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I Don't Get It....

CMCM

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CMCM Rising Star
CMCM
Posted

I keep reading here about all the hoops....expensive hoops people jump through to get a diagnosis....various blood tests, biopsy (which is invasive and could in rare instances cause a perforation), etc. etc. Yet, supposedly the stool test is almost 100% conclusive, so why doesn't everyone go that route? Am I missing something here?

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frenchiemama Collaborator
frenchiemama
Posted

I had never even heard of the stool tests until I came here, a month after diagnosis.

I also had never heard of celiac disease or DH until the day they drew my blood for the tests.

I'm sure that many people are in that same boat.

Guest nini
Guest nini
Posted

I too had never heard of the stool test until I came to this board, also the medical community is traditionally very resistant to anything that they didn't think of first, so if a patient goes to the Dr. wanting to try the stool test, most would by their nature be resistant to accept the results of that because it is not within their normal standards of practice yet. Dr. Kenneth Fine is still in the process of developing the research documentation to present to the medical community in order for them to decide if they will then consider it's validity in their testing... I think because it is still so new, most have not even heard of it yet. It will take some time to catch on.

tarnalberry Community Regular
tarnalberry
Posted
I keep reading here about all the hoops....expensive hoops people jump through to get a diagnosis....various blood tests, biopsy (which is invasive and could in rare instances cause a perforation), etc. etc. Yet, supposedly the stool test is almost 100% conclusive, so why doesn't everyone go that route? Am I missing something here?

The stool tests (in the US only available through Enterolab) are not accepted by most mainstream doctors because the methodology has not been peer reviewed, published, and independently verified. The person who created and is marketing the test says it's almost 100% conclusive, but other doctors have been unable to verify his claim. He may be right, but no one else has determined it independently.

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