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Is it Celiac or not?

Washingtonmama

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Washingtonmama Contributor
Washingtonmama
Posted

 Since I was diagnosed with Celiac disease, we had our two youngest (ages 11 and 16) tested. Our 16 year old is fine, our 11 year old had a high IgA but all the other tests were normal. Except he is anemic. Honestly, my brain hurts trying to figure this all out. I never did figure my own out. His doctor, who we love, says he thinks he is at risk for one day being diagnosed, but for now seems fine. The GI docs in our area are booked for months. What do these test results mean?

CELIACDP 

 
  IgA 
183
 114.0-339.0 mg/dL 

 
  Gliadin Peptide Ab IgA 
17.2
 Units 

 
  Gliadin Peptide Ab IgG 
3.8
 Units 

 
  Tissue Transglutaminase IgA 
20.9High
 Units 

 
  Endomysial Ab IgA Scn 
Negative
 

 
  Celiac Panel Interp 

 
 
Results suggest the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis. Diagnosis should not be based on serologic findings alone. Results should be used in conjunction with other clinical findings and biopsy results for a diagnosis of gluten sensitive enteropathy

 

 

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ravenwoodglass Mentor
ravenwoodglass
Posted

Keep him on gluten and make an appointment with the GI doctor. You could ask to be put on the cancellation list if you can get there on realitively short notice.  I hope you can get some answers soon.

pschwab Enthusiast
pschwab
Posted

Ask your son's doctor to call the gi dr for an appointment. We were told they were booked for the next couple months, and there was no way I was waiting that long. I called almost in tears to speak with our pediatrition about what to do for my son, and he called and got us an appointment for the following week. Amazing how they found that opening (eye roll). We had full celiac panels and genetic testing done on our other kids to check their probability of developing celiac. The combo (or lack there of) of the genes assesses the chance they have of developing celiac. Do keep him eating gluten until you can get further info though. If he needs a biopsy, he has to continue the gluten unfortunately. :(

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    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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