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New Here And Need Help With Diagnosis

Amanda70

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Amanda70 Newbie
Amanda70
Posted

I recently starting seeing a new doctor. I have hypothyroidism and chronice recurrent yeast infections along with alot of stomach issues and fatigue. I had food allergy testing through Immuno Labs and it came back positive for allergies to: Banana, Barley, Buckwheat, Cheese, Cranberry, Egg, Cow's Milk, Rye, Sesame, Wheat, and Baker's and Brewer's Yeast. The new doctor thinks I have Celiac disease but the lab test she did was negative. She called me today and said even though the test came back negative she still thinks I have Celiac disease and wants me to start on a gluten free diet. Is it possible to have it and test negative??

Also, I'm overweight and not underweight..I noticed alot of Celiac people are underweight.

What do you guys think??

Rather I have it or not I'm still starting the diet because with all of the food allergies I think it could be very beneficial to me. I'm 26 years old and married with a five year old and trying to get pregnant.

Thanks

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Rachel--24 Collaborator
Rachel--24
Posted
I recently starting seeing a new doctor. I have hypothyroidism and chronice recurrent yeast infections along with alot of stomach issues and fatigue. I had food allergy testing through Immuno Labs and it came back positive for allergies to: Banana, Barley, Buckwheat, Cheese, Cranberry, Egg, Cow's Milk, Rye, Sesame, Wheat, and Baker's and Brewer's Yeast. The new doctor thinks I have Celiac disease but the lab test she did was negative. She called me today and said even though the test came back negative she still thinks I have Celiac disease and wants me to start on a gluten free diet. Is it possible to have it and test negative??

Also, I'm overweight and not underweight..I noticed alot of Celiac people are underweight.

What do you guys think??

Rather I have it or not I'm still starting the diet because with all of the food allergies I think it could be very beneficial to me. I'm 26 years old and married with a five year old and trying to get pregnant.

Thanks

Yes, the tests can come back "false" negative. It seems to happen alot...the tests arent perfect. I think its great that you have a doctor that thought of testing you in the first place. Even better that she is recommending a gluten-free diet despite the negative bloodwork. I'd keep her if I were you. :)

Lots of Celiacs are overweight. Its a misconception that all celiacs present with classic symptoms of weightloss, bloated tummy, etc. Lots of Celiacs have no symptoms at all so you really cant diagnose by *looking* at someone. You can be underweight, overweight or have an ideal weight and still be Celiac.

As far as trying the diet...I say "Go for it!" Use this forum to learn about the diet and cross-contamination issues. Its the best resource I've found and the people here are very knowledgeable....and kind! :D

By the way...do you happen to know what tests your doctor ran? Its also possible she didnt run all the tests. If she only ran one test it wouldnt be enough to determine celiac or not.

KaitiUSA Enthusiast
KaitiUSA
Posted

Do you know which tests were run for celiac? Celiac has a separate panel that needs to be done but all of them really need to be done to see the full picture...and some are more accurate than others.

There can be false negatives especially if it has just been triggered.

If you plan on getting more testing for celiac you need to wait to go gluten free because you need to be on gluten for testing.

Some people with celiac get no symptoms and some do. There are over 200 symptoms associated with it and there is no set symptoms. Some people are overweight and some are underweight.

Thyroid disease is also linked with celiac.

Definitely sounds like you have a problem of some sort with gluten.

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