Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy only?


Hatbox121

Recommended Posts

Hatbox121 Apprentice

I had a repeat colonoscopy last week. I'm 36. My first one was due to rectal bleeding that wouldn't stop. They found a fissure, but also a bunch of polyps so I get to be an overachiever and have colonoscopies early. Anyway when I woke up the DR said he found more polyps and sent those off. No surprise. He also found a few other odd things but nothing major. Then he said he found flat mucosa in my ileum and so he biopsied it to check for celiac. That was that. Wondering if that is enough for a diagnosis? If it comes back positive anyway. I think I'm doing all this backwards and upside down. Would the ileum show celiac? Everything I've read is biopsies via EGD. I had an EGD last year and they found ulcers. He said it looked "all chewed up" but never mentioned any celiac. I have a lot of GI symptoms, but not clearly celiac. Also have a history of bowel rupture(small intestines) as a kid. I'm lost. Should I ask for the blood work? Or just wait and see? Is the ileum even a place for biopsy in regard to celiac? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tessa25 Rising Star

I don't know anything about the ileum. But it's so easy to get a blood test for the full celiac panel, so why not do that now? The full celiac panel includes:

TTG IGA

TTG IGG

DGP IGA

DGP IGG

IGA

EMA

 

Hatbox121 Apprentice

Thanks! I'll give my GI a call Monday. I already need to ask about something else anyway. Thinking my gut may be why my RBC count is always low. 

cyclinglady Grand Master

Yes, you can have celiac disease at the end of the small intestine within reach of the scope from a colonoscopy.  I would ask for a celiac blood panel definitely because villi damage get can occur from several things other than celiac disease.  

 

 

Victoria1234 Experienced

I'd want to read further about your chewed up looking insides. Can you ask for the notes? Any biopsies taken?

Hatbox121 Apprentice

It's ulcers. Well "excavated lesions. H. Pylori negative according to biopsy. Can't recall exact point off top of my head, will have to look at patient portal.

Hatbox121 Apprentice

My current list- of GI stuff anyway 

Sigmoid diverticulosis 

Benign neoplasm of ascending colon    
Benign neoplasm of descending colon    
Benign neoplasm of sigmoid colon    
Other hemorrhoids    
Gastric ulcer, unsp as acute or chronic, w/o hemor or perf    
Diarrhea, intermittent    
Ehlers-Danlos syndrome    
GERD    
Lower abdominal pain    
Nausea with vomiting, unspecified    
Periumbilical Abdominal Pain    
Personal History of Colonic Adenoma    

Weight Loss

 

Btw ulcers were in Antrum biopsies taken for h.pylori(which was neg). It says "a few" on my notes. All chewed up were his words last I saw him. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    2. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
    • Jane02
      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
    • Matthias
    • Scott Adams
      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.