Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergic to Almost all Food - Eating Meat....Support?!


Melissa28

Recommended Posts

Melissa28 Newbie

Hi.  I've been eating a limited diet since 2007 when I first had allergic reactions to foods and my body went "hyper sensitive", I went gluten-free fully in 2009 and have been living a great life by eating healthy and gluten-free.  About 6 months ago I had 10 reactions in a two month time frame, went on an even cleaner diet, and was good for two months, and then it happened again. Plus I had a reaction to dye free Benadryl. I saw two different functional medicine doctors and signed on with one of them. He took my labs and told me my yeast levels are very high, I have leaky gut and other than that I should be an easy fix because my thyroid and other numbers were good. Well adrenal fatigue I have too of course. (:  Last week he put me on Paleo Protein and L-Glutamine. Both I'd tried the week before in small amounts and did okay with. Well last week Tuesday I reacted to the Paleo Protein and it really stirred up something in me, because Wed I had a reaction to one bite of eggplant and then bruseel sprouts later in the day and they've always been fine. Thursday morning Turkey got stuck in my throat and I felt off from that. So I went back to chicken, beef and water and kept taking the L-Glutamine. Friday I felt funky and so Saturday I stopped talking the L-Glutamine and had chicken and bison. Felt great for the first day. Today I tried just a little bit of the l-glutamine in water again and my throat started to clench and my face felt full. Then my lips felt numb.  So my first question is....what do you guys take other than Benadryl if you're having a stronger reaction??? I have HistDAO histamine blocker, but if I need more I don't know what to take.  Next....help! those of you that are down to only meat and water too, what is working for you???  Thirdly, how off is my body to have a reaction to L-Glutamine? I just can't do anything man-made. Can anyone relate to any of this??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I suggest researching Mast Cell Activation Syndrome or EOE.  

Open Original Shared Link

 Also, Benadryl crosses the blood brain barrier and there have been long-term complications.  Talk to your doctor about using  another antihistamine.  If your reactions have been anaphylactic, you should have an epi pen.  I hope you feel better soon!  

Jabreu81 Newbie

The L-Glutamine may have gluten in it.  Try drinking bone broth daily instead.

Ennis-TX Grand Master

Your getting plenty of proteins for once and I would drop the L-glutamine supplement what brand is it? Paleo Protein as in the brand? They were not gluten free last I checked, I got sick from it 2 years ago or so when they changed to a non dedicated facility.

Melissa28 Newbie

Thanks everyone!  The L-Glutamine is from Nutri-Dyne and the Paleo Protein is from Dynamic and is sold by Nutri-Dyne. Is this the brand you got sick from? 

Melissa28 Newbie

It won't let me attach a picture. It's the Pure Beef Protein Isolate French Vanilla with vanilla seeds in the front.  

Ennis-TX Grand Master
30 minutes ago, Melissa28 said:

It won't let me attach a picture. It's the Pure Beef Protein Isolate French Vanilla with vanilla seeds in the front.  

Yours looks safe I was using paleo pro back then and the company changed from gluten free to manufactured in the same facility as.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.