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Dh testing via an endoscopy

Sonnyvitoleo

By Sonnyvitoleo
in Dermatitis Herpetiformis

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Sonnyvitoleo Newbie
Sonnyvitoleo
Posted

Hi. I have mild gastro symptoms pretty much my whole life. Sometimes they were impossible to managed other times just a nuisance. I feel as though the rash I have is dh based on everything I have researched. The  images are the same as what my rash looks like. I have had blood test  for celiac done, they are negative I have had a biopsie also negative. My gastro will perform an endoscopy on me if I want that... what are you opinions? Will the endoscopy finally bring me the yes or the no that I desire???

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apprehensiveengineer Community Regular
apprehensiveengineer
Posted

I think if you have insurance, you might as well go for the endoscopy/intestinal biopsy. There's a solid chance it might be a false negative because those with DH often have patchier damage, but it's worth a shot. Heck, you might even find out that there's another source for your stomach/skin problems!

Even if you're negative all across the board (skin/intestine/blood), you can still discuss testing out the GFD (with your GI/other healthcare professional). A good doctor will recognize that there are limitations to the current testing methods (ie. not 100% of cases are caught), and should be open to idea of seeing if the relatively low risk medical intervention for celiac/DH results in a positive response. You'll get flack from some for doing this, but an official DH diagnosis is quite elusive for many because even most specialists are unfamiliar with it.

squirmingitch Veteran
squirmingitch
Posted

You have to be eaten gluten every single day until the endoscopy is done.

Olivia Newbie
Olivia
Posted

I agree w/ apprehensive engineer. If you can financially manage an endoscopy go for it. My advice is to find a gastro dr that has experience in celiac disease and can interpret your marsh stage if you do have celiac. There's also a good chance you are gluten sensitive. I may be wrong but DH is specific to celiac disease. Your skin condition could be something else entirely. A good dermatologist w/ celiac related HD can diagnose by just seeing it & of course to be definitive be would do a biopsy. I really think if the skin biopsy comes back negative ask the Dr what it is... foliciltis? Bracoradial? And if you do have a stomach biopsy you need to have been eating gluten for at least 3 weeks.

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