Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor wants me to drink contrast even though it has gluten


HaleyMoon

Recommended Posts

HaleyMoon Rookie

I posted a few weeks ago about being scared to drink the ct scan contrast, I contacted the company who makes it and they told me that it contains gluten.

the doctor said "well you have to drink it or we can't do the test." 

Its like they don't take celaic diease seriously. I've been working hard for months now trying to stay away from gluten I just can't drink that stuff.

im still having stomach pains that's why she ordered a ct scan and says it won't be clear without the contrast

i don't know what I should do everyone is telling me to just "suck it up" you're only going to be a pain for a little while.

Or that it's just "a little gluten" not enough to hurt you. 

I thought any amount of gluten could hurt you I just can't take that chance and I'm all out of ideas because my stomach still hurts eveyday.

 

thanks if anyone read all of this I would really like you're opinions should I just drink it knowing there's gluten in it? Or just find some other way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced

I imagine because you have the name and brand of the contrast that you already contacted the imaging center. Did they have any options or suggestions? Possibly another brand they could order for you? It's a reasonable expectation that you should be accommodated for a health reason! And your doc should be fighting FOR you, not telling you to suck it up! Ridiculous!

kareng Grand Master

LIke we told you before - talk to the people that are taking the CT.  They should be able to get one without gluten.  there is more than one choice.  

Cara in Boston Enthusiast

I just had one done last week.  I called the CT place in advance and the first person I spoke to didn't know the answer.  She told me not to worry though, because I could have juice instead if needed.  (This made no sense to me, but whatever).  On the morning of my appointment, I called first and again, someone told me she didn't know the ingredients, but she was sure they had something gluten free.  When I got there they had already flagged my file and they brought me the banana flavored contrast drink.  It was gluten free.  The other options were not.  They took it very seriously.  Still wondering about the "juice" option though.  The banana was pretty gross.

cyclinglady Grand Master

Who is the customer here?  Unless you have government healthcare, you are in charge.   Don’t like your doctor? Shop for another one.  Stand up for your rights!  If you are young/and or sick and find that hard to do, then ask a friend or family member to champion for you.  Take notes, ask questions, research and follow up with concerns or question in writing.  Amazing what a certified nice letter can do!  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,525
    • Most Online (within 30 mins)
      7,748

    AHC
    Newest Member
    AHC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Peace lily
      Yes I have thyroid and have had it for over 30 years and just got diagnosed for cealiac last march.I have been complaining all the years about stomach pain weight lost hair falling out they kept blaming on the thyroid and I am over 70 years old. but what I’ve been reading thyroid,diabetes,should take a closer look,I think autoimmune plays a part.All I know is that I cook strictly gluten-free and also found if restaurants don’t have a designated gluten-free kitchen not going there. Cross contamination is a big thing .
    • Jmartes71
      Celiac Disease is not taken seriously and I want that to change. It affects one in so many ways and not being properly cared for is frustrating and inhumane. On our worst days the last thing we are thinking about is going to the the hospital.Im 54 years old and went through the celiac ringer with incompetent doctors not understanding the disease and gaslighting me when not feeling well.Ive learned so much with the celiac community and had to school my new gi whose actually listening and understanding, now, this year 2025 when i was half told in 1994 by colonoscopy and endoscopy..Pregancy doesn't affect the public but it's a reportable condition. I want to make celiac disease a reportable disease to protect the patients from being medically gaslight as I was.I want awareness, I want to not have another go through what Ive been through. In order for celiac disease to be taken seriously, I truly think it needs to be reportable disease to protect the patients. I did email Adam Gray and also my local representative.
    • Jmartes71
      I use Aveeno for decades and I am dealing with skin issues and didn't think anything of Aveeno being a problem. Is Aveeno ok?I also use Yarrow pom in it which I notice helps.
    • NicoleSR
    • trents
      Yes, I use Aveeno Moisturizing Body Lotion with prebiotic oat, unscented. I really only use it on my hands and not every day. Haven't noticed any problems. I don't have dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.