Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Nervous

Moongirl

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

Ok so i have been doing somewhat ok this week, but i have to go to the endo test this friday....I have a little bit of anxiety issues already, and im starting to get more.... :( Anyone want to share their experience...?

Also does anyone know if being on antibiotics would cause the test to be screwed up? i just found out i have bronchitis :blink: I cant imagine this test being comfortable at all at this point. but i just want to get it done!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Relax Moongirl, the Endo. isn't bad at all. I was out for mine and don't remember a thing. Felt perfectly fine after. I would definately call the Dr.s office and let them know that you're on antibiotics. There may be a problem depending on what meds. they plan to use for your procedure. Or, maybe not, I don't know, but I would call to make sure. Try not to worry--it'll be fine :)

Rae Apprentice
Rae
Posted

Hey Moongirl'

I just went for my endo&colonoscopy today and it wasnt a big deal. The endo took 15 minutes, they give you a local anestetic (which is great :lol: ) and when you wake up you dont remember a thing. My throat felt a little scratchy and I had little cramps in my stomach, but that was probably b/c my Gastro took a lot of biospys. Inform your doc about the meds b/c I was not allowed to take aspirin a week b/c the procedure. Good Luck!

Moongirl Community Regular
Moongirl
Posted
  • Author

thanks for the comforting thoughts.... :D yah i dont take asprin, but have been taking advil and robitussin. I forgot to ask about those meds....I did ask about the antibiotics and he just told me to keep taking them, so i guess its ok.... ;)

Carriefaith Enthusiast
Carriefaith
Posted

My only advice is to ask to be fully sedated for the procedure. No partial sedation, trust me on this one ;)

traveljunkie Rookie
traveljunkie
Posted

Moongirl, just reading your post brought back bad memories of why I'm even on this site :P . All my problems began after taking antibiotics for bronchitis. I would have skipped the antibiotics unless it's very, very necessary!! Make sure you supplement with probiotics!! You'll be fine with the endoscope... it's always the lead up to these tests that are usally the hardest part!! :)

Canadian Karen Community Regular
Canadian Karen
Posted

Carrie,

They must have made some advances in this procedure since I had it done because they said they had to keep me partly awake to "swallow" the tube down......... If they can knock you totally out now, that's awesome!

Hugs.

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted
They must have made some advances in this procedure since I had it done because they said they had to keep me partly awake to "swallow" the tube down......... If they can knock you totally out now, that's awesome!
I think that they can do it with total sedation now. I'm pretty sure that is what my grandmother had done.
jerseyangel Proficient
jerseyangel
Posted

I was totally sedated for the procedures--colo. and endo. the same day. The Dr. that did mine said that even if I was to have only the endo., I would be totally sedated and the procedure would take about 5 minutes. He thought I should have both, so I went ahead and got it over with (I'll be 50 next year). Glad I did--colo. was clear so one thing I don't have to worry about.

Moongirl Community Regular
Moongirl
Posted
  • Author
Moongirl, just reading your post brought back bad memories of why I'm even on this site :P . All my problems began after taking antibiotics for bronchitis. I would have skipped the antibiotics unless it's very, very necessary!! Make sure you supplement with probiotics!! You'll be fine with the endoscope... it's always the lead up to these tests that are usally the hardest part!! :)

Thanks the test was ok, just a lil sore throat, looks like i may be positive for CF...but have to wait for the biopsies....but the doc said my villi are pretty flat....

Why do you say you had problems with the antibiotics? I actually had to come off them cause i was having some not so nice reactions...yuck! they took me off, and didnt put me on anything else yet....

What r probiotics?

traveljunkie Rookie
traveljunkie
Posted

Hi Moongirl, happy to hear you got through the procedures and have found some answers.

First, probiotics replenish the good bacteria that are killed along with the bad when taking antibiotics. You can get them at health stores. Look for the "enteric" coated ones, they will get to your intestines.

In Feb. of this year both my son and I were put on antibiotics for bronchitis. We started having diarrhea, everything we ate went right through us. We began to lose a lot of weight in a short time period and started to notice whenever we ate certain foods, we'd be right back where we started...meaning all food would quickly run through us.(sorry,gross I know) So we eliminated gluten and dairy, within 2 days we had normal bowel movements and no itchy rash. Throughout the months we have tried to eat wheat and always have reactions to it. We have had blood tests come back negative but had already been gluten free for months. We are waiting for results from Enterolab but regardless what the results we will remain gluten frr for life. We have never felt better. On our journey to better health, I have learned wheat products can be bad for some people. I don't need a blood test to confirm that.

It can be challenging at first but we have no problem with it now. You'll be fine and you're on the right track to better health. This forum is here to help with all questions and concerns. :)

Moongirl Community Regular
Moongirl
Posted
  • Author
Hi Moongirl, happy to hear you got through the procedures and have found some answers.

First, probiotics replenish the good bacteria that are killed along with the bad when taking antibiotics. You can get them at health stores. Look for the "enteric" coated ones, they will get to your intestines.

In Feb. of this year both my son and I were put on antibiotics for bronchitis. We started having diarrhea, everything we ate went right through us. We began to lose a lot of weight in a short time period and started to notice whenever we ate certain foods, we'd be right back where we started...meaning all food would quickly run through us.(sorry,gross I know) So we eliminated gluten and dairy, within 2 days we had normal bowel movements and no itchy rash. Throughout the months we have tried to eat wheat and always have reactions to it. We have had blood tests come back negative but had already been gluten free for months. We are waiting for results from Enterolab but regardless what the results we will remain gluten frr for life. We have never felt better. On our journey to better health, I have learned wheat products can be bad for some people. I don't need a blood test to confirm that.

It can be challenging at first but we have no problem with it now. You'll be fine and you're on the right track to better health. This forum is here to help with all questions and concerns. :)

Thanks =)

OIC yah the doc took me off this antibiotic cause i was having diarrhea....same thing happend to me with eating the food...and u know its funny know that u told me, i got this weird look rash right behind my knee today...not sure if it was something from the procedure, or maybe the meds, not too sure... not sure if he will put me back on a different antibiotic or not, cause i didnt really finish the first set...but im not sure if they will all have the same reaction with me....yah im ok with dairy but the wheat is a no-no! i will have to ask about the probiotics though. thanks :)

Lisa Mentor
Lisa
Posted

Make sure that you take someone with you who will convey the conversation from the Gastro. Dr. I did not remember anything including lunch afterwards with my husband. I asked him for three days what the Dr. told him.

If your attendee is like my husband, ask them to take notes for you to refer to later. I slept it off for the remainder of the day. It was kind of nice to sleep in the middle of the day and have a legitimate reason for it. My children not my husband bothered me. That was a short gift.

I did have a sore throat for several days, but no big deal.

OOPS....I guess that I am a day short..

Anyways, I hope you have found some answers and you will begin to feel better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.