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Food.. where to start?

Doublejump

By Doublejump
in Coping with Celiac Disease

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Doublejump Newbie
Doublejump
Posted

I have been on low fod map diet for IBS now i have been diagnosed with celiac, and completely lost when it comes to what i can eat? If i stick to low fod map and add in gluten free everything im so limited. I know certain things that are a high in fodmaps affect me so i dont eat them anymore. I have diarrhea every single morning without fail no matter what i ate the day before. I constantly feel bloated, have gained weight which is ridiculous considering i am a pt and fitness instructor and exercise two three times a day 6 days a week and barely eat anything. My hair is thinning, i have joint pain , especially in my knees and i cant sit for long periods of time. My periods are all over the place. Im always tired but manage to find the energy somewhere to do classes. Im hungry all the time yet basically live on eggs chicken rice strawberries banana, and black rice crackers and certain vegetables. Nuts are out completely no matter what nut im in for days of bloat and pain. Even when i eat low fodmap and gluten free I'm still bloated immediately after which makes my life hard when i have to go put on a pair of tights and take a hard core class. What am i doing wrong?  I drink green tea mostly no coffee or alcohol. No bread. Ever. No chocolate and cant tolerate dairy wheat nuts avacado salmon and so on. The list is long. I now have a list on my fridge of what i can eat yet it still makes me feel bloated. I need more protein in my diet like before and add spinach to everything or eggs. Im sick of eggs! Any tips on food would be great . T i a 

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cyclinglady Grand Master
cyclinglady
Posted

Welcome!  

Adhering primarily to a gluten free diet will probably resolve many of your other food intolerances.  Focus on fresh foods and avoid wheat, barley, rye and oats.   Here is more information about the gluten free diet:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

It does take time to heal.  So, be patient!  Take one day at a time.  We are here to help.  

 

Ennis-TX Grand Master
Ennis-TX
Posted

OUCH, I live off of nuts, and all carbs/sugars cause me to bloat, and feel like crap. But I have UC and it causes my intestines to swell when they get sugars, dairy, etc.  I personally eat a bunch of low carb stir fry, veggie sautes with wilted greens, soups omelettes, etc. And I Focus on a ketogenic diet of just fats and protein. >.< I can not digest most meats and live off of eggs small amounts of crab and fish and massive amounts of vegan protein powders. I work out daily and am trying to put on weight lol. I find you can do all kinds of things and seasonings with sautes. I can not help you much since I live off of nuts. How are you with seeds? I like snacking on pumpkin seeds whole with shell for the fiber, and help seeds. Love throwing them in a salad with some dry seasoning and a apple cider, balsamic, or coconut vinegar and zapping it in the microwave to make a nice hot chopped salad of wilted greens. Heck I even make noodles out of eggs by slow cooking egg beaters in a pan over low heat to form a sheet then cutting it into noodles (Nordic ware microwave plates can be used for this to great effect, even makes egg tortilla)

EasterLily Explorer
EasterLily
Posted
On 4/16/2017 at 0:16 AM, Doublejump said:

I have been on low fod map diet for IBS now i have been diagnosed with celiac, and completely lost when it comes to what i can eat? If i stick to low fod map and add in gluten free everything im so limited. I know certain things that are a high in fodmaps affect me so i dont eat them anymore. I have diarrhea every single morning without fail no matter what i ate the day before. I constantly feel bloated, have gained weight which is ridiculous considering i am a pt and fitness instructor and exercise two three times a day 6 days a week and barely eat anything. My hair is thinning, i have joint pain , especially in my knees and i cant sit for long periods of time. My periods are all over the place. Im always tired but manage to find the energy somewhere to do classes. Im hungry all the time yet basically live on eggs chicken rice strawberries banana, and black rice crackers and certain vegetables. Nuts are out completely no matter what nut im in for days of bloat and pain. Even when i eat low fodmap and gluten free I'm still bloated immediately after which makes my life hard when i have to go put on a pair of tights and take a hard core class. What am i doing wrong?  I drink green tea mostly no coffee or alcohol. No bread. Ever. No chocolate and cant tolerate dairy wheat nuts avacado salmon and so on. The list is long. I now have a list on my fridge of what i can eat yet it still makes me feel bloated. I need more protein in my diet like before and add spinach to everything or eggs. Im sick of eggs! Any tips on food would be great . T i a 

Hello Doublejump.

I feel your pain. I have been wearing sweatpants for 5 weeks due to the bloating being so bad. Today I was able to wear a pair of stretchy jeans. I was so excited. But I ate dinner and now I need to get back into my sweats. :( I take my happy moments anywhere I can so I focus on all my good moments to avoid getting lost in the negativity that can come with this. I am on day 20 of my gluten free diet and I've had to cut out so many of my favorite foods. Even foods that are gluten free. My body just doesn't want them right now. I'm still healing. Withdraw made me even sicker but I am coming out of it thank goodness. I am eating extremely bland food for right now and eggs almost everyday. I'm sure at some point I will get sick of them, but for now I pretend they are the greatest food ever. Going gluten free has caused me some food sensitivities with foods that have never bothered me before. There is a learning curve with this and I'm still learning it. I am also still healing and will be for some time. I have good days where I feel good and I have bad days where I question my healing. I'm learning to listen to my body. It's telling me what works and what doesn't. There are a lot of knowledgeable people on this forum and I have gotten excellent advice here. Give yourself time to heal. You're not in this alone.

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    • SamAlvi
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      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
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    • lizzie42
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      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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