Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

celiac and food allergies


BlueRidgeAngie

Recommended Posts

BlueRidgeAngie Newbie

I have been diagnosed with multiple food allergies as well as celiac disease. Is there anyone else who cannot eat rice too? Just when I got the celiac diet down to a science, I now cannot eat rice, milk, eggs and 13 other foods. How  do I begin to bake vegan, gluten free and rice free ? I can't buy too many packaged gluten free products from the store because they all have rice or milk or eggs. Help! any suggestions on bread?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Google gluten free vegan recipes.  

 

I don't know what sort of diagnoses you got for " food allergies".  Most of them aren't very accurate.  You may find that once you heal the Celiac damage, you can eat some of these foods again.

BlueRidgeAngie Newbie

I had skin prick tests and reacted to 16 food items. I have an allergic reaction to eating these foods. Over the passed year and a half, I have had to do the elimination diet to see what (if any) reaction to these foods I have when eaten. I am definitely allergic to rice now. My intestines have had 12 years since the first diagnosis of celiac to heal. The food allergies are something new. When I eat rice now, I get a rash, blisters, itchy eyes and throat, difficulty breathing, and sneezing constantly.  I have these symptoms from the onset of eating rice and it continues for two or three days until it is completely out of my body. I was wondering if anyone else has multiple food allergies and how they deal with baking without rice on a gluten free diet. There are a ton of recipes on the internet of course, but you have to substitute one or more ingredients and this doesn't always work for the best.

 

GFinDC Veteran

About the only thing I bake is corn meal muffins sometimes.  I use corn meal and masa (corn) flour.  Works ok for me.  If you have a grinder you can grind your own flours from whatever you like.  They sell egg replacer in some stores.  I haven't tried it so not sure how it works.  There were some long threads on baking bread a while back.  You might find them by searching.

cyclinglady Grand Master

I am sorry that you are now dealing with all these allergies.  Have you heard about Mast Cell Activation Syndrome/Disorder?  How are you treating your allergies now?  

I have  some unresolved food intolerances, but have anaphylactic reactions to many medications and insect stings.  The severity of my reactions seem to be way worse during a glutening (lasting months)  or other illness.  Other allergies (pollen, some animals, etc.) can be managed with medication.  Can your food allergies be managed with medication or were you instructed by your doctor to avoid these foods at all costs or to avoid them for a while in hopes of your immune system calming down?  16 different foods is such a restriction!  Karen was pointing out that 50 to 60 % of skin prick testing can have false positives:

Open Original Shared Link

Consider asking your allergist for a food challenge in his/her office to confirm the skin prick results (at least for rice).   You already are on a restricted diet!  Ask too for a referral to a dietician who might be able to help.  It is a lot to take in!  

I know this sounds like a dumb question, but how are your celiac antibodies?  One of my glutenings caused daily hives, swelling and itching for months!    Have you had any repeat endoscopies to measure your progress?  I am not a doctor, but hidden gluten contamination can play havoc on our systems (e.g. Oats, eating out, etc.)

I hope this helps.  

 

kareng Grand Master

I do not like the grittiness of rice flour.  Research a bit more - there are lots of alternative flours with recipes.  I like a mix of sorghum, tapioca and arrowroot, maybe some millet.

 

add flax to help with the lack of eggs along with chia seeds or egg replacer

Ennis-TX Grand Master

I do nut flourbased breads a lot. Pretty much on a vegan, grain free diet myself. I posted a few recipes in the cooking section here. I have issues with carbs, allergic to corn and a whole list of other issues on top of celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Really Newbie

Last summer an allergist tested me for foods to which I had exhibited reactions--itching, coughing, sudden congestion, post-nasal discharge, asthmatic response, rash... However, I showed no reactions to these allergens. When I asked why then was I reacting to these foods, he told me it may be histamine, that many foods contain histamine. One of those reactions is to eggs. 

For a number of years I have been using bread flour and recipes from www.BreadsFromAnna.com. Anna Sobaski has individual flour mixes, most without corn, dairy, rice, nuts, peanuts. The online recipes contain instructions about using baking powder and water as an egg substitute. I am certain you will be delighted with her products. She will return your phone call. She is located in Iowa City.

I found her product in my local grocery store in Iowa.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.