Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Exhaustion Normal?


pogirl1786

Recommended Posts

pogirl1786 Apprentice

i've been gluten free for about 4 or 5 months, and although i've improved tremendously, i still have bad days. my stomach still hurts on some days, probably cause by stress, but mostly what is frustrating is how tired i get. i'm 17 and i used to be able to run around without feeling really tired. some days i wake up and i'm just physically tired, as if i had worked out a lot the day before, but of course i didn't do anything but go to school and come home. i was wondering if anyone else feels like this sometimes. i know that it takes time to heal and be completely better, but i just wonder how long this will take. my friends are really understanding about my sick days and my tired days, but i hate having to bail out on things when i don't feel well because i feel that since i've used my celiac disease as a reason for my not feeling well enough to go out on several different occasions, that i don't really have a legitimate excuse...i'm just tired of being tired and having to deal with all of this. does anyone else feel the same?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



travelthomas Apprentice

Hi Pogirl,

I

sharqua Newbie

Pogirl,

It sounds like you may still have a source of gluten in your diet. If your intestines were still badly damaged, you'd be reacting all the time rather than having "some bad days." My suggestion is that it isn't stress; it's gluten causing the continued problems.

If you are taking vitamins or medication of any type, I'd look there to start. Even if the ingredient list doesn't show one of the triggers, it's STILL possible that flour is being used in the equipment.

Processed foods of any kind should be examined very, very closely with a tremendous amount of suspicion. You'd be shocked how many things have gluten hidden in them. It only takes a miniscule amount to knock an intolerant person completely for a loop.

If you aren't aiming for ZERO gluten, you are going to continue to poison yourself. This is a diet in which you simply cannot cheat. It's all or nothing.

Luck to you,

-Donna

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      ttg iga high (646 mg/dl) other results are normal

    4. - Wheatwacked replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      ttg iga high (646 mg/dl) other results are normal

    5. - Wheatwacked replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,342
    • Most Online (within 30 mins)
      7,748

    Mariebelle
    Newest Member
    Mariebelle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
    • Wheatwacked
      So, since total iga 646, was high ,  was tTg iga even tested? It is not uncommon to test negative for antibodies and even biopsies to still have Celiac Disease.  Many on this forum have gone 10 years testing negative and surviving multiple misdiagnoses before finally being diagnosed as celiac. If trial GFD after all the negative tests are concluded brings improvement, will you continue to eat gluten and suffering since the doctor says you are not sick? Your list of symptoms, mostly unrelated to each other, certainly fits the pattern of celiac disease.  Do you really have nine different diseases, all with cause unknown?  
    • Wheatwacked
      If you don't like prunes, Figs are rich in fiber, with 3-5 dried figs providing about 5 grams.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.