Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter

Depressed gluten-free Catholic


MeganTX

Recommended Posts

MeganTX Newbie

Hi, I am new here and I was diagnosed about a year ago with NCGS.  I am sensitive enough that I need my own toaster, my own jar of peanut butter, etc but I can drink the "de-glutened" beers that seem to bother some.  I have accepted that I can never again eat anything or anywhere new without scouring labels and Googling everything but there is one thing that still bothers me - I am Catholic.  The core of the Catholic Mass is Communion, which I can no longer have because it is made of unleavened wheat.  I get stressed every time I go up for Communion and cross my arms to get a gluten-free blessing because this is what is supposed to bring us together and I feel left out.  I read that there are some awesome nuns sonwhere that created a low-gluten host but I am wondering: (1) Has anyone tried this?, (2) How do you ensure that you get that and with no cross-containation?  I was thinking I might became an EMOHC and just always serve in that capacity so that I can ensure I get the right host untainted by the wheat versions.  I would love any and all advice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome to the community here.

I am not Catholic, but have been a member here for many years, and a moderator for ten. This topic comes up from time to time.

I am Episcopalian, similar in most beliefs. Talk to your priest. In my church, receiving one form of communion is sufficient to meet the obligation, so I usually just take the cup. I arrange with the priest to be first in line, lest the cup be contaminated from another communicant.

For the wafer to qualify in the Roman Catholic Church, it must be made from wheat. There are some sources of low-gluten wafers, but I have no personal experience with them. The Episcopalian (Anglican) church allows a wafer that does not contain wheat.

TexasJen Collaborator

I am Catholic and I totally understand. At my home parish, there is a layman who has celiac.  He has arranged to have these hosts ordered from the Benedictine sisters of Perpetual adoration.

Open Original Shared Link

At the beginning  mass, anyone who needs a gluten-free hose can take it from the main receptacle and place it in a special pix.  The priest has them and they are consecrated and with the priest.    He is handling the gluten and the gluten-free host back and forth.  But, I talked to this fellow and he said that he has not had any symptoms of cross-contamination and he is fairly sensitive.   I am celiac but really don't get any obvious symptoms so I can't tell you if cross-contamination is an issue or not   I also partake in the wine,  but I try to sit in the first or second row( to be the first to drink the wine)  to limit cross-contamination.  I make sure to be aware if the priest Saying mass puts a small piece of bread in each chalice (then I do not partake.)

psawyer is right though.  Consuming either form of  eucharist is adequate and acceptable.   Often times I just take the wine. 

 I have considered becoming a Eucharistic minister.  This would completely eliminate the possibility of cross-contamination. If you were the first person to drink from the chalice, there would be no chance of cross-contamination at all.

 Traveling is tough.   I often times abstain when I am traveling  but many parishes now offer gluten-free hosts  so I'm sure you could research it  and contact the parish ahead of time. One of my best friends has Ncgs  and he can take the gluten-free host with no trouble. 

 I know a priest whose nephew is celiac in central Texas. . I haven't talk to him personally about the situation (just his SIL) but I'm sure  he would be happy to talk about it if needed.  I don't know what part of Texas you're in  but let me know.

Feeneyja Collaborator

I am Catholic and my daughter, who is NCGS, DOES have problems with the low gluten host (it's either the host or the way it is handled. There is no way to really know).  Her symptoms are primarily neurological.  I provided the following link to our priest with details about her reaction (she cannot walk, has balance issues, numbness of arms and legs).

Open Original Shared Link

His solution was to order her a separate small chalice that is consecrated with everything else but is off to the side on the alter to prevent cc.  Then my husband, who is a Eucharistic minister administers the cup to her. 

I am currently recovering from my own gluten challenge (I am also NCGS) and am staying away from all gluten even processed gluten-free under 20ppm foods because I want to heal, so I have not tried the low gluten host and also receive from the chalice with my daughter.

When we travel we abstain from receiving and pray for a spiritual communion.  

Talk to your priest. Send him the link above, which is from the USCCB.  There is a pastoral solution.  

Victoria1234 Experienced

Here is yet another link to a gluten-free host to purchase: Open Original Shared Link

 

Ennis-TX Grand Master

While not catholic (I am Methodist) I do take communion. I have arranged with my pastor to bring my own loaf and get it blessed once a month or so. I then keep it in the freezer at home and bring it to communion or take it in my house. This has worked out great for the last 3 years, and enabled me to participate in it without issues.

lyfan Contributor

Megan-

 I am not Catholic but I owe my gluten awareness to whoever was the Pope in 2004. There was a BIG piece in the national nooze media about some Roman Catholic girl in NJ who had celiac. Her parents were told by her priest and bishop that she should take the communion wafer anyway, and the parents appealed for Papal Dispensation not to take it because of the allergy.

The Pope responded, and said the wafer transmogrifies and becomes the body of Christ, so there is no wheat once she take communion. That's a foundation of the Church and no, she can't get dispensation from that. (Episcopalians apparently have a rice cracker as an alternative.)

I happened to hear that news on a weekend when all I had had was Melba toast and I said to myself "DING! WHEAT! CELIAC!" and if the Pope hadn't been such an inflexible man...it wouldn't have been nooze and I wouldn't have made the connection.

I understand the current Pope is much more reasonable, and would urge you to literally apply for Papal Dispensation. He's the only one who can grant it to you.

Otherwise, if you are following a religion that insists you commit regular medical harm to your own body, you may have to rethink exactly which organized religion does or doesn't work with your choice of Gods.

Take it to the top man. I think this one will be clever enough to find a solution for you.

 

Lyfan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TexasJen Collaborator
On 6/27/2017 at 8:05 PM, lyfan said:

Megan-

 I am not Catholic but I owe my gluten awareness to whoever was the Pope in 2004. There was a BIG piece in the national nooze media about some Roman Catholic girl in NJ who had celiac. Her parents were told by her priest and bishop that she should take the communion wafer anyway, and the parents appealed for Papal Dispensation not to take it because of the allergy.

The Pope responded, and said the wafer transmogrifies and becomes the body of Christ, so there is no wheat once she take communion. That's a foundation of the Church and no, she can't get dispensation from that. (Episcopalians apparently have a rice cracker as an alternative.)

I happened to hear that news on a weekend when all I had had was Melba toast and I said to myself "DING! WHEAT! CELIAC!" and if the Pope hadn't been such an inflexible man...it wouldn't have been nooze and I wouldn't have made the connection.

I understand the current Pope is much more reasonable, and would urge you to literally apply for Papal Dispensation. He's the only one who can grant it to you.

Otherwise, if you are following a religion that insists you commit regular medical harm to your own body, you may have to rethink exactly which organized religion does or doesn't work with your choice of Gods.

Take it to the top man. I think this one will be clever enough to find a solution for you.

 

Lyfan

Hi Lyfan-

I think you may have misunderstood what happened in 2004.  At the time when Haley's mother, Elizabeth Pelly-Waldman, asked the Church for a dispensation she refused the two reasonable options they did provide her with: 1. to take a low gluten host (which is below 20ppm) or 2. partake of the wine only. What she asked for was her daughter to be able to take of a completely rice or soy based host, breaking with 2000 years of tradition.  She was not told that she should take the gluten host and harm herself. 

I would encourage you to read a little bit about John Paul II. He was one of the most amazing, compassionate men that has lived in recent times.  While very different from Pope Francis, he is no less holy of a man.  Witness to Hope would be a great start....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.