Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune problems with Udi products


Joyful joanna

Recommended Posts

Joyful joanna Rookie

I am having problems with Udi bakery goods. I have explosive diarrhea, joint pain every time I eat Udi products. I know they are no longer made in a dedicated factory, so cross contamination may be a problem. Also, I react to anything made with seaweed, MSG, carrageenan, agar and alginate. I noticed recently that they have added sodium alginate to all their bakery products. Maybe this is the problem for me. Why in the name of common sense do we need to add a seaweed derivative to bakery products. Goodbye Udi’s products. You have just lost a customer. Anybody else out there having similar problems with Udi products? I have emailed Udi’s about this, but most “gluten free” companies do not want to hear from Celiac’s, and their response is usually patronizing at best.

Had a bad 10 week autoimmune reaction to eating off the gluten free menu at the Cheesecake Factory, even with specific instructions to the server and the cook who prepared my chopped salad. The company would not tell me if their dairy products had carrageenan in them, that is a yes. Serious cross contamination of their gluten free cheesecake, baked in the same ovens and stored in the same refrigerators. Eat there at your own risk! I suggested a red sticker on menus discouraging Celiacs from eating in their establishments. No comment!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Why do you say that they are no longer made in a dedicated facility?  That seems unlikely as the whole company is gluten-free foods

Ennis-TX Grand Master
3 hours ago, Joyful joanna said:

I am having problems with Udi bakery goods. I have explosive diarrhea, joint pain every time I eat Udi products. I know they are no longer made in a dedicated factory, so cross contamination may be a problem. Also, I react to anything made with seaweed, MSG, carrageenan, agar and alginate. I noticed recently that they have added sodium alginate to all their bakery products. Maybe this is the problem for me. Why in the name of common sense do we need to add a seaweed derivative to bakery products. Goodbye Udi’s products. You have just lost a customer. Anybody else out there having similar problems with Udi products? I have emailed Udi’s about this, but most “gluten free” companies do not want to hear from Celiac’s, and their response is usually patronizing at best.

Had a bad 10 week autoimmune reaction to eating off the gluten free menu at the Cheesecake Factory, even with specific instructions to the server and the cook who prepared my chopped salad. The company would not tell me if their dairy products had carrageenan in them, that is a yes. Serious cross contamination of their gluten free cheesecake, baked in the same ovens and stored in the same refrigerators. Eat there at your own risk! I suggested a red sticker on menus discouraging Celiacs from eating in their establishments. No comment!

I hate udi's for using corn in everything lol, I am allergic to it. But I am pretty sure all there stuff is made in a dedicated facility. Personally seaweed does not bother me and I go to wakame, kambu, and nori for iodine sources since I need to offset the large amounts of oxalate foods I eat. But I do have a allergy to corn and can tell of that pain in the ass ingredient found in everything.

As for the eating out....if not a 100% gluten free place, I would not order anything but 1-2 ingredient dishes. And even then I have heard and experienced the horror of learning the steamed veggies were done over pasta water/pasta pot.  I have only eat out a few times in the past few years, and I normally just get the roasted asparagus, or broccoli from my local chili's where the manager knows me, I see how they do it on a conveyor roaster on disposable foil sheets so no CC. (I bring my own vegan cheese sauce and just do dippers for social meets)  
If you wish to eat out and chance it, invest in a NIMA Sensor to test your food with. Great to test your food prior to eating to see if it is glutened.

Joyful joanna Rookie

You are correct Ennis. I have given up eating out. Unless you are in the kitchen, you just do not know what is happening there. Sorry you cannot eat Udi products either, just for a different reason. I had read online at another site that their factories were not dedicated factories. I think my issue with their bakery products is the sodium alginate. Really liked their products too. I am allergic to shellfish and IV contrast dye made with shellfish which contain iodine. Had anaphylactic shock to IV contrast dye and an iodine based gastric contrast media after surgery for a para esophageal hernia repair, nearly died both times.

kareng Grand Master
8 hours ago, Joyful joanna said:

Y. I had read online at another site that their factories were not dedicated factories. I think my issue with their bakery products is the sodium alginate. 

So you really didn't ask the company and it isn't gluten in the products that others you.

Joyful joanna Rookie

Yes, this is correct. I feel safer just not buying their products in the future. I am 73 and a very sensitive Celiac with many allergies, so I must take care of myself. I am waiting for a reply to my email to Udi’s.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,594
    • Most Online (within 30 mins)
      7,748

    simplyles18
    Newest Member
    simplyles18
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Alibu
      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
    • Scott Adams
      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...