Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

DH?? (Look like bug bites)

Ladybug99

By Ladybug99
in Dermatitis Herpetiformis

Recommended Posts

Ladybug99 Rookie
Ladybug99
Posted

hello, my daughter is 4 and has been getting what I originally thought were bug bites for a few months now, and they are worsening with each exposure. She is very newly diagnosed and I'm still learning. 

I believe she gets these in relation to when she was getting "glutened" and they come for about 2 weeks. 

She used to just get one or so at a time but she currently has probably 30 "spots". They are ALL over her body including scalp, pubic area, buttocks, trunk, back, etc 

They start as raised, red round spots, then form more to like a blister (very hard to describe) then they kind of scab over and eventually go away (leaving a brown skin discoloration for a while) they didn't used to itch but they do now. 

Open Original Shared Link

they basically look like bug bites... Has anyone had a similar experience ??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ladybug99 Rookie
Ladybug99
Posted
  • Author

Open Original Shared Link << uploaded via tinypic 

squirmingitch Veteran
squirmingitch
Posted

This looks exactly like what I'm going through right now. I got cc'd some time ago & am dealing with the rash. It has ramped down now to appear just as your daughter's.

You have to make sure she doesn't get the tiniest amount of gluten. Whole foods only. Forget processed gluten-free foods for now. Also make sure she doesn't have oats for a full year. Just get her on fresh or frozen fruits & veggies, canned things like Hunt's tomato sauce are okay, canned Bush's beans are gluten-free too. Forget the processed cereals. Give her eggs, potatoes, meat for breakfast - some fruit. Dairy if she can tolerate it. Fresh meats are fine or frozen stuff like turkey. 

Make sure to read the Newbie 101 in the coping section to learn how to protect her from cross contamination.

  • 1 month later...
DandelionH Apprentice
DandelionH
Posted

This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
:P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rebeccaj
      - Rebeccaj posted a topic in Coping with Celiac Disease
      0

      Help where to apply for jobs !

      Hey guys. Has anyone ever worked in McDonalds or hungry jacks or kfc with coeliac disease.!? like different packaging to fresh bakery cooked bread? Did they get neurological symptoms.! Thanks.
    2. Known1
      - Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Reverse Osmosis (RO) Water

      I am honestly not sure. Initially I was purchasing my RO water via a refill station at the same store for the past several years. My employer (at the time) also has an RO water filtration system. Thus while drinking water and coffee at home or work, I was consuming RO water. I just so happened to switch to a gallon of sealed store bought distilled water...
    3. knitty kitty
      - knitty kitty replied to Rosalie P's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Oat &gluten free eczEMA MOISTURIZER

      Welcome to the forum, @Rosalie P, I like tallow balm for my eczema. Vintage Traditions is my favorite brand. I find that taking Niacin B3 and Omega Threes also very helpful in healing the skin from the inside out. Our skin reflects the state of health of our intestines. One of the first signs I ate something that my intestines didn't like...
    4. Scott Adams
      - Scott Adams replied to Rosalie P's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Oat &gluten free eczEMA MOISTURIZER

      If you’re avoiding both gluten and oats, you’re right — a lot of “eczema” or “moisturizer with oat” products use oat-based ingredients (like colloidal oatmeal) that can be questionable for people with celiac or oat sensitivity unless the oats are certified gluten-free and tolerated. For truly gluten-free and oat-free moisturizers many people with sensitiv...
    5. Scott Adams
      - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Reverse Osmosis (RO) Water

      I wonder what in RO water would cause major issues with your stomach? That seems strange, unless there is an issue with the system itself, like an installation issue, lack of changing the filter for a long time, etc.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,504
    • Most Online (within 30 mins)
      7,748
    Brailyn
    Newest Member
    Brailyn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Rebeccaj
      Help where to apply for jobs !

      By Rebeccaj · Posted

      Hey guys.  Has anyone ever worked in McDonalds or hungry jacks or kfc with coeliac disease.!? like different packaging to fresh bakery cooked bread? Did they get neurological symptoms.!  Thanks.
    • Known1
      Reverse Osmosis (RO) Water

      By Known1 · Posted

      I am honestly not sure.  Initially I was purchasing my RO water via a refill station at the same store for the past several years.  My employer (at the time) also has an RO water filtration system.  Thus while drinking water and coffee at home or work, I was consuming RO water.  I just so happened to switch to a gallon of sealed store bought distilled water at home and instantly felt better.  I know that sounds like an exaggeration, but it is true.  My initial thought was the RO water refill station must have been contaminated, possibly from some sort of cleaning agent. Later I bought completely sealed RO water from a different store.  Again, my stomach started making crazy noises and I felt off.  It took a few days to get through all of the RO water I bought.  I thought it was distilled or spring, but after reading the label a bit closer...nope it was RO water.  Again, as soon as I stopped drinking it my stomach settled and I felt SO much better. I cannot say what it is about RO water that does not agree with me, but there are threads on Reddit and elsewhere on the Internet with plenty of people reporting GI related issues from RO water.  I linked to one in my original post within this thread.  While doing more research, I have discovered that RO water filtration systems should not be used with copper plumbing.  Per Google AI Overview:  Reverse Osmosis (RO) water should not pass through or be stored in copper plumbing because the purified, low-TDS water is highly aggressive and causes corrosion, pitting, and pinhole leaks in copper pipes. RO water leaches copper, resulting in a metallic taste and potential health risks like copper poisoning. Always use polyethylene (plastic) tubing for RO systems. The more I learn about RO water, the more I plan to steer clear.  If it is well know to damage and leach copper...well I'll just leave it at that.
    • knitty kitty
      Oat &gluten free eczEMA MOISTURIZER

      By knitty kitty · Posted

      Welcome to the forum, @Rosalie P, I like tallow balm for my eczema.  Vintage Traditions is my favorite brand.   I find that taking Niacin B3 and Omega Threes also very helpful in healing the skin from the inside out.  Our skin reflects the state of health of our intestines.  One of the first signs I ate something that my intestines didn't like is eczema.  Milk and other dairy products definitely make my skin break out.   Have you been keeping a food journal?  Have you noticed a link between break outs or exacerbation and the food you eat?
    • Scott Adams
      Oat &gluten free eczEMA MOISTURIZER

      By Scott Adams · Posted

      If you’re avoiding both gluten and oats, you’re right — a lot of “eczema” or “moisturizer with oat” products use oat-based ingredients (like colloidal oatmeal) that can be questionable for people with celiac or oat sensitivity unless the oats are certified gluten-free and tolerated. For truly gluten-free and oat-free moisturizers many people with sensitive skin use and recommend: Vanicream Moisturizing Cream — no fragrance, dyes, lanolin, or oats CeraVe Moisturizing Cream or Lotion — gentle, oat-free, widely tolerated Eucerin Advanced Repair Cream — rich but oat-free La Roche-Posay Lipikar Balm AP+ — good for eczema-prone skin and oat-free Aveeno Sensitivity Free (not Aveeno with oatmeal) — check the label carefully Always check ingredients for things like Avena sativa / oat extract, and if you’re extremely sensitive, call the manufacturer to confirm there’s no cross-contamination with oats or gluten. Patch test any new product on a small area first. Plenty of people with eczema and gluten/oat intolerance have found these work well without triggering reactions.
    • Scott Adams
      Reverse Osmosis (RO) Water

      By Scott Adams · Posted

      I wonder what in RO water would cause major issues with your stomach? That seems strange, unless there is an issue with the system itself, like an installation issue, lack of changing the filter for a long time, etc.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.