Is it possible for a Celiac disease patient to develop other intolerances?

[Romeo1990]

I couldn´t quite think of a title that could properly convey all that I wish to ask through this post, but went with the one above....

 

Is it possible for you to develop intolerances to other foods as well? Now, to elaborate on what I mean by "intolerance", could certain foods trigger anxiety and panic in a patient who already has the Celiac disease?

 

And my second question is, diarrhea, gas and such digestive issues aside, could gluten intolerance itself trigger anxiety and panic if you happen to consume something containing it?
 

[fergusminto]

Hi, firstly I do not have a medical background but I do suffer from Coeliac. No 'intolerances' linked to celiac disease have been proven but you only need to read comments on this site to see many of us do complain of such. Since being diagnosed 8 years ago I have developed intolerances to oats, all dairy, eggs, soya, Brazil nuts, all preservatives, pears and sulphites (in wine). Tends to be the proteins that are the cause. Symptoms tend to be tiredness, headaches, migraines and a low grade depressive/low feeling - just fed up, no oomph! Can last for between 2 and 5 days.

So, you are not alone. Should add that these are not "allergies" which are much more serious. 

[cyclinglady]

Anxiety is a common symptom of celiac disease (there are over 200 symptoms linked to celiac disease).  It usually improves on a strict gluten free diet.  When were you diagnosed?  Have you had any follow-up testing to see if you are diet compliant?  

 Intolerances are common among celiacs.    The most common is lactose intolerance.  This  is due to damaged villi that are unable to release the enzymes need to digest/process lactose (milk sugars).   Other common intolerances can include corn or soy, etc.

learn more about this from one of the world's leading researchers, Dr. A. Fasano:

 

[Romeo1990]

Hello friends, thank you so much for the responses. Mine is a strange, very weird case. I haven´t yet been diagnosed with the Celiac disease, or any other for that matter. I´m beginning to feel very frustrated at so far no diagnose being reached, despite regular visits to doctors. Regardless, I´ll relate my story, in the hope to find out whether this makes sense to any Celiac patient.

In January this year, I began to notice that I´d developed a sudden intolerance to anything that I ate that contained sugar. From a cake, to a an ice-cream, to a juice, to a candy. I removed it altogether from my diet, then that intolerance slowly spread to caffeine. After removing that, it spread to eating fish. After that, to Stevia sweetner, then to even artificial sweeteners, and ultimately then to a protein shake that I was on since years (as a meal replacement to keep my weight in check), and now recently it has spread to yoghurt, breads, watermelons and mangoes. Butter too is a suspect but it is still not fully verified as something that triggers off the symptoms.

Now, for anything wondering what "intolerance" signifies and what my symptoms are, first and foremost, insomnia, anxiety, panic, heart pounding, and tremors in the whole body, like an earthquake. Removing all those aforementioned items from my diet does alleviate my suffering, but I´m not sure anyone would be happy to lead a life like I´m leading right now, where you´ve to double check everything you eat, and plus the biggest fear of mine being lest it keeps spreading to more and more foods.

Any sane person would advise me to see a doctor, but trust my sanity, I´ve seen a dozen of those, from different fields, different specialists. They´re as dumbfounded as you´ll probably be after reading this, a dietitian even going to the extent of terming this as whole new illness altogether in medical science!

It has been suggested to me by some that it could be the Celiac disease, which might´ve over the years caused such intestinal damage that it can´t quite absorb other foods too, hence the problems. Does this make sense to anyone?

Sure enough I´ll keep pushing the doctors and hope that a diagnose can be reached.

[GFinDC]

Hi Romeo,

Have you had your vitamin and mineral levels checked?  Celiac can cause mal-absorption and that can cause vitamin deficiencies.  Vitamin deficiencies can cause a lot of symptoms.  B-vitamins are needed for nerve health.  You should have the vitamin levels checked before starting any supplements, as it is possible to have too much of a vitamin also.  And too much of some can cause symptoms as well.

 

[Romeo1990]

20 hours ago, GFinDC said:

Hi Romeo,

Have you had your vitamin and mineral levels checked?  Celiac can cause mal-absorption and that can cause vitamin deficiencies.  Vitamin deficiencies can cause a lot of symptoms.  B-vitamins are needed for nerve health.  You should have the vitamin levels checked before starting any supplements, as it is possible to have too much of a vitamin also.  And too much of some can cause symptoms as well.

 

It was done the last Tuesday and it showed normal results - neither deficiency, nor too much of anything. 
 

[cyclinglady]

On August 20, 2016 at 2:12 AM, Romeo1990 said:

Hello friends, thank you so much for the responses. Mine is a strange, very weird case. I haven´t yet been diagnosed with the Celiac disease, or any other for that matter. I´m beginning to feel very frustrated at so far no diagnose being reached, despite regular visits to doctors. Regardless, I´ll relate my story, in the hope to find out whether this makes sense to any Celiac patient.

In January this year, I began to notice that I´d developed a sudden intolerance to anything that I ate that contained sugar. From a cake, to a an ice-cream, to a juice, to a candy. I removed it altogether from my diet, then that intolerance slowly spread to caffeine. After removing that, it spread to eating fish. After that, to Stevia sweetner, then to even artificial sweeteners, and ultimately then to a protein shake that I was on since years (as a meal replacement to keep my weight in check), and now recently it has spread to yoghurt, breads, watermelons and mangoes. Butter too is a suspect but it is still not fully verified as something that triggers off the symptoms.

Now, for anything wondering what "intolerance" signifies and what my symptoms are, first and foremost, insomnia, anxiety, panic, heart pounding, and tremors in the whole body, like an earthquake. Removing all those aforementioned items from my diet does alleviate my suffering, but I´m not sure anyone would be happy to lead a life like I´m leading right now, where you´ve to double check everything you eat, and plus the biggest fear of mine being lest it keeps spreading to more and more foods.

Any sane person would advise me to see a doctor, but trust my sanity, I´ve seen a dozen of those, from different fields, different specialists. They´re as dumbfounded as you´ll probably be after reading this, a dietitian even going to the extent of terming this as whole new illness altogether in medical science!

It has been suggested to me by some that it could be the Celiac disease, which might´ve over the years caused such intestinal damage that it can´t quite absorb other foods too, hence the problems. Does this make sense to anyone?

Sure enough I´ll keep pushing the doctors and hope that a diagnose can be reached.

Please do not take offense, but have you researched orthorexia?  

Open Original Shared Link

I recently read about this in relation to gluten/(celiac disease) in "Gluten Exposed" by Peter Green, Director of the celiac disease center at Columbia University.  

[Romeo1990]

45 minutes ago, cyclinglady said:

Please do not take offense, but have you researched orthorexia?

Open Original Shared Link

I recently read about this in relation to gluten/(celiac disease) in "Gluten Exposed" by Peter Green, Director of the celiac disease center at Columbia University.

Nope, no offence taken, none at all. But I may explain here that every other symptom, anxiety, panic, insomnia, follows tremors. The first thing that happens are tremors, which if don´t stop after two-three occurrences, make me full awake and cause the heart palpitations. I once placed my brother´s hand on my shoulder and he felt it.

 

Initially the doctor thought it to be just anxiety that isn´t related to any food after all, so I was prescribed Cetalopram. It kept me away from panicking a bit, but the tremors remained and so did the insomnia hence. And then I removed everything from my diet that caused trouble, and here I was without tremors, so much that I discontinued Cetalopram without any issues (I´m sure you must be aware how tasking that can be on patients, mentally).

 

I really love some of the foods that would cause trouble, and in order not to completely give up on eating them, I would keep experimenting and keep hoping that it´ll be fine. Mango is something that I kept eating shamelessly for more than two months, but just yesterday decided that I can´t take it, and a similar thing happened with watermelons.

 

Something else that has lessened my tremors is the switching of my Thyroid medicine. The earlier one would increase the frequency of tremors, whenever they happened. I wasn´t as obsessed with what I eat, hell no, but the ongoing troubles have. I used to love my black tea more than anything else, but that too has been taken away. My point being, some of those foods were a part of my daily routine and ones I actually miss. My plan right now is to give myself a few weeks break and then to return to some of them to see whether they still cause the trouble. I mean, it could well be that it might´ve been something to do with my Thyroid and its medication?

[GFinDC]

Hi Romeo,

That's good your vitamins and such are ok.  The answer to your question about  other intolerances is yes, celiacs can develop other food intolerances beyond gluten.  The forum used to show a signature line for each member and often it listed their other food intolerances beyond gluten.  That signature line went away an a forum upgrade some time ago.  This forum subsection is specifically for other food intolerances.

I have intolerances to nightshades, soy, carrots, celery, dairy, and some other things I don't remember at the moment.  Corn is another common intolerance, and eggs.

Your thyroid medication could definitely make you have tremors.If you have too much thyroid hormone in our system you could get any of the symptoms of hyperthyroid disease.

Open Original Shared Link

 

[Rakdan]

An allergy is not necessarily more serious than an intolerance.

Celiac causes your body to attack itself, just like with an allergy, yet it is not an allergy.  Intolerance can cause any symptom that an allergy can, with the exception of anaphylaxis. Except in the tiny minority of cases where there is anaphylaxis, an allergy cannot be diagnosed by symptoms.

Severe intolerant reactions can be much more severe than mild allergic reactions. The effects can last for months, and contributes to other illnesses, as many of the articles on this site imply.

If someone has an extreme allergic reaction (the only kind that requires an EpiPen), and then uses an EpiPen, it is not likely to cause further health issues because the issue was treated immediately. If someone has an intolerant reaction causing severe diarrhea, it is going to affect their general health, especially because there is no magic EpiPen to prevent further damage. Celiac can also prevent your body from absorbing what it needs from the food. For this reason, I would expect that most health practitioners would agree that food intolerance is a partial indirect cause of many more deaths than is allergy.

[sdbookmom]

My daughter was first diagnosed with celiac, and still is, but last year we discovered she also has Ehlers Danlos Hypermobility syndrome or EDHS.  The two often go hand in hand.  Right now her "safe" food list is miniscule as she continues to develop food sensitivities.  It has something to do with the Mast Cells that live in the connective tissue.  My husband (& I) both have EDHS, his mostly manifests as food intolerances that cause severe panic attacks and episodes of POTS.  You might check out edhs.info. or do a search for Ehlers danlos & celiac. 

[boron]

Due to celiac disease, you can have fructose malabsorption or lactose intolerance or both at the same time. When your celiac disease is not active, fructose malabsorption and lactose intolerance should subside too. Unless you have them independently of celiac disease.

[Romeo1990]

Do not ever, and neither let any relative or friend, take a medicine by the name of Ciprofloxacin, or any other antibiotic of the same class. To be precise, any antibiotic of Fluoroquinolone or Quinolone class. A trick: all antibiotics that end with "oxacin" belong to the same class. If you get it prescribed, push your doctor for an alternative or better in advance let him know that you can t tolerate that. Not even as eye or ear drops - in ANY form!

Google "Floxie" or "floxed" to read more about it, basically about the number of people´s life it has literally destroyed, mentally, physically, emotionally! It did mine, although I discovered very recently that all my health issues began a week after taking it in January 2016.

If, God forbid, you or a beloved one has taken this in the recent times, then be advised that you should avoid taking any other antibiotics or any other strong type of medicine (such as steroids - by the names of cortisone, Prednisone, Prednisolone etc.) or even NSAID pain-killers (ibuprofen, Diclofenac, Aspirin etc.) for at least half a year after that.
-----------
Tremors, anxiety, panic attacks, brainfog, insomnia, intolerance towards many foods, medicines, vitamins and supplements, concentration issues, light sensitivity, ever-present tingling sensation in my right foot, heart palpitations, difficulty in reading and understanding, spells of severe depression, weakness, fatigue, delayed and slow reactions to situations and questions, spells of memory loss, - despite taking it 15 months ago! It has destroyed the abilities and the intelligence of a poet, an intellectual thinker, a guy known for witty replies and unmatched sense of humour and timing. This poison has changed the personality of a guy named Rawal Afzal - myself that is!

[Romeo1990]

On 23.8.2016 at 5:54 PM, boron said:

On 19.8.2016 at 9:15 PM, fergusminto said:

Hi, firstly I do not have a medical background but I do suffer from Coeliac. No 'intolerances' linked to celiac disease have been proven but you only need to read comments on this site to see many of us do complain of such. Since being diagnosed 8 years ago I have developed intolerances to oats, all dairy, eggs, soya, Brazil nuts, all preservatives, pears and sulphites (in wine). Tends to be the proteins that are the cause. Symptoms tend to be tiredness, headaches, migraines and a low grade depressive/low feeling - just fed up, no oomph! Can last for between 2 and 5 days.

So, you are not alone. Should add that these are not "allergies" which are much more serious. 

 

On 21.8.2016 at 5:17 PM, cyclinglady said:

Please do not take offense, but have you researched orthorexia?  

Open Original Shared Link

I recently read about this in relation to gluten/(celiac disease) in "Gluten Exposed" by Peter Green, Director of the celiac disease center at Columbia University.  

 

On 20.8.2016 at 0:59 PM, GFinDC said:

Hi Romeo,

Have you had your vitamin and mineral levels checked?  Celiac can cause mal-absorption and that can cause vitamin deficiencies.  Vitamin deficiencies can cause a lot of symptoms.  B-vitamins are needed for nerve health.  You should have the vitamin levels checked before starting any supplements, as it is possible to have too much of a vitamin also.  And too much of some can cause symptoms as well.

 

 

On 21.8.2016 at 11:37 PM, GFinDC said:

Hi Romeo,

That's good your vitamins and such are ok.  The answer to your question about  other intolerances is yes, celiacs can develop other food intolerances beyond gluten.  The forum used to show a signature line for each member and often it listed their other food intolerances beyond gluten.  That signature line went away an a forum upgrade some time ago.  This forum subsection is specifically for other food intolerances.

I have intolerances to nightshades, soy, carrots, celery, dairy, and some other things I don't remember at the moment.  Corn is another common intolerance, and eggs.

Your thyroid medication could definitely make you have tremors.If you have too much thyroid hormone in our system you could get any of the symptoms of hyperthyroid disease.

Open Original Shared Link

 

 

On 22.8.2016 at 9:53 PM, Rakdan said:

An allergy is not necessarily more serious than an intolerance.

Celiac causes your body to attack itself, just like with an allergy, yet it is not an allergy.  Intolerance can cause any symptom that an allergy can, with the exception of anaphylaxis. Except in the tiny minority of cases where there is anaphylaxis, an allergy cannot be diagnosed by symptoms.

Severe intolerant reactions can be much more severe than mild allergic reactions. The effects can last for months, and contributes to other illnesses, as many of the articles on this site imply.

If someone has an extreme allergic reaction (the only kind that requires an EpiPen), and then uses an EpiPen, it is not likely to cause further health issues because the issue was treated immediately. If someone has an intolerant reaction causing severe diarrhea, it is going to affect their general health, especially because there is no magic EpiPen to prevent further damage. Celiac can also prevent your body from absorbing what it needs from the food. For this reason, I would expect that most health practitioners would agree that food intolerance is a partial indirect cause of many more deaths than is allergy.

 

On 23.8.2016 at 10:44 AM, sdbookmom said:

My daughter was first diagnosed with celiac, and still is, but last year we discovered she also has Ehlers Danlos Hypermobility syndrome or EDHS.  The two often go hand in hand.  Right now her "safe" food list is miniscule as she continues to develop food sensitivities.  It has something to do with the Mast Cells that live in the connective tissue.  My husband (& I) both have EDHS, his mostly manifests as food intolerances that cause severe panic attacks and episodes of POTS.  You might check out edhs.info. or do a search for Ehlers danlos & celiac. 

 

On 23.8.2016 at 5:54 PM, boron said:

Due to celiac disease, you can have fructose malabsorption or lactose intolerance or both at the same time. When your celiac disease is not active, fructose malabsorption and lactose intolerance should subside too. Unless you have them independently of celiac disease.

Due to celiac disease, you can have fructose malabsorption or lactose intolerance or both at the same time. When your celiac disease is not active, fructose malabsorption and lactose intolerance should subside too. Unless you have them independently of celiac disease.

Guys, please see my post above. I don´t and possibly never have an exact medical diagnose that´ll, in a blood report, a scan or any other test, reflect my health troubles, but I do have a reason or an exact background to it.

Cipro, or any other antibiotics from the class of Fluoroquinolone or Quinolone is very capable of destroying people´s lives. It´s world famous for causing mysterious illnesses, in many cases symptoms that are triggered by certain or let´s say a lot of foods and drinks, sometimes even water! In cases they´re permanent, in cases if you´ve luck then at a minimum five years are required for the gradual progress from such issues; and don´t get me even started on the permanent side-effects that it´s causing as far as the physical aspect of things is concerned. It has sent people to wheelchairs!

I cannot change what´s happened to me, but I can use this experience to warn others, so I suddenly remembered this thread today and thought of posting here again. In short, avoid that poison!
 

[Ennis-TX]

Intriguing, question did you ever get the celiac diagnosis? We have been talking about something and new research as of late. This is in regards of how the dormant celiac in people with the gene can get full blown celiac after having something happen that triggers the entire immune system to change and bring about celiac disease. There is a recent study release about a virus that is doing it, and we have seen cases were some other shock to the system can bring it out like a severe sickness, pregnancy, overdosing. etc.   This medication your talking about could be another culprit that puts so much strain and messes with the immune system in a way that it can trigger the autoimmune disease in those who already have the genetic abnormalities that cause it. 

Regardless of if you have celiac or not I think the information about how our immune system from the research could be applied in a similar fashion explain how a antibiotic such as this can mess and alter ones immune system by effecting the gut and the way it processes food. Might be worth a read to see if you can cross reference some information about how it could do so and effect your immune system the way it did with all the intolerance issues.

https://www.celiac.com/forums/topic/117762-geneceliac-activated-by-virus/

 

I always have really bad gastric distress for weeks after taking a antibiotic and pretty much refuse to them myself.

Thanks for the warning about this drug so others can opt for a different one.

[Romeo1990]

On 9.4.2017 at 6:52 PM, Ennis_TX said:

Intriguing, question did you ever get the celiac diagnosis? We have been talking about something and new research as of late. This is in regards of how the dormant celiac in people with the gene can get full blown celiac after having something happen that triggers the entire immune system to change and bring about celiac disease. There is a recent study release about a virus that is doing it, and we have seen cases were some other shock to the system can bring it out like a severe sickness, pregnancy, overdosing. etc.   This medication your talking about could be another culprit that puts so much strain and messes with the immune system in a way that it can trigger the autoimmune disease in those who already have the genetic abnormalities that cause it. 

Regardless of if you have celiac or not I think the information about how our immune system from the research could be applied in a similar fashion explain how a antibiotic such as this can mess and alter ones immune system by effecting the gut and the way it processes food. Might be worth a read to see if you can cross reference some information about how it could do so and effect your immune system the way it did with all the intolerance issues.

https://www.celiac.com/forums/topic/117762-geneceliac-activated-by-virus/

 

I always have really bad gastric distress for weeks after taking a antibiotic and pretty much refuse to them myself.

Thanks for the warning about this drug so others can opt for a different one.

Thank you so much for such an informative post! I´ve read the summary of that particular research and must say it sounds interesting.

 

The fact that my symptoms aren´t of the classic Celiac disease (diarrhea, bloating, abdominal pain or cramps etc.), but of tremors, heart palpitations, insomnia and anxiety, and the fact that the flatbread that we Pakistanis eat in our daily routine doesn´t trigger these symptoms, makes my case really weak in being able to convince a doctor to test for the aforementioned disease.

 

Quinolone antibiotics are famous for causing such cell damages that the symptoms sound like one, two or multiple different diseases, but often the tests show nothing, which´s incredibly frustrating as a patient. My symptoms for example range from diabetes, hyperthyroidism, hypothyroidism, hyperparathyroidism, adrenal insufficiency, heart disorder to the toxicity of fluoride, mercury, lead, and to the Celiac disease. However, the more frustrating thing is that no effort has been made by doctors to test me for these disorders to rule them out, except for diabetes and adrenal insufficiency.

 

Life´s been quite tough mind you. Food intolerance is not my biggest problem anymore; rather, it´s the intolerance that I´ve developed to so many medicines, supplements and vitamins: Magnesium, vitamin D, vitamin E, L-Glutathione, Amino Acids, any antibiotic, any NSAID pain-killer, and most frustratingly, my thyroid medicine and many other medicines. Life truly is awful without my thyroid medicine. And of course, intolerance to water, yes, read again, water! - probably a sensitivity to the chemicals present in the mineral as well as the tap water. Sleep is... well, four out of five nights I wake up 12-14 times at night, this despite being prescribed a sedative. I used to pride myself for having always in life tolerated medicines well and having always completed any antibiotic course without issues. Never in life had I had to contact a doctor again to change any prescribed medicine to another.

 

Taking Quinolone antibiotics is like diving into the sea, which´s a fair choice to make if you find yourself on Titanic, but at least I wouldn´t if I´m on ground. I fully realise how useful they can be, certainly when a patient is facing a life-threatening infection or no other antibiotics works, and I´d therefore never say that it should be banned (although, when I´m really unwell it slips out of my mouth in frustration!).

 

Love, peace and progress!

[Ennis-TX]

2 hours ago, Romeo1990 said:

Thank you so much for such an informative post! I´ve read the summary of that particular research and must say it sounds interesting.

 

The fact that my symptoms aren´t of the classic Celiac disease (diarrhea, bloating, abdominal pain or cramps etc.), but of tremors, heart palpitations, insomnia and anxiety, and the fact that the flatbread that we Pakistanis eat in our daily routine doesn´t trigger these symptoms, makes my case really weak in being able to convince a doctor to test for the aforementioned disease.

 

Quinolone antibiotics are famous for causing such cell damages that the symptoms sound like one, two or multiple different diseases, but often the tests show nothing, which´s incredibly frustrating as a patient. My symptoms for example range from diabetes, hyperthyroidism, hypothyroidism, hyperparathyroidism, adrenal insufficiency, heart disorder to the toxicity of fluoride, mercury, lead, and to the Celiac disease. However, the more frustrating thing is that no effort has been made by doctors to test me for these disorders to rule them out, except for diabetes and adrenal insufficiency.

 

Life´s been quite tough mind you. Food intolerance is not my biggest problem anymore; rather, it´s the intolerance that I´ve developed to so many medicines, supplements and vitamins: Magnesium, vitamin D, vitamin E, L-Glutathione, Amino Acids, any antibiotic, any NSAID pain-killer, and most frustratingly, my thyroid medicine and many other medicines. Life truly is awful without my thyroid medicine. And of course, intolerance to water, yes, read again, water! - probably a sensitivity to the chemicals present in the mineral as well as the tap water. Sleep is... well, four out of five nights I wake up 12-14 times at night, this despite being prescribed a sedative. I used to pride myself for having always in life tolerated medicines well and having always completed any antibiotic course without issues. Never in life had I had to contact a doctor again to change any prescribed medicine to another.

 

Taking Quinolone antibiotics is like diving into the sea, which´s a fair choice to make if you find yourself on Titanic, but at least I wouldn´t if I´m on ground. I fully realise how useful they can be, certainly when a patient is facing a life-threatening infection or no other antibiotics works, and I´d therefore never say that it should be banned (although, when I´m really unwell it slips out of my mouth in frustration!).

 

Love, peace and progress!

Wondering if there is a common additive/filler agent that triggers your issues, corn, silica, talc, etc. that could be triggering these. I came up with a corn allergy and the stuff is in damn near everything.     As for the water it is probably a chemical additive they put in it, (how are you with flavored waters?) I personally have to add a flavoring or brew something with water. Plain water just seems empty to me and I end up drinking it til I get sick as it never quenches my thirst/feels like drinking anything. Sounds very frustrating, other thoughts are perhaps a imbalance between nutrients like sodium, potassium, magnesium, and the vitamins that play a role in their absorption. A imbalance caused by thyroid issues or damaged suffered from your previous antibiotic encounter leading to blocked receptors or inability to process them could lead to the cascading effect........why can the body not be simple and doctors have better test for these.  Anyway just my random thoughts on the matter I wish you luck in finding a path that works for you. Took me years to find me and I still have issues just learning about a new complication last month that changed my life for the better being able to know the cause.