I got accidentally glutened (because I am an idiot). Felt awful on Monday but since then it's been weird phases of feeling ok and then horrible again. Have had bad bouts of nausea every day and now tonight I'm running to the bathroom every 5 minutes. I also have a huge lump on my ear (had one behind my ear for months and months before I was diagnosed that's only just gone down!). Is this all just the glutening? Do the horrible effects come and go? Or is it something else - there's a stomach virus going around my work but I don't think it would have lingered all week  getting better and then worse? 

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Fundog Enthusiast
Fundog
Posted

This remark: "I got accidentally glutened (because I am an idiot")

Ooh, I can relate sooo well!  I too was getting better (I have horrible skin issues), and then I got remiss about reading labels-- I'm still very new at this too-- then my skin rash and itching came back and I couldn't understand why.  Then one day I remembered I should check a label....  sure enough, I had been eating wheat everyday for nearly a week! I And here I am, two weeks after realizing that goof up, totally miserable again. :(

 I am told it could take three months to a year for my skin to clear up.  I don't know how soon your digestive troubles will abate, but I know someone will be able to advise you.

 

cyclinglady Grand Master
cyclinglady
Posted

It could be a glutening or a virus or who knows?  Remember, there is a steep learning curve to the gluten-free diet.  Remember too, that celiac disease is an autoimmune disorder that is triggered by gluten.  A "flare-up" can last for days, weeks or months.  Symptoms can wax and wane....and evolve!  Just get back on the wagon and learn from your glutening lesson.   

iF introducing meat back into your diet, stick with non-processed for a while my recommendation.  Bacon is full of additives!  

I hope you're feel better soon!  

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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      By BlessedinBoston · Posted

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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