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Recent Activity
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- melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Persistent isolated high DGP-IGG in child despite gluten-free diet
Thank you everyone for t thank you for sharing your story. I’m borderline obsessive in making sure my kids get tested; my parents are convinced undiagnosed celiac in childhood stunted some of my growth and cause tooth enamel issues. We now embark on a gluten challenge which comes with its own problems and I know diagnosis after being gluten-f... -
- Rebeccaj posted a topic in Coping with Celiac Disease0Help where to apply for jobs !
Hey guys. Has anyone ever worked in McDonalds or hungry jacks or kfc with coeliac disease.!? like different packaging to fresh bakery cooked bread? Did they get neurological symptoms.! Thanks. -
- Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications6Reverse Osmosis (RO) Water
I am honestly not sure. Initially I was purchasing my RO water via a refill station at the same store for the past several years. My employer (at the time) also has an RO water filtration system. Thus while drinking water and coffee at home or work, I was consuming RO water. I just so happened to switch to a gallon of sealed store bought distilled water... -
- knitty kitty replied to Rosalie P's topic in Gluten-Free Foods, Products, Shopping & Medications2Oat &gluten free eczEMA MOISTURIZER
Welcome to the forum, @Rosalie P, I like tallow balm for my eczema. Vintage Traditions is my favorite brand. I find that taking Niacin B3 and Omega Threes also very helpful in healing the skin from the inside out. Our skin reflects the state of health of our intestines. One of the first signs I ate something that my intestines didn't like... -
- Scott Adams replied to Rosalie P's topic in Gluten-Free Foods, Products, Shopping & Medications2Oat &gluten free eczEMA MOISTURIZER
If you’re avoiding both gluten and oats, you’re right — a lot of “eczema” or “moisturizer with oat” products use oat-based ingredients (like colloidal oatmeal) that can be questionable for people with celiac or oat sensitivity unless the oats are certified gluten-free and tolerated. For truly gluten-free and oat-free moisturizers many people with sensitiv...
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By melthebell · Posted
Thanks very much for taking the time to write. I have been reading a lot about this and it definitely is not straight forward. My first port of call is the gene test - probably should have had it done before we left Australia because they don’t run the test in Japan. So I’ve ordered a third party test kit and just swabbed his cheek. Then we start the gluten challenge and see how it goes. -
By melthebell · Posted
Thank you everyone for t thank you for sharing your story. I’m borderline obsessive in making sure my kids get tested; my parents are convinced undiagnosed celiac in childhood stunted some of my growth and cause tooth enamel issues. We now embark on a gluten challenge which comes with its own problems and I know diagnosis after being gluten-free can be difficult to secure. But I will absolutely persevere. -
Hey guys. Has anyone ever worked in McDonalds or hungry jacks or kfc with coeliac disease.!? like different packaging to fresh bakery cooked bread? Did they get neurological symptoms.! Thanks.
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I am honestly not sure. Initially I was purchasing my RO water via a refill station at the same store for the past several years. My employer (at the time) also has an RO water filtration system. Thus while drinking water and coffee at home or work, I was consuming RO water. I just so happened to switch to a gallon of sealed store bought distilled water at home and instantly felt better. I know that sounds like an exaggeration, but it is true. My initial thought was the RO water refill station must have been contaminated, possibly from some sort of cleaning agent. Later I bought completely sealed RO water from a different store. Again, my stomach started making crazy noises and I felt off. It took a few days to get through all of the RO water I bought. I thought it was distilled or spring, but after reading the label a bit closer...nope it was RO water. Again, as soon as I stopped drinking it my stomach settled and I felt SO much better. I cannot say what it is about RO water that does not agree with me, but there are threads on Reddit and elsewhere on the Internet with plenty of people reporting GI related issues from RO water. I linked to one in my original post within this thread. While doing more research, I have discovered that RO water filtration systems should not be used with copper plumbing. Per Google AI Overview: Reverse Osmosis (RO) water should not pass through or be stored in copper plumbing because the purified, low-TDS water is highly aggressive and causes corrosion, pitting, and pinhole leaks in copper pipes. RO water leaches copper, resulting in a metallic taste and potential health risks like copper poisoning. Always use polyethylene (plastic) tubing for RO systems. The more I learn about RO water, the more I plan to steer clear. If it is well know to damage and leach copper...well I'll just leave it at that.
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By knitty kitty · Posted
Welcome to the forum, @Rosalie P, I like tallow balm for my eczema. Vintage Traditions is my favorite brand. I find that taking Niacin B3 and Omega Threes also very helpful in healing the skin from the inside out. Our skin reflects the state of health of our intestines. One of the first signs I ate something that my intestines didn't like is eczema. Milk and other dairy products definitely make my skin break out. Have you been keeping a food journal? Have you noticed a link between break outs or exacerbation and the food you eat?
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