Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

is this a negative test result?

RachelEBooker

Recommended Posts

RachelEBooker Newbie
RachelEBooker
Posted

I have been visiting a GI doctor for my constant stomach pain. He took blood tests and today I received on of a celiac disease panel... and I am so confused. I can't find anything online that gives layman terms. 

test results.webp

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tessa25 Rising Star
tessa25
Posted

Your TTG IGA is less than 2. That test says no celiac. Your IGA is 148 and is normal. So the first test is a good test.

There are other tests for celiac. A positive on any one of them would mean you should get an endoscopy/biopsy to verify celiac. Those tests are:

TTG IGG

DGP IGA

DGP IGG

EMA

CYA: I'm not a doc

RachelEBooker Newbie
RachelEBooker
Posted
  • Author
25 minutes ago, tessa25 said:

Your TTG IGA is less than 2. That test says no celiac. Your IGA is 148 and is normal. So the first test is a good test.

There are other tests for celiac. A positive on any one of them would mean you should get an endoscopy/biopsy to verify celiac. Those tests are:

TTG IGG

DGP IGA

DGP IGG

EMA

CYA: I'm not a doc

Ok thanks so much for answering. I was freaking out because I couldn't understand it and the doctor is closed already. I had never thought I had celiac but when I looked up the symptoms I was even more worried because I have them all. 

squirmingitch Veteran
squirmingitch
Posted

This paper does not show the entire celiac panel, just a small part of it. Do you know if they did more than what is on the paper?

RachelEBooker Newbie
RachelEBooker
Posted
  • Author
14 minutes ago, squirmingitch said:

This paper does not show the entire celiac panel, just a small part of it. Do you know if they did more than what is on the paper?

This is all that I have. I wasn't even aware I was being tested for Celiac. He told me he needed to take blood to make sure I was digesting and absorbing nutrients properly and to run a battery of tests. I assume this is just a part of the tests that were performed. 

cyclinglady Grand Master
cyclinglady
Posted

Learn more about celiac disease testing here:

Open Original Shared Link

This talks about celiac disease and the risks of developing it (e.g. Already having an autoimmune disorder or a family member with celiac disease):

Open Original Shared Link

The TTG test is a good test, but it does not catch all celiacs (I always test negative to the TTG).    If you and your GI still suspect celiac disease, you should get the DGP and EMA tests.  Since you are not IgA deficient, the IgA versions should be fine.  Note that some celiacs are seronegative (no antibodies).  If celiac disease is ruled out FOR SURE, you might be gluten sensitive, but not have intestinal damage.  This is called Non-Celiac Gluten Intolerance.  The "cure" is a gluten free diet (like celiac disease).  

This algorithm goes over testing:

Open Original Shared Link

Your doctor may order an endoscopy to check for other things like SIBO, ulcers, H. Pylori, etc.  he may want to check for celiac disease anyway (you could be seronegative).  In any case, do NOT settle!  Something is wrong!  

RachelEBooker Newbie
RachelEBooker
Posted
  • Author
6 minutes ago, cyclinglady said:

Learn more about celiac disease testing here:

Open Original Shared Link

This talks about celiac disease and the risks of developing it (e.g. Already having an autoimmune disorder or a family member with celiac disease):

Open Original Shared Link

The TTG test is a good test, but it does not catch all celiacs (I always test negative to the TTG).    If you and your GI still suspect celiac disease, you should get the DGP and EMA tests.  Since you are not IgA deficient, the IgA versions should be fine.  Note that some celiacs are seronegative (no antibodies).  If celiac disease is ruled out FOR SURE, you might be gluten sensitive, but not have intestinal damage.  This is called Non-Celiac Gluten Intolerance.  The "cure" is a gluten free diet (like celiac disease).  

This algorithm goes over testing:

Open Original Shared Link

Your doctor may order an endoscopy to check for other things like SIBO, ulcers, H. Pylori, etc.  he may want to check for celiac disease anyway (you could be seronegative).  In any case, do NOT settle!  Something is wrong!  

Ugh, now I am back to square one. I was thinking 'whew, no celiac disease.' Now i can't be sure. What I think I will do is start removing gluten from my diet and see if it helps. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Sorry, I saw that the EMA test was run and it was negative.  Still, I personally tested negative to that one as well.  Talk to your doctor first before going gluten free.  You need to be on a gluten diet for even the endoscopy/biopsies to work.  He still might want to do the endoscopy to rule out other issues.  If everything is okay, then consider the gluten-free diet.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    2. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    3. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    4. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety

      This article, and the comments below it, may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,808
    • Most Online (within 30 mins)
      7,748
    mhendy123
    Newest Member
    mhendy123
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.