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Skin Issues from Ceilac's

rushingspirit

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rushingspirit Newbie
rushingspirit
Posted

I'm newly diagnosed but have been living with it my whole life. I am 47 I never thought anything about all my stomach issues that go along with this disease. So now, my stomach & a whole lot of other symptoms are clearing up. However, I have this milky white film on alot of my body. It isn't terribly noticeable really except to me. When I am out in the sun I will tan all over, but in a few days all the areas that are marked with this loses the tan. It's itchy, yada yada yada.....Since cutting gluten out of my life by 99% (still working on remembering I have Celiac's) It's only been about 3 weeks since my diagnosis. Anyways, my question is this. I thought I read somewhere that this condition has something to do with being Celiac. It's itching even more & I feel as if it is starting to resolve itself. Is there anything I can do to relieve the symptoms sooner. & does anyone know if that is one of the conditions of Celiac's? Just so you know, I am only consuming gluten if I grab something quick & forget that I can't have gluten. No bread or pasta, but stuff with soy or a derivate of wheat etc.  I am getting WAY more cautious!!! I google 95% of my diet now!! :( It's annoying but worth FEELING AMAZING!!

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captaincrab55 Collaborator
captaincrab55
Posted

You could have DH.       gluten-free is a strict diet that doesn't allow for an oops.      If you have DH also, it may take a year or so on a strict to get total relief.      Did you get your vitamin levels checked??

 

GFinDC Veteran
GFinDC
Posted

Right DH (dermatitis herpetiformis) is a skin reaction associated with celiac disease.  There is a section of the forum dedicated to it where you can find more information.  Some of our itch-est members hang out there.  I think Scratchy is rumored to visit there too.

Welcome to the forum! :)

 

squirmingitch Veteran
squirmingitch
Posted

A milky white film on the skin that itches does not sound like dh however there are many skin conditions associated with celiac disease that are not dh.

A strict gluten free diet is the requirement. No screw ups!

caretothepeople Newbie
caretothepeople
Posted

A skin biopsy is used to confirm a diagnosis of DH so that may be something you want to ask your doctor about getting in addition to asking what other testing you might needs. Other questions to ask about DH (these came from gluten (dot) org)

Questions to ask your doctor:

Should I take medication for this disease?
How long will I need to take this medicine and how will I know when to stop taking it?
What are the side effects of these medicines?
How often do I need to get my blood drawn to monitor this medicine’s effect on my body?
What else can trigger DH?
Should I take nutritional supplements?
Could I have associated food intolerances?
Where can I have a bone-density study?
How can I find out about the diet?
How often should I follow up with the doctor?

Coltsneck24 Rookie
Coltsneck24
Posted

White, milky patches sounds more like a fungus. Please see a dermatologist to get a proper diagnosis. Also, gluten-free only works when it is 100%. 

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
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      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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