Back from ER

[Washingtonmama]

I got up today feeling horrible. Super tired, no energy at all, cold, weak. Took my hubby to his appointment. I had to go to the bathroom, a normal b.m., but with blood. An hour later I got off and on stabbing pains below my ribs to my belly button. No pattern to them at all. My upper abdominal area seems very noisy, and that's usually when the pain happens. CT scan was normal. Usually when I get glutened I get a nasty migraine and diaharreah, no stabbing pains. And I have no diaharreah now. I've never had this happen. Could this be gluten? Have any if you had these issues? I did start a part time job at a little store/RV park a month ago. We fry foods there, but I'm very careful not to touch my face and change clothes as soon as I walk in the door. I glutened myself a few times when I first started, but not in the past few weeks. I've been off work for 3 days so I can't see how I've been glutened. Could it be the exposure at my job? I hope not, I love working there!

[cyclinglady]

I am sorry you are sick.  I can only remind you that celiac disease is an autoimmune disease that is triggered by gluten (sets off an autoimmune response).  It can take days or weeks for antibodies to ramp up and then decrease after a gluten exposure.  Each time I have been accidentally glutened, my response (symptoms) vary.  It drives me crazy trying to determine if gluten is  the cause or if it is another illness.  Usually, it has been gluten, because I get better in a few months.  

[Ennis-TX]

As mentioned with celiac it takes weeks for you antibodies to go back down, and your reactions to gluten can vary and change over time and also depends on the amount of CC you got and what form the gluten is in. Random thing that comes to my mind, you mentioned blood in your stool, this is a different sign, that along with the pain. I might suggest seeing if you can have a colonoscopy if you keep having this. There are other complications and AI issues that can develop alongside celiac. I had the blood issues for about a year on and off and ended up having Ulceratve Colitis diagnosed. For now keep a food diary and see if you find certain foods triggering this even gluten free ones. Keep a list on ones that seems to effect the blood in the stool.

[cyclinglady]

5 hours ago, Ennis_TX said:

As mentioned with celiac it takes weeks for you antibodies to go back down, and your reactions to gluten can vary and change over time and also depends on the amount of CC you got and what form the gluten is in. Random thing that comes to my mind, you mentioned blood in your stool, this is a different sign, that along with the pain. I might suggest seeing if you can have a colonoscopy if you keep having this. There are other complications and AI issues that can develop alongside celiac. I had the blood issues for about a year on and off and ended up having Ulceratve Colitis diagnosed. For now keep a food diary and see if you find certain foods triggering this even gluten free ones. Keep a list on ones that seems to effect the blood in the stool.

So, true!!!!!

[Washingtonmama]

11 hours ago, cyclinglady said:

I am sorry you are sick.  I can only remind you that celiac disease is an autoimmune disease that is triggered by gluten (sets off an autoimmune response).  It can take days or weeks for antibodies to ramp up and then decrease after a gluten exposure.  Each time I have been accidentally glutened, my response (symptoms) vary.  It drives me crazy trying to determine if gluten is  the cause or if it is another illness.  Usually, it has been gluten, because I get better in a few months.  

I know that feeling, racking your brain trying to figure out what you are. It can be maddening! Even worse for you that your symptoms vary. Very frustrating. 

[Washingtonmama]

8 hours ago, Ennis_TX said:

As mentioned with celiac it takes weeks for you antibodies to go back down, and your reactions to gluten can vary and change over time and also depends on the amount of CC you got and what form the gluten is in. Random thing that comes to my mind, you mentioned blood in your stool, this is a different sign, that along with the pain. I might suggest seeing if you can have a colonoscopy if you keep having this. There are other complications and AI issues that can develop alongside celiac. I had the blood issues for about a year on and off and ended up having Ulceratve Colitis diagnosed. For now keep a food diary and see if you find certain foods triggering this even gluten free ones. Keep a list on ones that seems to effect the blood in the stool.

Celiac wasn't enough, your body had to throw in UC. Ugg. I will keep a good diary starting now. I never had this problem before, which is why I'm wondering if the constant expose to the cooking oil where I work is the problem. I did end up with the other symptom of being glutened, the worst migraine I've had in years. 

[Washingtonmama]

8 hours ago, Ennis_TX said:

As mentioned with celiac it takes weeks for you antibodies to go back down, and your reactions to gluten can vary and change over time and also depends on the amount of CC you got and what form the gluten is in. Random thing that comes to my mind, you mentioned blood in your stool, this is a different sign, that along with the pain. I might suggest seeing if you can have a colonoscopy if you keep having this. There are other complications and AI issues that can develop alongside celiac. I had the blood issues for about a year on and off and ended up having Ulceratve Colitis diagnosed. For now keep a food diary and see if you find certain foods triggering this even gluten free ones. Keep a list on ones that seems to effect the blood in the stool.

I forgot to ask if you have the off and on stabbing pains with your UC. 

[Ennis-TX]

9 minutes ago, Washingtonmama said:

Celiac wasn't enough, your body had to throw in UC. Ugg. I will keep a good diary starting now. I never had this problem before, which is why I'm wondering if the constant expose to the cooking oil where I work is the problem. I did end up with the other symptom of being glutened, the worst migraine I've had in years. 

Yeah everyone has different trigger foods with UC, I for years thought the bloat, distention, and blood were from bad bacteria....It happened every time I ate more then like 1-2 figs, a few tsp of real sugars, rice, beans, starches. Pretty much any carb or sugar so I ate them in moderation for like a full year. Then in Feb. the doctor told me I had UC, seems those are my trigger foods.....Keto/Paleo diet was my change over blood and all that stopped after a week of removing all fruit, grains, and real sugar from my diet. >.< still get a flare up if I eat to many of some veggies. But protein and fats seem to be working for me.  Up a full 4lbs from my base weight a year ago, seems to be muscles to boot lol. Now for my current health issues if not one thing it is another with this  body.  

With the UC I did have pains that felt better when I massaged them normally down low or up high seemed to follow the path of my large intestine.

[Washingtonmama]

2 hours ago, Ennis_TX said:

Yeah everyone has different trigger foods with UC, I for years thought the bloat, distention, and blood were from bad bacteria....It happened every time I ate more then like 1-2 figs, a few tsp of real sugars, rice, beans, starches. Pretty much any carb or sugar so I ate them in moderation for like a full year. Then in Feb. the doctor told me I had UC, seems those are my trigger foods.....Keto/Paleo diet was my change over blood and all that stopped after a week of removing all fruit, grains, and real sugar from my diet. >.< still get a flare up if I eat to many of some veggies. But protein and fats seem to be working for me.  Up a full 4lbs from my base weight a year ago, seems to be muscles to boot lol. Now for my current health issues if not one thing it is another with this  body.  

With the UC I did have pains that felt better when I massaged them normally down low or up high seemed to follow the path of my large intestine.

Awesome you found your triggers! My niece is on the diet you mentioned. Keyto I  think. I fibd the pain follows before or after abdominal rumbling and moved down as the day passed. It def hurts way down low on the left when a bm is coming. If it keeps up Ill have my doc refer me to a GI. Thanks for your input. ?

[Beverage]

You say that you are involved in frying foods?  Is there any loose flour involved in that? Airborne flour gets into the nose which drains down to the stomach, so same as eating it.  Hope you get better soon, it is so very very frustrating trying to figure out where the gluten is coming from.