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High TTG, - biopsy

Nikko

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Nikko Rookie
Nikko
Posted

Hi, 

My daughter had a ttg of 160. Her dr was sure it was celiac, we did the biopsy to assess condition and see if there were any coexisting issues and the biopsy came back totally negative. I was under the impression false positives are very rare (especially when so high) - any idea what could be going on? She does not have diabetes. In the meantime we were told to have her continue eating gluten. (I have high faith in her dr that he performed the biopsy correctly based on his experience and reputation.) Very frustrating. Does anyone have any similar experiences or idea what could be causing a number that high if it's not celiac? Thx for any input 

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frieze Community Regular
frieze
Posted

damage is too far down the small intestine for them to reach.  see if they would take an improvement with diet to dx.

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      Why?

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      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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