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Does this sound like celiac?

Theatre7

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Theatre7 Newbie
Theatre7
Posted

I'll try to keep this short, and I'm seeing my doctor next week who will hopefully screen for celiac so I will know for sure, but I want to see if I'm headed in the right direction. I've had an assortment of ailments troubling me for years with no answers and I just did the 23 and me genetic testing and one of the things that came up as a slightly increased risk was celiac. I have one of the genetic variants common in celiac, so I started researching and it sounds like the possible answer. These are my symptoms: horrible constant fatigue, depression, anxiety, alternating diarrhea and constipation, lots of painful gas, food poisoning symptoms through the years when eating various foods from restaurants, migraines, mouth ulcers, itchy legs, drenching night sweats, occasional muscle and joint pain, skin pain the day after having a few drinks, bloating. I think that's all for now. What of these symptoms are common for you if you've been diagnosed? I also know I'm vitamin d deficient. That's about thing only thing that came up in previous blood work for other things. Thank you so much for your help!!!

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cyclinglady Grand Master
cyclinglady
Posted

Well, some 40% of the population carries the genes that COULD develop into celiac disease and only a few actually do.  Genetic testing is most often used to RULE OUT celiac disease.   Many illness symptoms often overlap making it difficult to diagnose base on symptoms alone.   For example, celiac disease has over 200 symptoms attributed it.  Some celiacs have many and some celiacs have none (silent celiac disease).  Also, I could have sworn that my niece had celiac disease.  Turns out she had Crohn’s, another autoimmune disorder involving the gut.  So, testing is the way to go.  Learn more about testing and stay on gluten.  The celiac tests will not work if you go gluten free.  

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Theatre7 Newbie
Theatre7
Posted
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Thanks so much for replying! I know anything autoimmune is so hard to diagnose as there are symptoms that overlap like crazy across the board. I've been trying to figure out what's going on for so long and I feel like every time I see the doctor I'm nowhere closer to figuring out what's wrong with me. It's so frustrating. I'm definitely going to stay on the gluten and have some testing done to see. I definitely don't want celiac but also, if it's negative, it's back to the drawing board again. I'll look into things like Crohn's as well, just in case. Something's not right with me, and it can't just be depression and anxiety. Thanks for your input!

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      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
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      Issues before diagnosis

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      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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      Dizziness after eating green beans?

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    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

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      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
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