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Been mucking around with going gluten free, now need to get tested properly. What's involved?


Ali1

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Ali1 Newbie

Hi. I have type 1 diabetes, now hyperthyroid as well. I mostly stopped eating gluten a couple of yrs ago, in an effort to help my blood sugar control. Because it was a personal choice, if I fancied gluten, like when offered cake, I had some. 

Since my hyperthyroid diagnosis my doctor suggested doing a gluten tolerance test. I feel like I'm eating a lot of gluten, very bloated and no longer getting hungry. It's only nearly 2 weeks. 

My doctor said 4 weeks should b enuf, that I don't need to do the whole six weeks. Everything I read says at least 6 weeks. I'm eating 3 to 4 slices of bread a day. Any opinions on how long I need to do this?

thanks. 


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tessa25 Rising Star

I believe it's one slice of bread per day for 12 weeks. You should get the full celiac panel done because a high on any one test should lead to an endoscopy/biopsies being done by a gastroenterologist to verify a celiac diagnosis. The full celiac panel includes TTG IGA  and IGG, DGP IGA  and IGG, EMA, IGA.

 

cyclinglady Grand Master

Oh, I would hate to have you test negative because your gluten challenge was not long enough.

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If you were going straight to an endoscopy to obtain intestinal biopsies, the challenge is much shorter.  At least your doctor recognizes the strong link between Thyroid, TD1 and celiac disease.  Talk to your doctor and discuss your concerns.  Share this research with him.  

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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