Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is dairy okay in the first few months?


Rowan13

Recommended Posts

Rowan13 Explorer

I realize that it is sometimes suggested to quit dairy at the same time as gluten. I've read that dairy is the primary cross reactor with gluten. (Sorry if I am not using the correct terms). Also that we process the (lactose?) in dairy in the part of the small intestine with the tips of the (villa?) that have been damaged by gluten. So some of my questions are:

1. Would consuming dairy in the first few months of going gluten free slow down the healing of the small intestine? Especially the villa?

2. How much would it affect healing?

3. If I feel comforted by having the dairy, could I "catch up" with healing after about 2 months and go dairy free at that point?

4. What about slowly decreasing dairy while increasing vegetables and other healthy food items.

I realize dairy causes me mucus and slight inflammation and can cause constipation.

I have been through major stressors for the last 5 years, including death of several loved ones but at a time of chaos so that I still haven't processed it or really honestly accepted it in my heart, strong feelings of suicide during that time,... well you get the message. I'm not suicidal now, but I am exausted. Migraines and food reactions, vomitting, for the last 3 months with hardly any reprieve. Until I finally learned I am reacting to gluten.

I never used to drink milk and only occasionally had cheese. I was dairy free about 5 years ago no problem. But for some reason, with hardly being able to eat I started drinking milk. If I"m gonna be honest I started guzzling milk. NOT like me at all. At the moment I have been gluten free for 3 weeks. I still need to wash down everything in the kitchen but haven't been strong enough up till this point. I'm increasing greens like arugula, baby bok choy, leaf lettuce, butterhead lettuce, shallots. I've added some eggs back in, even though I get a slight reaction. I eat apples and pears and a few berries. Ive cut out coffee and all caffeine. (I realized I was having a really bad delayed reaction to coffee) I"m avoiding nightshades. I'm still afraid to eat sweet potatoes or any nuts or seeds.  I feel like I can think again. Like my head/brain has cleared or something.

My plan is to increase the above foods and try small amounts of meats (tuna, duck, salmon) and to try small amounts of wild rice & hopefully white or brown rice. Rice would greatly open things up as I can't have coconut, almonds, soy or beans. At least right now. But the one thing that's making me stressed is giving up all dairy. I tried for 4-5 days and felt like I was dying. Anxiety, panick, weird feelings, bad insomnia. I know milk is addictive and has morphine in it. But I've had it again the last 2 days and feel SO much better.  Not perfect by any means but better than a few days ago.

Dairy was also causing me constipation but I was practcally living it along with apples and pears for weeks when very ill. (Well, I was also having wheat crackers not knowing what I was doing to myself). My plan for the constipation (which went away the 5 days I was dairy free) is to greatly increase greens, and veg and reduce dairy. Hopefully to the point that dairy is just about 1/8 or less of my daily eating and then ultimately zero. I am planning to also experiment with cooking, making cauliflower pizza, etc.

I didn't know how to make this any shorter. I know dairy is bad for me but I feel like I need a bridge to get where I'm going.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PinkyGurl Explorer

Not everyone has to cut out dairy.  I didn't have avenge any issues myself.  It's suggested because it's the villi that help us process the lactose.  Secondly it sounds like you are trying to do the elimination diet thing blindly.  That can be tough without a guideline to go by.  My suggestion to you is look up Autoimmune Protoc and start that up.  At least then you have information about the phases and reintroduction period.  Sweet potatoes are not a nightshade nor are they inflammatory.  In fact with you eliminating so much it would be beneficial to be eating them for their power house nutrients.  Remember you are deficient right now due to celiac so getting all the good vitamins is important.  Again take a look at autoimmune paleo protocol for help directing you in the food elimination.

kareng Grand Master

Why are you gluten-free?  Do you have Celiac?  If you don't have Celiac, that part about the villi damage doesn't apply to you.  You could just be lactose intolerant...or not.  Also, the nonsense about " cross- reactors" wouldn't apply either.  there is no scientific evidence of food that the body sees as gluten ( but aren't).

Irene Joanne Explorer

I can understand what you're saying about dairy.  Although I rarely ever drank milk- I really was addicted to other milk products after diagnose. I wonder if being low on calcium can cause that? I do need calcium supplements.  Its been a year now since being diagnosed with celiac and I'm finally at a point where I'm really  able to avoid dairy. I'm noticing a huge improvement in my energy levels now since cutting out diary. I know I did this backwards as often the recommendation is to avoid dairy at the beginning- but it was too overwhelming to do it all at once. I had a salicylate sensitivity for most of this year that had me cutting down on so many healthy foods- but that's getting better now. 

Rowan13 Explorer

Pinkygurl

I'd love to have something that I can use as a basic structure for what I'm doing. So far I'd only found things that were just about salicylates, or just about oxalates, or histamine, etc so I was trying to put all that together along with what doesn't make me very sick. I'm having a problem with milk and cheese at the moment and later I might try local goat milk yogurt. Right now I'm just cutting it all out to see how I feel for awhile. But it does take away a major source of fat. I haven't been eating any meat but I'm going to look at the autoimmune paleo protocol ~ I hadn't heard of it until reading your post. Luckily I love cooking so I'd be happy to try out new things. I used to love sweet potatoes so I'm going to try adding them back in also. I know they are gorgeous when cooked! I knew they weren't nightshades but I was getting really confused about what exactly I was reacting to. Thanks so much for your input. I really appreciate it!

Ps, Sorry for the late response ~ I was recovering from eating a packaged food that didn't work out too well. c:

Rowan13 Explorer

Hi Kareng,

No I haven't been diagnosed with Celiac. I think it was 5 years ago I kept telling my doctor that I had chronic diarrhea and loose stools and for some reason they kept laughing at me and telling me it was normal and because I ate a lot of vegetables. I was reacting to certain natural face lotions too and breaking out in hives or bright red splotches on my face but no one seemed to care. So I carried on only this past year or more things became more pronounced. I had to stop eating pasta and even gluten free oatmeal though I wasn't connecting it with anything specific until recently when I finally read about Celiac disease and gluten sensitivity. I haven't been in contact with gluten for several weeks now and I feel like I have more clarity in my thinking, like when the flu wears off and you feel more like you are awake and alert. My stomach hurts less. I've stopped vomiting.  As for the dairy, yes, I could have lactose intolerance, I didn't realize that the idea of cross reactivity with gluten was just hypothetical with no basis. Thanks for letting me know. I'll just assume that it's a separate issue then. Thanks so much for taking the time to respond. I really appreciate the help!

Rowan13 Explorer
On 11/8/2016 at 10:01 AM, Irene Joanne said:

I can understand what you're saying about dairy.  Although I rarely ever drank milk- I really was addicted to other milk products after diagnose. I wonder if being low on calcium can cause that? I do need calcium supplements.  Its been a year now since being diagnosed with celiac and I'm finally at a point where I'm really  able to avoid dairy. I'm noticing a huge improvement in my energy levels now since cutting out diary. I know I did this backwards as often the recommendation is to avoid dairy at the beginning- but it was too overwhelming to do it all at once. I had a salicylate sensitivity for most of this year that had me cutting down on so many healthy foods- but that's getting better now. 

Hi Irene,

Yes, it's like I needed it. Which wasn't how I used to be. I'd have milk occasionally. But this was like I'd drink some and then an hour later really want some more. It seemed to feel good in my stomach too. And it was giving me more fluids, fats and maybe electrolytes.  But then I also realized I was getting adverse side effects, like congestion, clearing my throat and I think some inflammation and joint pains. I get about not stopping it until you felt better though. I don't think it's backwards if it helped you get to a better point. I think it's wonderful that you are noticing more energy. I haven't been diagnosed with Celiac either so I'm sure you had lots to deal with all at once. I was interested to find out about the opiates in dairy though and how it really can become addictive and difficult to quit for some. That might be another reason it was comforting to me if it had a calming effect. Thank you so much for taking the time to respond here! I know everyone is very busy with their own lives so I'm really grateful for your thoughts & kindness. Take care ♥

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gilligan Enthusiast

Dairy and opiates?  Uh...probably not so much...Open Original Shared Link

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.