Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1st glutening! Is this normal?


Mnoosh

Recommended Posts

Mnoosh Apprentice

I'm a newly diagnosed celiac, just about two months into recovering. I was feeling soooo much better and my bowels were almost back to normal. Well...then my husband and I went out to eat this weekend to celebrate our 10 year anniversary. They seemed very knowledgable and concerned with cross contamination. About 15 hours later I got incredibly sick (cramping, bloating, and really, really bad diarhea). After about 12 hours of the worst diarhea I've ever experienced, I realized that our Imodium was gluten free! This stopped me from going anymore that night or the next day-I was so excited thinking I had turned a corner. However, once the medicine wore off the diarhea came back. So I guess what I'm wondering is-does anyone else experience extremely bad diarhea for days after a glutening? It's alarming! 

P.S. I'm eating really a gentle diet to hopefully heal ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Irene Joanne Explorer

For me it was better after a week. It's not fun! Get lots of rest. I don't have a lot of advice- I was diagnosed almost a year ago. For me, I'm vomiting also for the first day. I'm getting to a point where I rarely eat out- it's too stressful even if I don't get sick.  It took me almost 3 months before I really felt better. 

icelandgirl Proficient

Hi Mnoosh...yes, that's what happens to me.  The first time I was glutened I had eaten out and they seemed knowledgeable too...but alas I was so sick.  For me, it took 3 weeks to get back to normal BMs the first time.  It stinks, but it's true.  I was glutened in June and this time the D only lasted about a week, but other symptoms lasted longer.

It can be very hard and discouraging getting glutened, but you will feel better.  Keep eating soft, gentle foods that are easy on your system.  My go to is chicken breasts cooked in the crockpot, rice, boiled potatoes, we'll steamed carrots, etc.  These are easy on my system and give me some nutrition.

I hope you get to feeling better soon!  Try some peppermint or ginger tea...they are very soothing as well.

Hugs!

dustinhxc Newbie

First time I was glutened I had horrible diarrhea. I've been fine for awhile. Then 3 weeks ago I was glutened and vomited and had diarrhea. Now 1 week ago I was glutened and vomited again. Had diarrhea the first night and then have been constipated and nautious for a week. Took fiber and it helped. Hopefully the nausia ends soon. I think I'm getting very sensitive. 

Ennis-TX Grand Master

Last major straight gluten exposure for me was in June, went out with a friend to celebrate and they said the chicken was gluten-free. Seemed to have a sauce on it but I ignored it and had a tiny bit in my salad. Within minutes I had a feeling in my mouth, sores, and my lymph nodes started hurting. I knew then but it was going to be bad later, few hours later I am on my floor at home in the door way, I was puking, dry heaving and heavy cramps, and so dazed I just laying there in the door way complete out of it dazed. Spent the next 6-8 hours like that, heart rate dropped to 32-38bpm at one point and turned completely white according to my friend who was watching over me. Spent the next week just out of it, numbness was back to its worse, (finger tips lack surface feeling and tend to fumble stuff and burn my hands cooking and not notice it). Following next couple of days where odd bloody stools. .....I normally end up binge eating almond butter, protein powders, and coconut afterwords to get my weight back up and keep it on. BCAAs also seem to help with recovery and soreness

Mnoosh Apprentice

Thanks for sharing your experiences. It's good to know that this is somewhat to be expected. Do you all take anti-diarrhea meds or just let things run their course after glutening?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,651
    • Most Online (within 30 mins)
      7,748

    Mae61
    Newest Member
    Mae61
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.