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Corn and Potato Reaction those with Celiac Disease

BergieF

By BergieF
in Food Intolerance & Leaky Gut

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BergieF Explorer
BergieF
Posted

My daughter and I both are diagnosed Celiacs through biopsy.  I'm a category 8 - DQ2 Homozygous on the Prometheus genetic test.  I think I'm reacting to corn and potatoes like I would with gluten.  After 15-30 minutes of eating those things I start shaking like someone having a seizure or Parkinson's, then comes the bloating, stomach pain, dead brain and then hours of coma like sleep.  Is this a common thing?  Does anyone know why I would react to corn and potatoes?  My daughter doesn't have a reaction to either of those foods.  

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cyclinglady Grand Master
cyclinglady
Posted

Sure, celiacs can have various intolerances that may or may not resolve with healing.  A classic one is lactose intolerance.  Corn, soy, and nightshades (e.g. Potatoes) are common.  Why?  Here is a theory from Dr. Fasano, a leading celiac Expert (PED GI at MA General).  

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i like his lecture and it explanations so many issues celiacs tend to have:

 

GFinDC Veteran
GFinDC
Posted

Yep, nightshades (tomatoes, potatoes, peppers, eggplant) are a problem for some of us.  Actually many people have a problem with potatoes if they eat too many of them.  Nightshades contain chemicals called alkaloids that are hard for our bodies to process.  That's why they say not to eat the eyes of potatoes.  They have a more concentrated level of alkaloid.  I don't eat nightshades or if I do I regret it.  They are bad news except in small amounts.  Corn I do ok with as long as it isn't corn on the cob.

We can develop food intolerances to many foods beyond just gluten.

Ennis-TX Grand Master
Ennis-TX
Posted

I ended up developing allergies to corn and bloat issues with potatoes and carbs in general. We each react differently, some of us will develop odd ball immune responses and intolerance to others foods. Some of these will go away over time as we heal others will stick around. Just hang in there and avoid what makes you sick while working on maintaining a balanced diet. Eating foods on rotation removing one from you diet for 1-2 weeks at a time can help prevent new ones, according to my dietician. I know I have a list of food s right now that will make me sicker then a dog, and some that used to be on that list have gone away over the years and new ones have cropped up. Good luck.

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      Anti-endomysial Antibody (EMA) Testing

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      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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