Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac? Gluten intolerance?


Alifaour

Recommended Posts

Alifaour Newbie

Hii all...

i have many symptoms started 5 months ago !...

at the beginning start feeling dizziness then fatigue, pain all over the body (muscle pain), Muscle twitching, Skin rash,  can not gain weight, low appetite ,headaches,low concentration, brain fog,  weakness in arms and legs, low energy, Constipation/ diarrhea.

 

i had many investigations: Brain CT, Blood Tests, Neurological examinations, Brain MRI, ---> all are NORMAL - Except Vitamin D deficiency which is now corrected. and Low Lithium <0.1 (Normal value 0.6-2.5)/

 

then i started taking Multivitamins, Magnesium supplements and Vitamin D, ashwagandah, and after 3 months i started to feel better, some good days some bad days! but generally i feel much better. (No dizziness ,much less twitching, no tinnitus, No brain fog) still have some weakness and 

 

i started thinking about Celiac disease or gluten intolerance,,,, i had Blood Test for Celiac disease and Biopsy,,,, Blood test for celiac came Negative,,,, but the biopsy shows irregular, reduced Villi, and Increased Number of Lymphocytes. (1st and 2nd part of duodenum).

since 1 week i am eating Gluten-free. i feel much much better in the first 4 days ! 

but now since 2 days started again to have some weakness with little headache. 

 

with that results, can it be only Gluten intolerance? and how long i need to feel better?! or to clear Gluten from the body?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
On 2/11/2018 at 9:30 PM, Alifaour said:

Hii all...

i have many symptoms started 5 months ago !...

at the beginning start feeling dizziness then fatigue, pain all over the body (muscle pain), Muscle twitching, Skin rash,  can not gain weight, low appetite ,headaches,low concentration, brain fog,  weakness in arms and legs, low energy, Constipation/ diarrhea.

 

i had many investigations: Brain CT, Blood Tests, Neurological examinations, Brain MRI, ---> all are NORMAL - Except Vitamin D deficiency which is now corrected. and Low Lithium <0.1 (Normal value 0.6-2.5)/

 

then i started taking Multivitamins, Magnesium supplements and Vitamin D, ashwagandah, and after 3 months i started to feel better, some good days some bad days! but generally i feel much better. (No dizziness ,much less twitching, no tinnitus, No brain fog) still have some weakness and 

 

i started thinking about Celiac disease or gluten intolerance,,,, i had Blood Test for Celiac disease and Biopsy,,,, Blood test for celiac came Negative,,,, but the biopsy shows irregular, reduced Villi, and Increased Number of Lymphocytes. (1st and 2nd part of duodenum).

since 1 week i am eating Gluten-free. i feel much much better in the first 4 days ! 

but now since 2 days started again to have some weakness with little headache. 

 

with that results, can it be only Gluten intolerance? and how long i need to feel better?! or to clear Gluten from the body?

Hi!  Welcome!  

It can take a long time to heal from celiac disease.  First , learning the gluten free diet can be hard.  Cross contamination can be a problem.  Read our Newbie 101 thread located at the top of the “Coping” section of the forum.  Second, most celiacs have a lot of collateral damage beyond the GI tract.  It usually takes weeks to months to even years to recover.  

Celiac disease is an autoimmune disease caused by the ingestion of gluten.  Once the body reacts, it can keep attacking the small intestinelong after you have removed gluten from your body.    

Keep at the diet and be patient!  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,653
    • Most Online (within 30 mins)
      7,748

    Janet51
    Newest Member
    Janet51
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.