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How long does a glutening last?

kam00096

By kam00096
in Coping with Celiac Disease

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kam00096 Contributor
kam00096
Posted

I've been gluten free since March after I had 2 blood tests come back positive for celiac. I'm still waiting to see gastro, a dietician and an endocrinologist, as I've got some other weird symptoms too (I know you have to be eating gluten for a biopsy/ diagnosis - I'm not doing it as the waiting times are ridiculous and I can't be that ill again). 

Anyways I'd been feeling fractionally better and at least some of my symptoms had eased up but this last week has been bad. I'd still been having nausea and upset stomach pretty much every day but it's been more manageable up until now.

Last weekend I had a tiny amount of bacon (I was vegetarian and am starting to reintroduce meat because it's just too hard) and then both Sunday and Monday I got accidentally glutened (because I am an idiot). Felt awful on Monday but since then it's been weird phases of feeling ok and then horrible again. Have had bad bouts of nausea every day and now tonight I'm running to the bathroom every 5 minutes. I also have a huge lump on my ear (had one behind my ear for months and months before I was diagnosed that's only just gone down!). Is this all just the glutening? Do the horrible effects come and go? Or is it something else - there's a stomach virus going around my work but I don't think it would have lingered all week  getting better and then worse? 

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Fundog Enthusiast
Fundog
Posted

This remark: "I got accidentally glutened (because I am an idiot")

Ooh, I can relate sooo well!  I too was getting better (I have horrible skin issues), and then I got remiss about reading labels-- I'm still very new at this too-- then my skin rash and itching came back and I couldn't understand why.  Then one day I remembered I should check a label....  sure enough, I had been eating wheat everyday for nearly a week! I And here I am, two weeks after realizing that goof up, totally miserable again. :(

 I am told it could take three months to a year for my skin to clear up.  I don't know how soon your digestive troubles will abate, but I know someone will be able to advise you.

 

cyclinglady Grand Master
cyclinglady
Posted

It could be a glutening or a virus or who knows?  Remember, there is a steep learning curve to the gluten-free diet.  Remember too, that celiac disease is an autoimmune disorder that is triggered by gluten.  A "flare-up" can last for days, weeks or months.  Symptoms can wax and wane....and evolve!  Just get back on the wagon and learn from your glutening lesson.   

iF introducing meat back into your diet, stick with non-processed for a while my recommendation.  Bacon is full of additives!  

I hope you're feel better soon!  

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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