Confused?

[Soph-88]

Hey everyone,

29 year old female cabin crew new on here after being told I had celiac to my shock after getting a couple virus' at the start of the year and never feeling 100% well after them. In April I got stomach pains one day, this disappeared the next day but since then I had off/on heavy feeling and spiky pain in my lower right. Sometimes diarrhea. Feeling exhausted. 

After being put on several courses of antibiotics being told I had an infection from Ct scan at first, I've eventually just had the endoscopy and colonoscopy last month and been told it's celiac. I've never had a direct reaction to any gluten foods so this was a real shock to me. Since last month I've been trying to stick to a gluten-free diet as much as possible and have noticed an ever so slight improvement. However I still get slight heaviness in my lower right and feel so tired all of he time. Also shooting pains/weird nerve feelings down lower right back, knee and chest sometimes on and off randomly. Just had blood tests back which say the only thing I'm deficienct in is ferratin which is 9.4. I was surprised by this as felt like I had so many and was expecting more. Doc said it's up to me whether to take iron tablets but sometimes they irritate stomach worse. Also doc reported bowel being 'fine for now' even though that's where I felt most pain. But stomach inflamed. 

Just wondering how long from experience it takes to start feeling yourself/energized again? And why I still seem to feel so tired and have this right sided heaviness. Any advise is much appreciated. Thank you! 

 

 

[cyclinglady]

37 minutes ago, Soph_88 said:

Hey everyone,

29 year old female cabin crew new on here after being told I had celiac to my shock after getting a couple virus' at the start of the year and never feeling 100% well after them. In April I got stomach pains one day, this disappeared the next day but since then I had off/on heavy feeling and spiky pain in my lower right. Sometimes diarrhea. Feeling exhausted. 

After being put on several courses of antibiotics being told I had an infection from Ct scan at first, I've eventually just had the endoscopy and colonoscopy last month and been told it's celiac. I've never had a direct reaction to any gluten foods so this was a real shock to me. Since last month I've been trying to stick to a gluten-free diet as much as possible and have noticed an ever so slight improvement. However I still get slight heaviness in my lower right and feel so tired all of he time. Also shooting pains/weird nerve feelings down lower right back, knee and chest sometimes on and off randomly. Just had blood tests back which say the only thing I'm deficienct in is ferratin which is 9.4. I was surprised by this as felt like I had so many and was expecting more. Doc said it's up to me whether to take iron tablets but sometimes they irritate stomach worse. Also doc reported bowel being 'fine for now' even though that's where I felt most pain. But stomach inflamed. 

Just wondering how long from experience it takes to start feeling yourself/energized again? And why I still seem to feel so tired and have this right sided heaviness. Any advise is much appreciated. Thank you! 

 

 

Welcome! 

Recovery from celiac disease can take a lot of time.  Most members report that healing took months to a year or longer. It all depends on the systemic damage that occurs throughout the body and we all have different issues.  It also depends on how fast you learn the gluten free diet which typically has a steep learning curve.  

Check out the Newbie 101 thread at the top of the “Coping” section.  It contains valuable tips.  We are here to help each other.  ?

Best advice?  Be patient (so hard.......)

[Jmg]

12 hours ago, Soph_88 said:

Just wondering how long from experience it takes to start feeling yourself/energized again? And why I still seem to feel so tired and have this right sided heaviness. Any advise is much appreciated. Thank you! 

The better you can stick to the diet the better your healing should be. Try and make sure you always have a safe snack handy in case you're far from home. I guess you're far from home on a regular basis but you know what I mean!

Try and heat as well as you can, especially in the first few months. Your body is probably starved of nutrition so eat well.  

Also, despite the blood test results, consider taking a decent vitamin supplement. I take B vitamin complex and magnesium and find both help with tiredness etc.  

Good luck