Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cassin Intolerance?


VydorScope

Recommended Posts

VydorScope Proficient

Does there exist a test for Cassin Intolerence? I know theres one for lactose, but what about Cassin?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kasey'sMom Enthusiast

A couple of months ago I did the YORK panel. They've redone the panels and have included casein in the the "Standard 96-Food IgG ELISA Panel." They have also started testing for Yogurt, Goat Milk, Cheddar Chesse, Cottage Cheese, Mozzarella Cheese, and Whey. I was suprised to find I didn't test positive. I geuss my problem must be lactose.

I wish they would have broken down as these indv. items when my dd was test this summer but at that time that just tested for cows milk as a whole. We will probably have her retested sometime next year.

:)

StrongerToday Enthusiast

Great Smokies Labs will also break down many foods for sensitivity testing including casein, cheese, milk, goats milk, etc.

Emme999 Enthusiast

I had the ELISA testing with US BioTek labs. The dairy section tested me for the following allergies (individually): Casein, Cheddar Cheese, Cottage Cheese, Mozzarella Cheese, Whey, Milk, Goat Milk and Yogurt.

I was off the chart on all of 'em! (Talk about an overachiever ;))

They can guide you to a doctor in your area that uses this laboratory if you go to their website. Good luck!

- Michelle :wub:

jenvan Collaborator

Great plains also has casein and several forms of dairy on its intolerance tests as well. I was off the charts :)

VydorScope Proficient

Okay.. great answers all! but can any of you provide a link? :D

jenvan Collaborator

here is Great Plains Lab: Open Original Shared Link

here is list of tests, you can get descriptions of what each tests: Open Original Shared Link

i choose great plains b/c i could bill my insurance for it and it didn't cost me much at all. they have an allergy specialist/biochemist you can talk to on the phone also about results etc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
here is Great Plains Lab: Open Original Shared Link

here is list of tests, you can get descriptions of what each tests: Open Original Shared Link

i choose great plains b/c i could bill my insurance for it and it didn't cost me much at all. they have an allergy specialist/biochemist you can talk to on the phone also about results etc.

Cool that one specifly has a means to bill BC/BS which is what i have :) THANKS!!!!! Now I just need to get my doc to prescribe it some how

jenvan Collaborator

I basically told my doctor I wanted to do it :) He signed the form, they took my blood at the dr.s office and sent the package for me. If you order the tests, you need only call to do so first, they will send it to your house. You don't need drs signature till you send the labs in.

VydorScope Proficient
I basically told my doctor I wanted to do it :) He signed the form, they took my blood at the dr.s office and sent the package for me. If you order the tests, you need only call to do so first, they will send it to your house. You don't need drs signature till you send the labs in.

I ordered the test kit, but cant find on thier site hte form? Is it in the kit?

jenvan Collaborator

the kit comes with several forms you'll need to fill out...and one of those your doc will sign.

darkangel Rookie

I had the ELISA tests run and it said I didn't react to anything but paprika and some obscure mold. :blink: Yet, I know from listening to my body I have very strong reactions to gluten and casein. It's frustrating, but I've found the tests aren't helpful for me. I never understood why, but I found this quote...

The only way to be absolutely sure of the diagnosis is to follow a program of elimination and provocation. Blood and skin testing may sometimes help, but they are expensive and are not reliable to diagnose delayed-onset food allergies or chemical sensitivities. Although some such tests are marketed by clinics and laboratories, I have found the rate of false positive and false negative results to approach 50%. Even with testing, it is still necessary to eliminate all (or most of) the offending foods for 30 days or more to confirm the results. Then to provoke symptoms by adding them back. It would be nice if there were an easier method. But I have not found one.

Open Original Shared Link

I've also been told that a large percentage of folks that have problems with gluten also have problems with casein.

VydorScope Proficient
the kit comes with several forms you'll need to fill out...and one of those your doc will sign.

MOst Excellent. Site says 2-5days for delviery. Once that arrives I'll stop by my docs and see if i can get them to sign it. Worht a $20 copay if they will do it thats for sure! :D

bluelotus Contributor
I had the ELISA tests run and it said I didn't react to anything but paprika and some obscure mold. :blink: Yet, I know from listening to my body I have very strong reactions to gluten and casein. It's frustrating, but I've found the tests aren't helpful for me. I never understood why, but I found this quote...

Open Original Shared Link

I've also been told that a large percentage of folks that have problems with gluten also have problems with casein.

My doctor basically told me that the ELISA tests don't work (well, anyway), so he tried to steer me clear of them. Still haven't gotten any done, but I guess there are people out there that might argue for your intolerance to gluten, etc. since the tests don't seem to work for everyone. Who knows, certain things work for certain people. Best thing to do is to take everything with a grain of salt and just listen to your body. Vydorscope, good luck with the test!

Emme999 Enthusiast
My doctor basically told me that the ELISA tests don't work (well, anyway), so he tried to steer me clear of them.

My (conventional) allergy doctor sent me away with a card for a psychologist :P

Here are some quotes from The Encyclopedia of Natural Medicine (Michael Murray, ND):

"The skin-prick test or skin-scratch test commonly employed by many allergists only tests for IgE mediated allergies. Since only about ten to fifteen percent of all food allergies are mediated by IgE, this test is of little value in diagnosing most food allergies."

also -

"Most nutritionally oriented physicians now employ blood tests to diagnose food allergies. Despite a tremendous amount of scientific support, for some reason the diagnosis of food allergy and blood testing is still somewhat controversial in conventional medical settings. ... A variety of blood tests is available to physicians, with the ELISA (enzyme-linked immunosorbent assay) test appearing to be the best and most popular laboratory method currently available (and reasonably priced). This test can measure IgE, IgG, IgG4 and IgA antibodies, therefore identifying both the immediate and delayed allergic reactions. ... One of the key advantages of the ELISA over other laboratory methods is its ability to measure IgG4 antibodies. This subclass of antibody was initially thought to act as a blocking antibody, thereby exerting protective effects against allergy. However, it now appears that IgG4 antibodies are actually involved in producing allergic symptoms."

Anyway - worked for me ;)

- Michelle :wub:

P.S. Note that I had a *very* LOW reaction to gluten containing grains in this test - So, it will not pick up celiac disease, since that's not an allergy ;) (But you guys already knew that :rolleyes: )

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.