Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fructose malabsorption and celiac


kkgirl

Recommended Posts

kkgirl Contributor

I had a endoscopy again today and it showed I have decreased folds in my small intestine.... I was just diagnosed with fructose malabsorption can that cause intestinal damage?? Iv been on a gluten free diet for 6 yrs already but never had a diagnosis for celiac  they never did a endoscopy before just said I was intolerant. 

 

 

 

 

The doctor who did my endoscopy took a biopsy and says possible celiac disease 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
4 hours ago, kkgirl said:

I had a endoscopy again today and it showed I have decreased folds in my small intestine.... I was just diagnosed with fructose malabsorption can that cause intestinal damage?? Iv been on a gluten free diet for 6 yrs already but never had a diagnosis for celiac  they never did a endoscopy before just said I was intolerant. 

 

 

 

 

The doctor who did my endoscopy took a biopsy and says possible celiac disease 

"But just as celiac disease often masquerades as another condition, failing the best diagnosticians, the reverse can be true and celiac disease can be misdiagnosed.  Or celiac disease can co-exist with other conditions.  Some conditions that mimic celiac disease symptoms include pancreatic insufficiency, IBS, SIBO a, lymphatic colitis, FRUCTOSE INTOLERANCE, etc. "

Gluten Freedom.  Alessio Fasano, MD, Founder and Director of the Massachusetts General Hospital, Harvard Medical School.  turner Publising .  2004. 

(Ha!  Not following the MIL citatation format.  Do not tell my kid! ?)

And this about the folding:

Open Original Shared Link

so, it could be celiac disease or the fructose intolerance or both!  No way to confirm celiac disease with the blood panel since you have been gluten-free for six years. I take that back.  It  maybe worth testing.  You might have been exposed to gluten.  Who knows?  

 

kkgirl Contributor

I won't tell your kid haha.. 6 years ago they said I was intolerant to gluten. They didn't even do the testing. After awhile I was completely better on a gluten free diet up until 6 months ago... but then again they didn't test me at all for celiac until i was already gluten free for a year and a half. Then they did the blood work and said again just intolerant... my gi doctor had a suspicious of celiac so she went ahead and ordered the endoscopy knowing that my vili might be healing but it will give us a idea of them healing or not. It's a mess 

kkgirl Contributor

Oh man!!!!! It turns out I do not have fructose malabsorption! They had the wrong person yesterday when they told me ........ just want to know what's going on 

squirmingitch Veteran

Oh boy! Really on the ball aren't they?:rolleyes:

kkgirl Contributor
10 hours ago, squirmingitch said:

Oh boy! Really on the ball aren't they?:rolleyes:

yep ... im really starting to get very frustrated. i called my dietion today and told her what was going on and she said it makes no since that fructose isnt the cause so for right now i want you to keep avoiding it ok... i said ok... i said when i emailed you yesterday i said never mind i did have it then you replied back i thought so! well that was a sike. they called me thinking i was someone else.  so back to square one. she then said screw the tests and your to avoid it... the other day when i was preping for colonoscopy i had chicken broth and i added some beef flavor to it and ended up sick before i even drank the prep drink.... i looked at the ingredients and there was corn syrup solid in it..... 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,442
    • Most Online (within 30 mins)
      7,748

    Nony
    Newest Member
    Nony
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.