Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

GFD: The First Year Questions


Sara789

Recommended Posts

Sara789 Contributor

I'd love to get your input on the questions below to help us newbies.

 

1.) Once you started the Gluten Free Diet (GFD), how long did you go before your first involuntary glutening?

2.) How many times were you glutened your first year?

3.) How long do your symptoms last once you've been glutened?

4.) How long have you been on a GFD?

5.) What's your record for length of time not getting glutened?

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sara789 Contributor

I'll go first.

1.) Once you started the Gluten Free Diet (GFD), how long did you go before your first involuntary glutening?

     1 month

2.) How many times were you glutened your first year?

     Once in my 1 month, 1 week on a GFD.

3.) How long do your symptoms last once you've been glutened?

     Currently on day 5 after first involuntary glutening.

4.) How long have you been on a GFD?

     1 month, 1 week.

5.) What's your record for length of time not getting glutened?

     1 month.

icelandgirl Proficient

1. Once you started the Gluten Free Diet (GFD), how long did you go before your first involuntary glutening?

1.5 months

2.) How many times were you glutened your first year?

3

3.) How long do your symptoms last once you've been glutened?

Gut symptoms for a week, other symptoms for a month or more.

4.) How long have you been on a GFD?

3 years today!

5.) What's your record for length of time not getting glutened?

1 year

Ennis-TX Grand Master

1.) Once you started the Gluten Free Diet (GFD), how long did you go before your first involuntary glutening?

Less then a week, Living with my family then.

2.) How many times were you glutened your first year?

Too many to count

3.) How long do your symptoms last once you've been glutened?

Wanes off after a day or two but all the symptoms can take 2-6 weeks til I am back up full.

4.) How long have you been on a GFD?

Over 3 years about 4

5.) What's your record for length of time not getting glutened?

Period? about 3 months, major bed ridden I am going on month 7 since I was last on the floor.

Sara789 Contributor

Thanks icelandgirl & Ennis_TX. Hopefully more people will respond.

@icelandgirl - Congratulations on your 3 year GFD anniversary!

It's good for me to read the different responses. I was really upset (and still am) about getting glutened after 1 month. I was finally starting to feel better and get some energy. I'm also upset because it was in my home, which I cleaned multiple times like a mad woman. I threw away the pan that I think was the culprit. I'm at 5 days since my last glutening  and hope to break my 1 month record. :P 

icelandgirl Proficient

Hi Sara,

Thank you!  I can't believe it's been 3 years...so crazy.  The first time I was glutened I was devasted...I remember it really well.   You will continue to learn and things will get easier and easier as you go along.  As diligent as you are, I have no doubt that you will beat that record quite soon. ?

I hope you get more responses as well...I find this really interesting!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,138
    • Most Online (within 30 mins)
      7,748

    Mamaof3
    Newest Member
    Mamaof3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
      Thank you for your response. You are right, this is not worth the damage to my thyroid since I know gluten is bad for me anyway. I stopped the challenge and did the IgA and tTG-IGA tests and am waiting for results, although I know it is likely they will be false negative anyway. I figured since I wasn't ever really strict about cross contamination, they might show positive if I do have celiac. I did the genetic testing a few months ago and was positive for DQ8.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like your body is sending a clear signal that gluten is a major trigger for your Hashimoto’s. The dramatic spike in your anti-TPO (from 50 to 799!) and the severe symptoms you’re experiencing suggest a strong immune reaction, even if celiac testing wasn’t done earlier. While a formal diagnosis would clarify cross-contamination risks, continuing the challenge may not be worth the damage to your thyroid and quality of life, especially since you already know gluten worsens your antibodies and symptoms. If you need answers, you could discuss genetic testing (HLA-DQ2/DQ8 genes) with your doctor—this can rule out celiac predisposition without a gluten challenge. For now, prioritizing your health by quitting gluten again (strictly, given your sensitivity) and supporting gut healing (like probiotics, L-glutamine, or zinc carnosine) might be the wisest path. Your thyroid will thank you!
    • trents
      Well then, I'd say he's making excellent progress. It can take some time for antibody numbers to normalize. Even though new antibodies are no longer being produced, it takes a while for the old ones to be disposed of. Make sure you keep an eye on the alkaline phosphatase levels. It is probably true that is tied to his adolescent growth spurt but it's worth tracking. Thirteen years of elevated liver enzymes was what eventually led to my celiac disease diagnosis. But I was 50 years old by that time and it was my ALT and AST that were mildly elevated all that time, not my alk phos. I just found out last week from an ultrasound that my liver is 20% larger than normal and I'm hoping that is a legacy effect. I have more testing lined up. 
    • CeliacMom79
      Hi. Sorry, his previous levels were >250 and we do not know how high they were. So yes, "off the chart". By 'detectable' I just meant that at 234 we now actually have a number as a baseline that we can measure future labs against. All his other liver test functions have been normal.  Just the elevated ALP. Thank you.
    • NoGlutenCooties
      Hi all I'm looking for a safe place to eat in Wilmington, DE. Any ideas? Thanks Jenny
×
×
  • Create New...